Re: Remedyfind Parkinson's LDN

[Guest guest]

Hi ,

my mom has Parkinson's since 5/04. She is taking neither Sinemet or LDN. I have been searching this site for evidence that LDN is progressively working. I'll follow with interest any response you get from PD persons on LDN. The LDN PDers must be few in number.

Sincerely,

Terry

[Guest guest]

In a message dated 9/1/05 1:03:28 PM, randkarnold1@... writes:

Terry,

        My husband, diagnosed with Parkinson's over a year and a half ago, has been on 4.5 mg of LDN since the end of March.  He has been able to decrease from 2 down to 1 Sinemet a day and is doing better all around than when on higher Sinemet and no LDN.

 

Kathie

 

On Thu, 1 Sep 2005 15:50:20 EDT Tora48@... writes:

Hi ,

my mom has Parkinson's since 5/04. She is taking neither Sinemet or LDN. I have been searching this site for evidence that LDN is progressively working. I'll  follow with interest any response you get from PD persons on LDN. The LDN PDers must be few in number.

Sincerely,

Terry

Thanks Kathy! I am wondering how LDN works without the Sinemet. Has your husband had any side effects of the combined single dose Sinemet and LDN? Also, do you mind my asking your husband's age? I ask only to weigh any possible consequences of the drugs to my mom's age group.

Once Again,

Thanks,

Terry

[Guest guest]

In a message dated 9/1/05 1:04:20 PM, Aletha@... writes:

Hi Windy,

I think it would be most difficult to do, but the way that you would know if

it was LDN or Sinemet is by temporarily stopping one or the other med.

Personally if they are both working I would just count my blessings and stay

on both.  However if one of them is expensive or difficult to take, I would

remove that one first off and see what happens.

My mother has Parkinson's and she has been doing very well on the "push"

drug.  It is quite expensive, but has reversed most of her symptoms.  I was

talking to her yesterday and asked her if she was interested in trying LDN

along side of it.  She is thinking about it.

Aletha

Hi Aletha, I remember you mentioning that your mom was using the "push" drug. Can you let me know why you would consider LDN since she is doing well and has reversed most of her symptoms. Does she still have some symptoms to address? If so, could you specify which ones they are?

I think I wrote you before and let you know that my mother would not be able to afford an expensive therapy. How expensive is the "push" drug? Also how old is your mother and does she live with someone? My mom is 76 and still lives on her own & is alone when she is not visiting/living with me. She is with me and my husband on alternate weeks. When she is home, I see her every other or every two days. She cannot cook well on her own. So her meals are provided to ensure good nutrition.

Thanks for considering my questions.

Sincerely,

Terry

[Guest guest]

Terry,

My husband, diagnosed with Parkinson's over a year and a half ago, has been on 4.5 mg of LDN since the end of March. He has been able to decrease from 2 down to 1 Sinemet a day and is doing better all around than when on higher Sinemet and no LDN.

Kathie

On Thu, 1 Sep 2005 15:50:20 EDT Tora48@... writes:

Hi , my mom has Parkinson's since 5/04. She is taking neither Sinemet or LDN. I have been searching this site for evidence that LDN is progressively working. I'll follow with interest any response you get from PD persons on LDN. The LDN PDers must be few in number.Sincerely,Terry

[Guest guest]

Hi Windy,

I think it would be most difficult to do, but the way that you would know if

it was LDN or Sinemet is by temporarily stopping one or the other med.

Personally if they are both working I would just count my blessings and stay

on both. However if one of them is expensive or difficult to take, I would

remove that one first off and see what happens.

My mother has Parkinson's and she has been doing very well on the " push "

drug. It is quite expensive, but has reversed most of her symptoms. I was

talking to her yesterday and asked her if she was interested in trying LDN

along side of it. She is thinking about it.

Aletha

[low dose naltrexone] Remedyfind Parkinson's LDN

> Hello, I check on this site almost daily and I don't see many posts

> from people with Parkinson's. Briefly, I've been on 4.5mg LDN for the

> past 14 months. My main symptom has been uni-lateral tremor which

> developed over the past 3-4 years and became progressivly worse. At

> first the doc's said it was MS but when I was put on 3x 25/100 Sinemet

> and 0.5 Mirapex by 3rd neuro 11 months ago, the tremor went away and

> it became apparent that I have Parkinson's. I have over the past

> several months cut back on the Sinemet to 1x 25/100 day and I am still

> doing well. I appear to be in the Sinemet " honeymoon " , it could last

> for 2-5 years before Sinemet begins to not work well. Or, LDN could

> keep me where I am now forever. So the problem with LDN and

> Sinemet/Parkinson's is; how do you know if LDN stops progression if in

> the short to mid term Sinemet has returned you to " normal " ?

> I was hopeing that Dr. Bihari could provide more detailed information

> on his Parkinson's patients and how he can be almost certain that LDN

> has stopped their progression. Maybe in the next LDN webpage monthly

> update?

> Are there any members here with PD who have been on LDN for any length

> of time and have an opinion if LDN is working as claimed?

> I would also like to claim to be the first one to post (ashleyk) on

> LDN in the Remedyfind Parkinson's (PD new to RF) section. Are there

> others who can comment and get the ball rolling on LDN and PD at

> Remedyfind?

>

>

>

>

>

>

>

>