would like to know if someone has similar problem

[Guest guest]

For three years+ I have been dealing with a progressive muscle

problem of unknown cause with no proposed treatment. My thigh and

back muscles are becoming weaker. Recently, it has progressed into

my neck, so that I have difficulty holding my head up. I have

trouble walking up stairs and getting out of chairs. I can not lift

anything over a few pounds. Biopsy shows non necrotizing myopathy.

Since this condition 1st became apparent after I had Lyme disease,

we thought it might have been Lyme, but I have not tested positive

for Lyme by any of the known tests. I had recieved a Lyme vaccine

prior to my getting the Lyme infection. There is one theory that I

had a bad reaction to the vaccine(which has been removed from the

market). Most recent Dr has said no to that theory. One thought is

that the combination of the vaccine and getting Lyme turned my

immune system on and it didn't turn off. Instead it turned on my

muscles. Thus an autoimmune disease. A recent Dr gave me a copy of

an article about LDN. So here I am. I am wondering if there is

anyone out there who might be suffering from a similar condition?

One concern I have is that if LDN strengthens the immune system, I

might be worse off. Steroids have been considered, but I am getting

very conflicting opinions on that treatment, because the problem

doesn't seem to be inflamatory in nature. If there is anyone out

there who has had a similar experience, I'd love to comunicate with

you. Time is becoming critical as thge condition is accelerating now.

Thanks,