Perminant Progressive MS~It's been a while

[Guest guest]

Hi gang:)

It's been a while since I've posted but usually do read all of the

delightful posts and good advice. I am happy that so many are helped

via LDN.

What I've been up to is developing a website http://MilesBooks.com

which I hope will benefit MSers and others. As I am not good at it,

it doesn't work as it should completely yet. It will take some time.

The contact Russ form doesn't get to me. If you visit the site, and

want to contact me, please make comments via

http:milesruss@....

That said, I want to, and am, posting others' articles on the site,

setting up links to MS sites, etc.

I have also been posting MS articles to " Article Banks " so as to

increase awareness of our plights. One has even, at my request,

created an MS section.

Anyway, here is an ezine article I've posted this week.

Good to talk with you:)

Russ:)) [Article below] http:milesruss@...

Perminant Progressive MS (Multiple Sclerosis) challenge. One

victim's dated view.

Labor Day ~ 2005

When, a couple of years ago, I wrote an article about my dread

disease, I still had not fully comprehended how disabling MS can

become. I had come to realize that my denial had delayed acceptance

of the diagnosis, my fear had stampeded me to stupid decisions, and

had found ~ by writing a novel ~ I could dispel depression. Yet, I

could still walk, a little, and figured I would bounce back soon.

Reality catches up with most of us ~ sooner or later. Not that it

is easy to accept. Although the `Docs' said I had already

passed

from relapsing remitting MS ~ to Perminant Progressive MS ~ I

thought I'd make a rather rapid comeback. Little did I know that

I

would become even more dependent upon another who deserved less

defiance from one she had committed to share life with.

When I went from a cane to a four wheel walker ~with a seat ~ her

stress level dropped dramaticly. I fell down a lot less too. My

handicapped, motorized scooter had long since been dispensed with

when I had left real estate and had decided I wouldn't need it.

Now,

I have another. Now, I have a hard time getting out of the

wheelchair onto it.

Perminant Progressive MS (Multiple Sclerosis) it's

called. " Progressive " has surely taken on more meaning ~as I

can no

longer walk ~ even with the walker. Accepting life in a wheelchair

is a tough one. So is accepting the fact that keeping honeybees for

BVT (Bee Venom Therapy) is not a realistic option for those of us

that must now reside in apartments. " Perminant " is still not

a

diagnosis or concept that I am willing to accept.

Maybe, admitting to myself that I needed to use disposable briefs

was the most major challenge? My caregiver's sensitivity to

provide

a sightly container ~ rather than stack my diapers in a conspicious

place (like on the back of the toilet) ~ has made my right decision

less embarrassing. Her rapid removal of soiled disposables helps

too.

Like most of us MSers, I continue to seek the " Silver

Bullet, " that

non-traditional cure that conventional medicine ~ which says there

is none ~ doesn't embrace. Okay, I have tried a few. Although

some

other MS victims have experienced significant improvements from

these, Silver water, LDN, and various supplements, they haven't

worked for me. There are many weapons in the arsenal that I have yet

to try.

Perhaps, my best weapon is faith? As Hebrews 11:1 says, " Faith

is

the substance of things hoped for, the evidence of things not yet

seen, " I continue to keep on hoping I am led to the answer of

renewed health for myself. I also believe that I am where a very

good God wants me to be ~ for His reasons.

If you have found my article because there is something in it you

were supposed to see, I am delighted to have been of some small

service. You might want to visit the website I am learning to build

and attempt to maintain http://MilesBooks.com where other

information awaits you.

To those of you who are affected by others with Multiple Sclerosis,

I ask that you be patient with him or her. Pray for us. Hope we

become more sensitive to how our compromised conditions impacts

others ~ and that we make internal adjustments which will will be

reflected in our outward actions.

For those who have Perminant Progressive MS, expect challenges.

Accept ~ without resentment ~ the helps and aids which are made

available. Become less of a problem for those who attempt to help

you.