Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 Hi Kiki & all, I wanted to open this topic up to the group, i.e.: Has anyone noticed any link, beneficial or otherwise, between LDN use & shingles (which can also be brought on by stress etc) or other infections that they feel could be associated with a particular dosing regimen of LDN or drug combination? Medications are modulators (e.g. neuroimmune response) so it seems conceivable that some may have a different reaction (that may be dose or other variable dependent) & while researching LDN I remember I came across one of the few negative testimonials on remedyfind possibly relevant here where they implicated the development of shingles with LDN use: http://www.remedyfind.com/review_long.asp?id=4393 & review_id=19757 Of course there could be other variables there. Interestingly when I went over the Full conference audio ( http://www.low dose naltrexone.org/_conf2005/Full_Conf_Audio.mp3 ), I found two references: @246min:18sec (or 04 hours 06 min 18 sec in hour:min:sec format): Unidentified woman mentions how she & Dr. Bihari use LDN as a prophylactic-she reported anecdotally that she gave LDN to a friend & her shingles which is normally a 3 month progression for her-went away in a week. @300min:10sec (or 05 hours 00 min 10 sec in hour:min:sec format): Context: {Dr. Gluck I believe: mentioned 1 min:20 sec earlier he's was a specialist in preventive medicine, shares some of the dreams of LDN} -may see in elderly the possibility of seeing sharp drops in incidence of painful *shingles-herpes zoster, decreasing cancer rates, pneumonia-influenza groups, protect aging immune systems, enormous savings in health care costs. Note: Some MP3 players use the hour:min:sec format like Windows Media Player. A good free MP3 player for Windows platform @ http://winamp.com/player/free.php (scroll to Free Download) uses minutes:sec format by default. Full conference audio is 334:21 minutes or in hour:min format: 05 hours 34 minutes 21 seconds (if you feel like reviewing above brief references). Any thoughts, Best Wishes, - Josh > As some of you know I started BEE stings 2 weeks ago. Last week I had flu > like symptoms I thought was from stings.I developed what looked like 3-4 bites on > my left rib side. > Experienced alot of pain and kept getting worse so today I went to the > dermatologist and found out I had Shingles. ! > > I think the stings triggered it but what shocked me is when the doctor read > that I was on LDN she said I give LDN to patients for HairGrowth! She then > proceeded to tell me to go to Dr. Bihari's site blablabla... > I told her I knew all about it and was quite surprised she prescribes it. She > said it is harmless so she prescribes. She asked me if I noticed anything > with my hair and told her it grows faster but not thicker.So........my point is > .... > > > Maybe a dermatologist will prescribe . Just another option. Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 Hi Kiki, so glad to hear you're doing better. The most compelling part of that Remedyfind case is the challenge:rechallenge aspect. That is she mentions " I have to say that I tried the new LDN with the same results. Each time even at 1.5MG, I got more spasticity and my lymph node on the side I had shingles on started to swell. When I stop the medicine, the stiffness improves and lymph node goes back to normal. " Alternatively, perhaps she is one of the few who may have done better on a lower dose for awhile or there were other variables at play. When I saw your post & pondered LDN mechanisms, I thought I should open the topic up to the group. Shingles incidence increases with age, those who are immunocompromised and can have a stress component. PostHerpertic Neuralgia (PHN) & CNS/cranial-ocular involvement can be significant complications so physician monitoring is important. Also see: http://www.lef.org/protocols/prtcl-123.shtml http://www.emedicine.com/med/topic1007.htm (clinical mainstream article) I was interested in any link whether favorable (as suggested at the conference) or otherwise (as suggested by that remedyfind case). Please keep us informed on how you do Kiki. Best Wishes, Josh > Josh, I went for my check up with the dermatologist for shingles Tuesday. > This would have been the 2nd week of having them. She said they were healing > nicely and should be gone by next week. They did not spread past the point of the > original. I have been on LDN for over 2 yrs, therefore I am sure it was not > the LDN. I do have a very mild case which I am grateful for and maybe that is > the LDN or that I am younger than most who do get it. (52) > I was speaking to a friend that works for an internist in FLA, and she said > they have been having quite a few case these past few months. Could it be a > seasonal thing? I remember my kids having the chickenpox during spring recess as > did the whole school every year. It seemed to be at a certain time of year. > The Remedyfind shingle case I believe was coincidental in timing of taking > LDN. I wouldn't put any weight on one case. I don't remember anyone on this site > ever having the problem either and there are alot of us. > Interesting subject ..anyone else have shingles while on LDN? Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 > Hi Kiki, so glad to hear you're doing better. > > The most compelling part of that Remedyfind case is the > challenge:rechallenge aspect. That is she mentions " I have to say > that I tried the new LDN with the same results. Each time even at > 1.5MG, I got more spasticity and my lymph node on the side I had > shingles on started to swell. When I stop the medicine, the stiffness > improves and lymph node goes back to normal. " > > Alternatively, perhaps she is one of the few who may have done better > on a lower dose for awhile or there were other variables at play. > ======== Sounds like this lady's body was trying to rid itself of something bad or toxic on LDN. I have heard of a few breaking out in a rash on LDN for a short duration but that is at the very start of LDN therapy. I think Kiki's shingles may have been triggered by the bee stings she had recently started taking. Quote Link to comment Share on other sites More sharing options...
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