New to Group

[Guest guest]

TAKE YOUR MEDICINE AND LOOK IT UP ON THE INTERNET LOOK AT ALL THE SIDE EFFECTS

THEN JUDGE FOR YOUR SELF ME I QUIT TAKING THEM ALLL DEBBIE

[Guest guest]

Welcome to the group. Why are you not going to be taking your neurontin any

longer? It seems odd that you have an all or nothing view about medications.

Especially if neurontin helps you. There are other anticonvulsants that help

with nerve pain like tegretol that are less expensive if cost is the

problem. I have had " blocks " done for osteoarthritis in my lower back and

they helped quite a bit. It took the entire series of 3 to get the full

effect. It wasn't a cure but it did help with the pain. Good luck but please

do not minimize your own problems with pain.

Kaylene

>

>Reply-To: chronic_pain

>To: chronic_pain

>Subject: new to group

>Date: Wed, 30 Apr 2003 12:40:57 -0000

>

>Hello. My name is . I to like a lot of you suffer from chronic

>pain. Although looking at all of yours, its seems mine isn't near as

>bad. I was in a car accident 7 months ago. I was diagnosed with

>intercostal neuralgia, and costochondritis, which has put me into the

>category of chronic pain in by back and neck since to this date it

>has not gone away. I am currently on neurontin, which will be running

>out soon. I went to a neurolgist who wants to do a nerve block on me,

>but I am very hesitate in fear they puncture my lung which is quite

>common for that procedure. I am also seeing a wonderful and caring

>chiropractor, and a truly amazing massage therapist, who are trying

>to get me well without using pain medication. So after my neurontin

>runs out, I will be doing it cold turkey. I read how all of you take

>medicine, lots of it, and think how I will be taking none at all. I

>want to get well. I really don't know which is the lesser of the two

>evils......meds or no meds. Any thoughts?

>thank you

>

>

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[Guest guest]

and wrote:

> I cant even get a stupid aspirin, know what I mean?Its the LOSERS that

> are

> getting them that don't NEED them so when someone like me comes along

> that really

> does NEED them.........and I cant get them! Sorry, I am just angry at

> people

> like that.

I agree absolutely. GGGrrrrrrrrrrrr.. ( there's a big growl from me as

well. >:-¬

> It has gotten to the point that my husband is getting Hydrocodone from

> a friend

> of his at work that gets them for chronic pain but wont take them. Is

> that WRONG for me to get them that way?

The law probably says it is. But the law also backs up a system that

wont allow you to live life as pain free as possible.

It prevents you having what is still legally your right to have.

Medication of adequate strength and supply!

So I see it as an act of someone who is a victim of the system, don't

let your conscience trouble you too much.

> <snipped>...Then he had the nerve to tell me that I might as well

> ACCEPT that I am going to be in chronic pain for the rest of my

> life.........I CANT! Not until every avenue has been explored, every

> option calculated.......every Dr within 500 miles has been seen.<.snipped>

I love your attitude!! Love it! I have exactly the same spirit. Never

isn't in our vocabulary. We will! What ever it is we need to achieve. :-0

Sharon. in Australia.

[Guest guest]

Hi ,

Welcome to the group!

You mentioned that you have Spina Bifida Occulta, I was just curious

if you'd had an MRI to check for tethered spinal cord. SBO and pain

is almost like a red flag to check for TC.

V

[Guest guest]

Hi, my name is . In Dec. 08, my son called and said that he has

thyroid cancer. He is 31 years old. He had a 9cm mass and has had

his thyroid removed, did the radiation treatment, then the scan. They

said that he was stage 1, papillary and follicular.

I am not understanding any of the terms. It's like a foreign language

to me. I am worried about him.

In the 80's the doctor found a nodule in my thyroid. It was biopsied

and found that it was benign. Said that if it ever bothered me, to

let him know. I have hardly had any doctor feel my neck on a routine

yearly exam. So thought I better go and see if it has gotten bigger.

My doctor sent me to have an ultrasound done. I go see my doctor on

Feb. 3, and she said that they found more. Two on the right side, 1.3

and 1.5 cm. One those came back as cancer. On the left side they see

multiples, but really little. It's the papillary.

I am scheduled for surgery on Feb. 27th. The Dr. was able to

get me in sooner than April as originally planned. Hmmm, maybe it was

the Texas Aggie shirt I was wearing!

I am scared. I am afraid to break down. The receptionist at his

office said this is why they are going to do it this month to ease my

mind about it. I think this is why I want to sleep alot right now.

It's not that I am really tired.

I don't know what questions to ask, and the more I read on the

internet, and the yahoogroup makes me more scared about it. I just

want it to go away.

My reg. doctor said that my thyroid count was 5.280. It was like 5.6

back in June, but no one said to have it rechecked. So anyway, I am

on the synthroid-50cgm. Been on it for almost 5 weeks now.

Now my mom has gotten her ultrasound and they have found nodules, and

she sees another doctor later this week. My daughter will be having

hers checked by ultrasound too soon.

I don't even know what stage it is. I forgot to ask him when I saw

him last week. Or do they tell you after surgery?

I train dogs for a living, so hopefully this will not slow me down. I

know I have to take it easy after surgery for maybe a week? I am

trying to schedule everyone in before next weeks surgery. I have a

busy week of.

ville, TX

[Guest guest]

I have just sent an email to Launius. They are in ville and should know of the docs you have been referred to. is married to and works for one of our favorite thyroid docs.

>> Penny, thank you so much for your reply. I bookmarked the links and> tomorrow I will look at them. I am so tempted now, but it would mean> staying up all night reading it! > > With every ache or pain, weird anything, I am so afraid that the> cancer is all over my body. I don't know how long it takes for> something to grow to be 1.5cm. I have lots of reading to do in such> short time!> > I have Dr. Bradley MD and Dr. Braumhall is going to be> with him when they do the surgery. Then they said that I will see Dr.> Hawk. Does anyone know of them? My reg. doctor referred me to them. > > > ville, TX>

[Guest guest]

-

I'm sorry to hear about your medical issues and stress. I discovered a

large nodule on my neck about 18 months ago. Repeated FNA's came back

as " indeterminate " so I opted to have it removed. The surgery was 4

weeks ago tomorrow. I was lucky it was not cancer. I'm told that

thyroid cancer is one of the " best " kinds to have as far as ease and

success with treatment. My mother in law had thyroid cancer 30 years

ago and has lived a normal life. I'm also told that many, many people

have nodules and most often they are benign and most people don't even

know they have them.

I can't really speak about the cancer itself or the meds to take

thereafter (they only took out 1/2 of my thyroid). But the surgery

itself was not bad at all. It was on Thursday afternoon and by Monday

I felt relatively normal and could take care of the things I needed to

around the house and care for my 2 small kids (ages 5 and 1). I would

have been up and around on Saturday & Sunday but I didn't realize that

the vicodin is what was making me feel like hell, so I stopped taking

it. By the following Thursday I was back at work. By 3 weeks the

incision had healed over completely. I have multiple surgeries in my

life, and this one was not bad.

Best wishes and good luck.

Lynn

>

> Hi, my name is . In Dec. 08, my son called and said that he has

> thyroid cancer. He is 31 years old. He had a 9cm mass and has had

> his thyroid removed, did the radiation treatment, then the scan. They

> said that he was stage 1, papillary and follicular.

>

> I am not understanding any of the terms. It's like a foreign language

> to me. I am worried about him.

>

> In the 80's the doctor found a nodule in my thyroid. It was biopsied

> and found that it was benign. Said that if it ever bothered me, to

> let him know. I have hardly had any doctor feel my neck on a routine

> yearly exam. So thought I better go and see if it has gotten bigger.

>

> My doctor sent me to have an ultrasound done. I go see my doctor on

> Feb. 3, and she said that they found more. Two on the right side, 1.3

> and 1.5 cm. One those came back as cancer. On the left side they see

> multiples, but really little. It's the papillary.

>

> I am scheduled for surgery on Feb. 27th. The Dr. was able to

> get me in sooner than April as originally planned. Hmmm, maybe it was

> the Texas Aggie shirt I was wearing!

>

> I am scared. I am afraid to break down. The receptionist at his

> office said this is why they are going to do it this month to ease my

> mind about it. I think this is why I want to sleep alot right now.

> It's not that I am really tired.

>

> I don't know what questions to ask, and the more I read on the

> internet, and the yahoogroup makes me more scared about it. I just

> want it to go away.

>

> My reg. doctor said that my thyroid count was 5.280. It was like 5.6

> back in June, but no one said to have it rechecked. So anyway, I am

> on the synthroid-50cgm. Been on it for almost 5 weeks now.

>

> Now my mom has gotten her ultrasound and they have found nodules, and

> she sees another doctor later this week. My daughter will be having

> hers checked by ultrasound too soon.

>

> I don't even know what stage it is. I forgot to ask him when I saw

> him last week. Or do they tell you after surgery?

>

> I train dogs for a living, so hopefully this will not slow me down. I

> know I have to take it easy after surgery for maybe a week? I am

> trying to schedule everyone in before next weeks surgery. I have a

> busy week of.

>

>

> ville, TX

>

[Guest guest]

Here is the reply I got from . This does not sound like a good recommendation.

Haque is the endo was talking about that briefly used Armour (but then decided it was an evil drug).

Braumhall did parathyroid surgery on a friend of a patient. He developed a recurrent laryngeal nerve problem which is common in thyroid and parathyroid surgery. Our patient needs a parathyroid surgeon and and wanted someone else. We found Dr. Carolyn Garner in Denton. She was recommended by an ENT I used to work with up there.

I have heard of Dr. but know much about him.>> Penny, thank you so much for your reply. I bookmarked the links and> tomorrow I will look at them. I am so tempted now, but it would mean> staying up all night reading it! > > With every ache or pain, weird anything, I am so afraid that the> cancer is all over my body. I don't know how long it takes for> something to grow to be 1.5cm. I have lots of reading to do in such> short time!> > I have Dr. Bradley MD and Dr. Braumhall is going to be> with him when they do the surgery. Then they said that I will see Dr.> Hawk. Does anyone know of them? My reg. doctor referred me to them. > > > ville, TX>

[Guest guest]

Thank you. I guess I am worrying about alot of stuff at once.

> >

> > Penny, thank you so much for your reply. I bookmarked the links and

> > tomorrow I will look at them. I am so tempted now, but it would mean

> > staying up all night reading it!

> >

> > With every ache or pain, weird anything, I am so afraid that the

> > cancer is all over my body. I don't know how long it takes for

> > something to grow to be 1.5cm. I have lots of reading to do in such

> > short time!

> >

> > I have Dr. Bradley MD and Dr. Braumhall is going to be

> > with him when they do the surgery. Then they said that I will see Dr.

> > Hawk. Does anyone know of them? My reg. doctor referred me to them.

> >

> >

> > ville, TX

> >

>