Re: A miracle in Chichen Pox

[Guest guest]

,

In response to your post. I had a neurologist who tole me not to come back if I

wouldnt try his suggestion for " steriod drip " for my fatigue symptoms that had

become unbearable for the past year or more. We are all different but I decided

to try an alternate route before his suggestion since I knew  many of my CFS

symptoms may have been in part triggered from exposure to mold.

I set myself in motion to do an antifungal diet and find someone to prescribe an

antifungal medication. All in all, I`am not bed bound like I had been for the

past year or more although I still do suffer w/ horrid facial and head pain.

nne

Hello everyone,

I was diagnosed with CFS in the 80's , for me, I always said slow

progressive, I got ever so slowly got sick and sicker. I would have short

periods

of time when I almost felt human. The last 3 or 4 years I have been couch

bound with periods and much more just praying to die. I know longer cared

about myself and so mad at God.

I had gone to the emergency room many, many, many years ago with rib

pain, they gave it a name, said it could be chronic. I accepted it and all

these years I have endured, it had affected my breathing along with suffering

ME/CFS./FM.

[Guest guest]

,

I am so sorry for what you have been through. No one should have to suffer that

way. I too have felt angry at God; I don't understand WHY this is happening to

me and my family; it seems many times that all our lives are ruined now.

I wanted you to know, in case you didn't, that there is a big time connection

between the virus that causes shingles/chicken pox and CFS, or so many CFS drs

believe. One Dr did a big study; others are using anti-viral meds like the one

the hospital gave you to treat CFS patients. Here are some links to more info:

http://aboutmecfs.org/Int/Lerner.aspx

http://hhv-6foundation.webs.com/hhv6incfs.htm

Also, Phoenix Rising is a good site with lots of info and a very active patient

forum. There are people there taking anti-virals. Another good site is

http://www.hfme.org/

Dr. Lerner is one dr I know of treating patients with a anti-viral program,

specifically for shingles/chicken-pox.

I have not been sick anywhere near as long as you, but I have lost my work, my

hobbies, and most of what made my life meaningful other than my family. My plan

now is to get tested for viruses and then find a dr willing to treat me with

anti-virals for whatever viruses I test for. I don't think this will cure me of

CFS, but I'm hoping I will gain some functionality.

This all may be info you already know; if so I apologize, but I wanted to be

sure that you were aware that there IS a definite link between CFS and the virus

that causes shingles/chicken pox, and getting treatment for that virus appears

to have helped some patients.

Hope you continue to have improvement, and can find a dr who is willing to

support you and care for you.

>

> Hello everyone,

> I was diagnosed with CFS in the 80's , for me, I always said slow

> progressive, I got ever so slowly got sick and sicker. I would have short

periods

> of time when I almost felt human. The last 3 or 4 years I have been couch

> bound with periods and much more just praying to die. I know longer cared

> about myself and so mad at God.

> I had gone to the emergency room many, many, many years ago with rib

> pain, they gave it a name, said it could be chronic. I accepted it and all

> these years I have endured, it had affected my breathing along with suffering

> ME/CFS./FM.

> In the last months I had done nothing but wanting it to end my life.

> Then I lost my air conditioning during temps in LV weather 113 outside,

> inside you could not see the thermometer it was well in the hundreds for four

> days. It was horrific.

[Guest guest]

This is very interesting, I had the worst case of chicken pox my pediatrician

had ever seen and they wouldn't even take me in the front door of the office, in

had an allergic reaction to the virus itself which almost killed me!

,

I am so sorry for what you have been through. No one should have to suffer that

way. I too have felt angry at God; I don't understand WHY this is happening to

me and my family; it seems many times that all our lives are ruined now.

I wanted you to know, in case you didn't, that there is a big time connection

between the virus that causes shingles/chicken pox and CFS, or so many CFS drs

believe. One Dr did a big study; others are using anti-viral meds like the one

the hospital gave you to treat CFS patients. Here are some links to more info: