Guest guest Posted September 3, 2005 Report Share Posted September 3, 2005 Yes, Many on the chat site were checking with MRI's before and monitoring with new MRI's to see if LDN was keeping people from progressing with MS. Many were having no changes for the first time (lack of progression), when always before they were having more new lesions every time they would get a new MRI prior to LDN. Some would have lesions get smaller or almost disappear. Others would have some new lesions or their lesions would get a bit larger. But usually they would stay on because their symptoms would be so much better. My husband has one large lesion on his spine. The doctors could not specify that he had one on his brain, but they saw a speck on his brain. After being on LDN for after 4 months, he had a new MRI done. The Nero stated that the speck was looking a bit more like a tiny lesion. She does not know he is on LDN and has been wanting him to get onto one of the interferon's. So we are not really sure he had progression. He was going to get a new MRI done every 6 months, but it had depressed him, so we decided since he is doing so exceptionally well with his symptoms that he would not give up LDN anyways. So he is going to avoid doing the MRI's for a while. Another important thing is that some people with MS has tons of lesions and some have very few. It is kind of strange but the amount of lesions or the location of the lesions do not seem to correlate necessarily with symptoms. However I would say that it seems that when the eyes are effected it usually means the lesions are in a certain part of the brain and not on the spine. Hope this helps Aletha [low dose naltrexone] MRI before and in middle of LDN taking > Hello everybody! > > Has anybody had MRI done before the beginning of LDN taking, and > another one after some LDN taking? > If someone had made such MRI, I would be appreciated for any info to > my e-mail address ldn@... > > Thank you in advance > > Slawek > http://www.LDN.org.pl/ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2005 Report Share Posted September 3, 2005 Quality of life is everything. I only speak from the world of cancer, but learning to accept the fact that tumors can exist inside your body literally for 20 or 30 years without terminating life is an important lesson. You can frequently contain tumors. They are there, they are ugly, and the doctors want to remove them. So what? If you can do the things you want, if you feel reasonably good, if you are able to think rationally and get around, ask yourself the question, “what do you really expect to happen” or maybe more importantly, “What do I have to gain?” If they can promise (and I use the word quite liberally here) that they can make things go away and the percentage of success is relatively great and the trade off of is minimal, it is something to consider. But if there are no good fixes, and you in turn fixate upon the concept that the MRI or CT scan shows “more” or “different” rather than focusing on the good qualities of your life, then what was gained? If there is definite degradation, you cannot ignore it. If things are status quo and that is an acceptable condition, what difference does the MRI or CT make? It will change nothing and perhaps add greatly to the stress that in turn exacerbates the very situation you are trying to cope with. Bruce Guilmette, Ph.D. Survive Cancer Foundation, Inc. http://www.survivecancer.net From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Aletha Wittmann Sent: Friday, September 02, 2005 9:27 PM To: low dose naltrexone Subject: Re: [low dose naltrexone] MRI before and in middle of LDN taking Yes, Many on the chat site were checking with MRI's before and monitoring with new MRI's to see if LDN was keeping people from progressing with MS. Many were having no changes for the first time (lack of progression), when always before they were having more new lesions every time they would get a new MRI prior to LDN. Some would have lesions get smaller or almost disappear. Others would have some new lesions or their lesions would get a bit larger. But usually they would stay on because their symptoms would be so much better. My husband has one large lesion on his spine. The doctors could not specify that he had one on his brain, but they saw a speck on his brain. After being on LDN for after 4 months, he had a new MRI done. The Nero stated that the speck was looking a bit more like a tiny lesion. She does not know he is on LDN and has been wanting him to get onto one of the interferon's. So we are not really sure he had progression. He was going to get a new MRI done every 6 months, but it had depressed him, so we decided since he is doing so exceptionally well with his symptoms that he would not give up LDN anyways. So he is going to avoid doing the MRI's for a while. Another important thing is that some people with MS has tons of lesions and some have very few. It is kind of strange but the amount of lesions or the location of the lesions do not seem to correlate necessarily with symptoms. However I would say that it seems that when the eyes are effected it usually means the lesions are in a certain part of the brain and not on the spine. Hope this helps Aletha [low dose naltrexone] MRI before and in middle of LDN taking > Hello everybody! > > Has anybody had MRI done before the beginning of LDN taking, and > another one after some LDN taking? > If someone had made such MRI, I would be appreciated for any info to > my e-mail address ldn@... > > Thank you in advance > > Slawek > http://www.LDN.org.pl/ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Hello Thank you for response. Our neurologists don`t believe in LDN. They want to read findings the MRI scans and they want to compare the scans. For people suffering from multiple sclerosis it doesn`t matter. For them most important is when their symptoms are diminishing. You are right claiming that quality of life is everything. Greetings from Poland, Slawek -- http://www.LDN.org.pl/ ldn@... Quote Link to comment Share on other sites More sharing options...
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