(Re:) Avonex (or beta) & LDN-

[Guest guest]

I'd like to know if anyone has tried it and the results.

I know what the recommedation is...but, I had no use of my legs and

was in much worse shape last June when this all hit in a devastating

way. After a year on Avonex I can now walk very short amts and

though am not what I was prior to last June, I am considably better.

I don't know whether it is due to the Avonex(and I am one of the

30%) or not, but I'm afraid to rock the boat too much. I stopped

the Solumedrol monthly pulse 4months ago and have my LDN.

I'm not ready to stop Avonex yet...and given the theory that the

immune system is being modulated vs simply UP vs DOWN regulated, I'm

willing to give it a shot (pun intende???)

Anyone with experience in combining?

I did a search, but didn't find anyone's experience.

Thanks!

spaprika AKA Venice

> In a message dated 7/10/2005 10:06:13 AM Central Daylight Time,

> nascush@y... writes:

>

>

> >

> > Is or has anyone taken LDN while taking Avonex? I know

> > poeple say that they work against each other but I

> > also have heard otherwise. I stopped Avonex and

> > started LDN and Copaxone. I have been going down hill

> > since and I am worse than ever without improvement. I

> > don't want to stop LDN (basically because I have only

> > heard/read positive results from everyone on this

> > site) but, I can not continue this road for sure.

> >

> > Thanks for the replies,

> >

>

> ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++

>

> Steve,

>

> I know how you must be feeling. Here it is, plain and simple,

the CRABS

> only work for 30% of the RRMS people who use them, or so the fine

print says.

> Those aren't very good odds, in my opinion! How does one know if

they truly

> have RRMS as opposed to SPMS or PPMS? MS is a relative term

subject to whatever

> caused it in a particular person. The Mayo even released a

statement in the

> past year stating that newly diagnosed MS patients should possibly

take a

> 'wait-and-see' approach before trying any of the drugs! What does

that tell you!!

> Tells me that 'they' really don't know if the CRABs do any

good!! I did

> Avonex for two years and ended up in this wheelchair anyway.

Didn't slow my

> progression at all. Wish I had known about LDN at that time!

>

> It's a gamble either way. Just do whatever you are comfortable

doing.

> Miracles happen. It's most likely not going to be a result of a

drug. A drug

> might give some symptomatic relief/improvement, but basically

we're all looking

> for healing!

>

> Marcie