Help

[Guest guest]

This is a quite different post than I've made in the last two years.

My daughter has been on LDN for two years and it has been amazing.

Last Wednesday she complained of being hot, even tho our air

conditioning is on 24/7 and it was quite cool. First indication of

trouble. Then her appetite went. Friday she woke up unable to move

her right arm and very confused. It is Sunday. She can now lift her

arm and squeeze her exercise ball, but cannot feed herself or brush

her teeth, etc. She can't seem to tell where the spoon or toothbrush

are going. She knows she is going through an episode but her

concentration and thought process are very bad. She needs pretty

well constant care right now. An immediate change from the week

before when she was actually walking down the exercise bars and doing

great bed exercises! She had a busy week that week, my grandson was

here (they get along famously and he is very quite and good to her),

she had two appointments and I was home on holidays for a week. I

would think minor stress, but perhaps this helped. However, this is

a regular occurrance and it has never affected her this way.

Question. Has anyone else had a major setback like this on LDN? If

so, any help as to what to do to help get some recovery? She is on

3.5 mg LDN and has been for some time. We had changed to 4 for a

while but neither seems to make a great difference for her. I would

welcome with open arms any help or suggestions!! She cannot be alone

for any period of time. I work, but can take a week or two off. We

have a caregiver one hour a day but that will not be enough if this

does not improve.