Re: LDN and a couple of off-topic items

[Guest guest]

hydrotherapy is wonderful for ms. it improves the lymphatic, circulatory, flexibility, relaxes the nervous system. if you combine it with an oxygen bath or some minerals such as Hungarian kir it will cleanse your body and accelerate the healing process. I am a therapist and trained in this type of therapy. you will love the feeling. just monitor the temp of the water andcommunicatate with the therapist. a good one will exfoliate your skin during the treatment, massage your scalp , feet and hands. it is very detoxifying. Kathy

[low dose naltrexone] LDN and a couple of off-topic items

I haven't checked in with the group in awhile, because I needed a break from all the MS talk, but it feels like the right time to jump back in. Since I've been on LDN since December 2003, I MAY be considered an oldtimer at this point.I had another MRI a month ago, which showed two more lesions in one spot and two less in another. I have no idea if LDN is working for me. There's been no alleviation of symptoms, but I will continue to take it because I believe it will prevent progression. So don't get discouraged if you're one of the people who has not had miraculous results. I have been on the Gold Coast Cure the last two months, a food plan based on eating all natural foods, whole grains, and very few fats: extra-virgin olive oil, high-oleic canola oil, etc. My right leg is slightly less spasmodic and I've lost some weight (a GOOD thing in my case), but that's about it. Nevertheless, I will stick with this too, since it's a much healthier way to eat. Does anyone in the group have experience with hydrotherapy? I'm still having trouble finding the right exercise program, because my legs hurt too much afterwards. Cool water causes me to spasm, heated pools dissipate me. Someone recently suggested invidual hydrotherapy, which is why I'm asking.Thanks for opportunity to talk.

[Guest guest]

In a message dated 9/18/2005 9:26:33 A.M. Pacific Daylight Time, Aletha@... writes:

I have heard of the Gold Coast Cure, but I have never read up on the details. If you are eating grains, perhaps you might wish to cut out wheat (glutens) to see if that helps. There is a theory that MS'rs react well without glutens in their diets. My husband no longer eats dairy, glutens or heavy fats and is doing great on the diet. He just realized that he no longer suffers from seasonal allergies. He thinks it is the diet as he still had hey fever a bit (although less that the usual) when he was just on LDN without the diet.Just some thoughts.Aletha----- Original Message ----- From: "creiaa" <CLANDAU@...>

I follow the same diet and see a difference.

[Guest guest]

In a message dated 9/18/2005 12:26:33 PM Eastern Daylight Time, Aletha@... writes:

perhaps you might wish to cut out wheat (glutens) to see if that helps. There is a theory that MS'rs react well

Althea

Has your husband just cut out wheat or has he eliminated all of the gluten grains? Does he eat any grain at all?

Thanks

Arlene

[Guest guest]

Hi ,

I have heard of the Gold Coast Cure, but I have never read up on the

details. If you are eating grains, perhaps you might wish to cut out wheat

(glutens) to see if that helps. There is a theory that MS'rs react well

without glutens in their diets. My husband no longer eats dairy, glutens or

heavy fats and is doing great on the diet. He just realized that he no

longer suffers from seasonal allergies. He thinks it is the diet as he

still had hey fever a bit (although less that the usual) when he was just on

LDN without the diet.

Just some thoughts.

Aletha

[low dose naltrexone] LDN and a couple of off-topic items

>I haven't checked in with the group in awhile, because I needed a

> break from all the MS talk, but it feels like the right time to jump

> back in. Since I've been on LDN since December 2003, I MAY be

> considered an oldtimer at this point.

>

> I had another MRI a month ago, which showed two more lesions in one

> spot and two less in another. I have no idea if LDN is working for

> me. There's been no alleviation of symptoms, but I will continue to

> take it because I believe it will prevent progression. So don't get

> discouraged if you're one of the people who has not had miraculous

> results.

>

> I have been on the Gold Coast Cure the last two months, a food plan

> based on eating all natural foods, whole grains, and very few fats:

> extra-virgin olive oil, high-oleic canola oil, etc. My right leg is

> slightly less spasmodic and I've lost some weight (a GOOD thing in

> my case), but that's about it. Nevertheless, I will stick with this

> too, since it's a much healthier way to eat.

>

> Does anyone in the group have experience with hydrotherapy? I'm

> still having trouble finding the right exercise program, because my

> legs hurt too much afterwards. Cool water causes me to spasm,

> heated pools dissipate me. Someone recently suggested invidual

> hydrotherapy, which is why I'm asking.

