Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Just wanted to remind the members that the LDN fund for MS is in existence. Hopefully, everyone who can, has made the 200$ donation. If you have not donated, pl. consider donating.. Hopefully a LDN trial will make the Crabs redundant. a month's CRAB medicines cost over a 1000$... If you have been away on Mars..the info is reposted below. http://www.low dose naltrexone.org/research_funding.htm A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 I am not trying to sound pesimistic. But, if there was a study done with the LDN, what is that going to do in the future if this was found to be acceptable? Do you all think that this drug would still be affordable? Personally, I think it would cause the price to inflate to unimaginable amounts. A matter of economics. If this became acceptable, people would want it and demand would cause the co's that make this, inflate the prices. Rooms like this are the way to keep information like this available to the general public. Ddocs will always push certian drugs. Some avonex, some copaxone, some chemo. I guess all I really want to point out, is to be carefull for what you ask for. Am I being totally ignorant to anything here? --- aegis_on_ms <aegis_on_ms@...> wrote: > Just wanted to remind the members that the LDN fund > for MS is in > existence. Hopefully, everyone who can, has made the > 200$ donation. > > If you have not donated, pl. consider donating.. > Hopefully a LDN > trial will make the Crabs redundant. a month's CRAB > medicines cost > over a 1000$... > > If you have been away on Mars..the info is reposted > below. > http://www.low dose naltrexone.org/research_funding.htm > > A > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 I don't think it would become too expensive. The reason that the Crab meds are so expensive is because the companies hold patents on them. This gives the creator of the product a monopoly on the product for a certain period of time. In the case of LDN it could be produced by companies without a patent. Therefore there would be free competition and prices would remain low. Unfortunately this also means that there is no incentive for a pharmaceutical company to put out money for trials to see if it works. That is where there are problems with our medical system. Trials only take place for new meds that can have patents and that takes testing and money. Companies only have an incentive to put that kind of money out there if they are going to have a large return. That is the down side of Capitalism and medicine. Re: [low dose naltrexone] LDN fund > I am not trying to sound pesimistic. But, if there > was a study done with the LDN, what is that going to > do in the future if this was found to be acceptable? > Do you all think that this drug would still be > affordable? Personally, I think it would cause the > price to inflate to unimaginable amounts. A matter of > economics. If this became acceptable, people would > want it and demand would cause the co's that make > this, inflate the prices. > Rooms like this are the way to keep information like > this available to the general public. Ddocs will > always push certian drugs. Some avonex, some copaxone, > some chemo. > I guess all I really want to point out, is to be > carefull for what you ask for. > Am I being totally ignorant to anything here? > > > --- aegis_on_ms <aegis_on_ms@...> wrote: > >> Just wanted to remind the members that the LDN fund >> for MS is in >> existence. Hopefully, everyone who can, has made the >> 200$ donation. >> >> If you have not donated, pl. consider donating.. >> Hopefully a LDN >> trial will make the Crabs redundant. a month's CRAB >> medicines cost >> over a 1000$... >> >> If you have been away on Mars..the info is reposted >> below. >> > http://www.low dose naltrexone.org/research_funding.htm >> >> A >> >> >> > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 I definitely agree. It is a nuisance having to find an open minded doctor, but the combination of the cost of research being passed on to we the consumers and supply and demand would almost certainly make the price increase drastically. wensu baki wrote: > I am not trying to sound pesimistic. But, if there >was a study done with the LDN, what is that going to >do in the future if this was found to be acceptable? >Do you all think that this drug would still be >affordable? Personally, I think it would cause the >price to inflate to unimaginable amounts. A matter of >economics. If this became acceptable, people would >want it and demand would cause the co's that make >this, inflate the prices. > Rooms like this are the way to keep information like >this available to the general public. Ddocs will >always push certian drugs. Some avonex, some copaxone, >some chemo. > I guess all I really want to point out, is to be >carefull for what you ask for. > Am I being totally ignorant to anything here? > > >--- aegis_on_ms <aegis_on_ms@...> wrote: > > > >>Just wanted to remind the members that the LDN fund >>for MS is in >>existence. Hopefully, everyone who can, has made the >>200$ donation. >> >>If you have not donated, pl. consider donating.. >>Hopefully a LDN >>trial will make the Crabs redundant. a month's CRAB >>medicines cost >>over a 1000$... >> >>If you have been away on Mars..the info is reposted >>below. >> >> >> >http://www.low dose naltrexone.org/research_funding.htm > > >>A >> >> >> >> >> > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi , that is a compelling question but besides providing formally controlled safety & efficacy data (some users on the net may already feel satisfied in those areas) it could lead to acceptance into the standard of care & insurance coverage. Additionally improved understanding of: 1) Therapeutic dose ranges (e.g. blood concentration studies) 2) Mechanism/s of action 3) Pathophysiology 4) Better treatment/s For those who don't have insurance prescription coverage, cost of LDN would be more of a concern. From my post at: low dose naltrexone/message/28644 Interesting that when I listened to the 2005 conference at: http://www.low dose naltrexone.org/events.htm they mentioned that if LDN were FDA approved it would likely cost exponentially more & that it would no longer be legal for pharmacies to compound it. However they did not mention