One more note on the LDN Research Fund

[Guest guest]

Hi folks:

If I may contribute my 2 cents worth (or 20,000 cents worth (yes,

that's a joke)):

1. First, Aegis has nothing to do with managing the funds for the

LDN Research. So if people have gotten turned off to the idea of

contributing due to an issue with the tone of some of these emails,

I would ask that you don't let that stop you. Information on who is

managing the fund and what they will do with this money is here, as

is information on how to donate:

http://www.ldninfo.org/research_funding.htm

Note that 2 of the 4 people on the advisory board have MS (Art and

SammyJo); they really do want to help those with MS, and there is no

personal gain involved for any of them.

2. While $20,000 for a study seems like a lot, note that Dr.

Bihari's foundation (http://www.ffir.org) has been trying to run LDN

trials, but was looking for at least $500,000 before he could get

the studies he wanted off the ground. So this could be a way to

seriously jump start the process at a much lower cost.

3. Any amount would be gratefully accepted, if you could spare it,

as SammyJo previously noted. The $200 number came from the thought

that if 100 people could pay that amount, that would provide the

$20,000. Many people do not have enough discretionary income to

contribute, but in the whole population of those taking LDN

(probably a few thousand nationwide), there should be 100 people who

can spare the money. But again, if you feel it's worthwhile, please

give a bit if you can.

4. The research really is important. I got lucky and found a

doctor who had previously prescribed LDN for other patients, but

most docs aren't that open minded. They (understandably) want to

treat their patients with what's proven, and right now LDN only has

anecdotes behind it. And it's surely not perfect--over on the

Spotlight_ldn board right now there are 4 messages in a row from

people who have been taking LDN for a while and have had relapses

(see starting at message 5208 with subject " help " . So the more we

understand about how this works and who it does (and doesn't) work

for, the better. I'm not worried about the price going up--the drug

is generic, so if demand suddenly increased if/when the studies show

that it works, there will be several generic drug makers who would

step in and produce more Naltrexone.

Okay, I've said my piece. The URL noted above has more info on the

folks and research planned; for more info on the Accelerated Cure

Project, under whose auspices the research will be performed, go

here:

http://www.acceleratedcure.org/

(which, again, is run by someone with MS who is really motivated to

finding a cure).

Thanks and good night.