>

> Thanks for opportunity to talk.

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Arlene,

He has cut out all of the glutens. He eats rice and there are quite a few rice based products that he has used for subsisting. For example the health food store has different gluten free pastas and a gluten free bread. If you go to Trader Joes store, they have a list of gluten free products to make it easier. The only bread that we have found so far is very heavy and not very delicious. We have an exchange student from Norway that says that gluten allergies are very prevalent there, and many bakeries and stores carry much more delicious breads. So we are going to search the internet and see if there is any way to order and send to the US. Or maybe convince our health food store to try ordering these products.

Cutting out dairy has been pretty easy. We are using Rice Deem and soy milk and have gotten used to it. They make a very delicious soy yogurt, which I actually prefer over milk based. There is no good substitute for cheese though.

We have actually had a lot of fun with the challenges of cooking without these products. It has opened up a whole new world of recipes. 's diet is sort of a cross between SWANK and Best Bet diets. The sites for these diets are listed below:

http://www.swankmsdiet.com/sitemap.htm

http://www.ms-diet.org/

My best

Aletha

Re: [low dose naltrexone] LDN and a couple of off-topic items

In a message dated 9/18/2005 12:26:33 PM Eastern Daylight Time, Aletha@... writes:

perhaps you might wish to cut out wheat (glutens) to see if that helps. There is a theory that MS'rs react well

Althea

Has your husband just cut out wheat or has he eliminated all of the gluten grains? Does he eat any grain at all?

Thanks

Arlene

[Guest guest]

In a message dated 9/19/2005 5:10:52 PM Eastern Daylight Time, sharonzimmer@... writes:

GF is a hard to follow diet, I know! But it's worth not having the stomach pain and all that goes along with it.

Sharon

I think it's like anything else, you just have to get used to it. My diet is gluten free and dairy free and very low fat. So I don't cheese of any sort. I've been on this diet 2 years and don't miss dairy at all.

There is a rice pasta by Tinkayada that is excellent and it comes in different shapes and sizes. I found it orginally at the health food store, but they also carry it at meijer.

Arlene

[Guest guest]

In a message dated 9/19/2005 5:45:18 PM Eastern Daylight Time, sharonzimmer@... writes:

that wonderful smell just makes me wish for a celiac cure, fast! I've seen the Tinkyada, I like the DeBoles too.Take care,Sharon

Sharon

I don't shop anymore, so I don't get to smell those LOL !

I have tried both and I think Tinkyada is better. It's almost like regular wheat pasta.

I'm not celiac, jsut have MS.

Be well

Arlene

[Guest guest]

Hi Aletha,

My mom has MS and I am celiac (wheat intolerant) just like my mom's

mom. There are several places to get good bread mixes, the health

food

store should carry Bob's Red Mill GF bread mix. All you need is a

bread machine. There's a little trial and error in baking GF breads

since it's not the same as regular bread. I highly recommend the

books

by Bette Hagman, she has three published by Henry Holt, you can get

them from and Noble. The bread one has over 200 bread recipes.

I have had varying degrees of luck making GF bread, and this time I'm

going to reduce the water content, it seems each time the bread is

still a little uncooked in the very middle. Another great gluten free

food is the GF Macaroni and Cheese from Amy's Kitchen, their website

is Amys.com and good luck! I've heard from many first hand reports

that autistic children also do best on GF diets. GF is a hard to

follow diet, I know! But it's worth not having the stomach pain and

all that goes along with it.

Sharon

[Guest guest]

Arlene,

You're too right, it's just getting used to. However, when I walk

through the Publix bakery, that wonderful smell just makes me wish

for a celiac cure, fast! I've seen the Tinkyada, I like the DeBoles

too.

Take care,

Sharon

>

> In a message dated 9/19/2005 5:10:52 PM Eastern Daylight Time,

> sharonzimmer@c... writes:

>

> GF is a hard to

> follow diet, I know! But it's worth not having the stomach pain

and

> all that goes along with it.

>

>

>

> Sharon

> I think it's like anything else, you just have to get used to it.

My diet

> is gluten free and dairy free and very low fat. So I don't cheese

of any

> sort. I've been on this diet 2 years and don't miss dairy at

all.

> There is a rice pasta by Tinkayada that is excellent and it comes

in

> different shapes and sizes. I found it orginally at the health

food store, but they

> also carry it at meijer.

>

> Arlene

[Guest guest]

Thanks for the information, Aletha.