that the 50 mg dose would still be sold & people could of course still compound their own at enormous savings. " Unfortunately homemade LDN may be tricky for issues mentioned in post 28644. I would not be surprised if prices for the 50 mg dose would also increase somewhat in the US to some legal limit-speculative. In Canada for example where price controls are strict, I would be surprised if this would ever be significant for the 50 mg dose. Aletha brings up good points in her reply but a " new utility patent " may provide viable protection of intellectual property associated with the development of LDN. The net effect of well designed unbiased studies should be favorable but questions like yours should continue to be asked. Germane link: (The Need for Trials of Low Dose Naltrexone as a Possible Therapy for Multiple Sclerosis-Interview with Dr. Yash Agrawal, M.D., Ph.D., University of Iowa): http://www.acceleratedcure.org:8080/article.pl?sid=05/01/27/1748256 Best Wishes, Josh > > > Just wanted to remind the members that the LDN fund > > for MS is in > > existence. Hopefully, everyone who can, has made the > > 200$ donation. > > > > If you have not donated, pl. consider donating.. > > Hopefully a LDN > > trial will make the Crabs redundant. a month's CRAB > > medicines cost > > over a 1000$... > > > > If you have been away on Mars..the info is reposted > > below. > > > http://www.low dose naltrexone.org/research_funding.htm > > > > A > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 I hope that you are right about the price not increasing too much, Althea, however: I`m in the UK, & I recently had a 3 month LDN 3mg script filled by Skip`s, Florida; -Price $45 plus postage: -Last year when I commenced LDN, I took my first script (for 3 months, 4.5mg LDN) to my local pharmacy here in the UK, I was informed that it would cost approx. $441 to get it filled!!! - & this is WITHOUT a patent or even " official recognition " of LDN`s value! Admittedly, a slightly larger dose, but ALMOST 10 TIMES SKIP`S PRICE! I think it quite likely that when/if LDN becomes the recognized MS treatment it`s price will likely go to at least as much as the present ReVia price.............. & that would be for a dose of LDN around one tenth of the strength of a 50mg ReVia tablet. If the pharmas DO involve themselves in any research & development re. LDN, I believe this will inevitably be used as a justification for a significant price hike, even if they don`t manage to find some way or other of justifying the introduction of a new patent! (- & of course, if they did, it would be all stations go! -Here`s the new wonder drug in the same stellar price range as the CRABS! -Price being justified by all that critically important work necessary to find a way of sneaking in said .................PATENT!) Major pharmas seem to be horrendously greedy & apparently largely without conscience: Witness their current ( & longstanding) underhand efforts to subvert & control or destroy the worldwide supplement market. Their policy really does seem to be to try & takeover or destroy anything that might offer effective competition to their obscenely expensive (though possibly ineffectual or potentially harmful) but freshly PATENTED drugs! -If they can`t take over/control, they attempt to destroy......................... I don`t think that we can count on them suddenly turning into " nice guys " ! (-Though it would be great if they were to renounce their " screw the world " policies & extend their niceness further than the PR spin presently applied to mask their latest manipulations!) Ah well!............Guess I could dream on! Gerald Re: [low dose naltrexone] LDN fund > > >> I am not trying to sound pesimistic. But, if there >> was a study done with the LDN, what is that going to >> do in the future if this was found to be acceptable? >> Do you all think that this drug would still be >> affordable? Personally, I think it would cause the >> price to inflate to unimaginable amounts. A matter of >> economics. If this became acceptable, people would >> want it and demand would cause the co's that make >> this, inflate the prices. >> Rooms like this are the way to keep information like >> this available to the general public. Ddocs will >> always push certian drugs. Some avonex, some copaxone, >> some chemo. >> I guess all I really want to point out, is to be >> carefull for what you ask for. >> Am I being totally ignorant to anything here? >> >> >> --- aegis_on_ms <aegis_on_ms@...> wrote: >> >>> Just wanted to remind the members that the LDN fund >>> for MS is in >>> existence. Hopefully, everyone who can, has made the >>> 200$ donation. >>> >>> If you have not donated, pl. consider donating.. >>> Hopefully a LDN >>> trial will make the Crabs redundant. a month's CRAB >>> medicines cost >>> over a 1000$... >>> >>> If you have been away on Mars..the info is reposted >>> below. >>> >> http://www.low dose naltrexone.org/research_funding.htm >>> >>> A >>> >>> >>> >> >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2005 Report Share Posted September 2, 2005 > Do you happen to know how much money has been collected so far and > how much more we need to reach the $20,000 goal? I have already > donated and hope many more here will do the same. > I hear SammyJo will soon post that info..A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2005 Report Share Posted September 3, 2005 It is true that some people will not take ldn with out a doctor backing it up.... but they should realize that they are adults in charge of their own life. Naltrexone already went through trials. It is an approved drug!! lg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2005 Report Share Posted September 3, 2005 The reality is that most people will not go against what the professionals say and most doctors will not prescribe it because it has not been tested specifically for the conditions that we are fighting for its use as. Re: [low dose naltrexone] Re: LDN fund It is true that some people will not take ldn with out a doctor backing it up.... but they should realize that they are adults in charge of their own life. Naltrexone already went through trials. It is an approved drug!! lg Quote Link to comment Share on other sites More sharing options...
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