Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 Hi Windy, I understand your frustration about getting the stories out there for LDN and Parkinson's. Someone has mentioned that Remidyfind.com might start up a section for LDN. That might be helpful. My husband has been using LDN now since November for MS and it has been remarkable. I hope it is the same for Parkinsons. My best Aletha [low dose naltrexone] Remedyfind Parkinson's LDN >> >> >> > Hello, I check on this site almost daily and I don't see many posts >> > from people with Parkinson's. Briefly, I've been on 4.5mg LDN for the >> > past 14 months. My main symptom has been uni-lateral tremor which >> > developed over the past 3-4 years and became progressivly worse. At >> > first the doc's said it was MS but when I was put on 3x 25/100 Sinemet >> > and 0.5 Mirapex by 3rd neuro 11 months ago, the tremor went away and >> > it became apparent that I have Parkinson's. I have over the past >> > several months cut back on the Sinemet to 1x 25/100 day and I am still >> > doing well. I appear to be in the Sinemet " honeymoon " , it could last >> > for 2-5 years before Sinemet begins to not work well. Or, LDN could >> > keep me where I am now forever. So the problem with LDN and >> > Sinemet/Parkinson's is; how do you know if LDN stops progression if in >> > the short to mid term Sinemet has returned you to " normal " ? >> > I was hopeing that Dr. Bihari could provide more detailed information >> > on his Parkinson's patients and how he can be almost certain that LDN >> > has stopped their progression. Maybe in the next LDN webpage monthly >> > update? >> > Are there any members here with PD who have been on LDN for any length >> > of time and have an opinion if LDN is working as claimed? >> > I would also like to claim to be the first one to post (ashleyk) on >> > LDN in the Remedyfind Parkinson's (PD new to RF) section. Are there >> > others who can comment and get the ball rolling on LDN and PD at >> > Remedyfind? >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
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