Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Good Day I started taking ldn (3mg/day;liquid) about a week ago.The spasticity level is ever since increasing.Should I reduce,pause or just get through this?Any advice welcome.TIA Regards,Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 Hi Tom, Attached is the protocol for spasm from Dr. ce. If you would like me to send you all of his protocols for LDN and MS, please let me know. Aletha [low dose naltrexone] spasticity > Good Day > > I started taking ldn (3mg/day;liquid) about a week ago.The spasticity > level is ever since increasing.Should I reduce,pause or just get > through this?Any advice welcome.TIA > > Regards,Tom > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 I've only been on ldn for five weeks, but I have had somewhat decreased spasticity. However, the first couple of weeks, I actually experienced an increase at certain times. That has completely passed. I am currently taking 3 mg. Best Wishes, > > What has been the experience with LDN in regards to spasticity? I am > talking about stiff and tense legs that make mobilty tougher I guess > called tonic spasticity. I am not referring to spasms or cramps. I > have seen some say that it does not affect this symptom for them and > others say they get stiffer but has there been many reports of this > condition improving quite dramatically and at what dose would that be? > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Hi , I had the same thing happen to me when I started LDN in June of 2003. My spasms decreased dramatically. I was on tegretol 3 times daily and when I started LDN I dropped down to one and two times daily. Last March I fell and broke my shoulder and the trauma of that fall made my spasms return. I am back to 3 times daily. I am on 4.5 mg Marie [low dose naltrexone] Re: Spasticity I've only been on ldn for five weeks, but I have had somewhat decreased spasticity. However, the first couple of weeks, I actually experienced an increase at certain times. That has completely passed. I am currently taking 3 mg.Best Wishes,>> What has been the experience with LDN in regards to spasticity? I am > talking about stiff and tense legs that make mobilty tougher I guess > called tonic spasticity. I am not referring to spasms or cramps. I > have seen some say that it does not affect this symptom for them and > others say they get stiffer but has there been many reports of this > condition improving quite dramatically and at what dose would that be? > Thanks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 > > What has been the experience with LDN in regards to spasticity? I am > talking about stiff and tense legs that make mobilty tougher I guess > called tonic spasticity. I am not referring to spasms or cramps. I > have seen some say that it does not affect this symptom for them and > others say they get stiffer but has there been many reports of this > condition improving quite dramatically and at what dose would that be? > Thanks. > ============== I was born spastic in all 4 extremeties of unknown origin...as MS kept progressing the spasticity worsened. LDN(2 1/2 yrs) has stopped my progression and I got many symptom improvements but one that did not improve on LDN is spasticity. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Marie, I'm sorry to hear of your fall. Perhaps with more healing time, the spasms will reduce. After breaking my ankle, it took over a year for the problems to return back to normal. Good luck! --- In low dose naltrexone , " Marie " <Mardea@b...> wrote: > > Hi , > I had the same thing happen to me when I started LDN in June of 2003. My spasms decreased dramatically. I was on tegretol 3 times daily and when I started LDN I dropped down to one and two times daily. Last March I fell and broke my shoulder and the trauma of that fall made my spasms return. I am back to 3 times daily. I am on 4.5 mg > Marie > [low dose naltrexone] Re: Spasticity > > > I've only been on ldn for five weeks, but I have had somewhat > decreased spasticity. However, the first couple of weeks, I actually > experienced an increase at certain times. That has completely > passed. I am currently taking 3 mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Spacticity was my major problem. After six months prior to LDN I walked like a toy soldier. If I would sit for any period of time I would have to stand to let the blood flow for a bit before I made that first step. I became quite the actress in hiding this for the last 22 years. Then I took that leap of faith and ordered my Revia from Mexico cause neither of my doctors would prescribe it. Guess what-- after 151 days I go out to dinner and even have a couple of glasses of wine. I started out on 2 mg and worked up to the 4.5 which I am still taking. LDN has given me a big portion of my life back. I'm working on those long walks and then off to the old jogging trips. Hang in there you have made that first important step. I threw out the baclofen before I started the LDN as it never did anything to help. I haven't looked back since. Loretta --- nightfish72 <nightfish72@...> wrote: > What has been the experience with LDN in regards to > spasticity? I am > talking about stiff and tense legs that make mobilty > tougher I guess > called tonic spasticity. I am not referring to > spasms or cramps. I > have seen some say that it does not affect this > symptom for them and > others say they get stiffer but has there been many > reports of this > condition improving quite dramatically and at what > dose would that be? > Thanks. > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Loretta, You have no idea how good this makes me feel to read your post! I like your analogy to the toy soldier. That is me to a tee! I have become a pretty good actress in the last 15 years, except for when I fall on my face, and everyone either looks at me like I'm drunk or makes fun of me. I will be starting my LDN soon. My GP is a great guy, and I know he's skeptical, but he's willing to give it a try. He said, "most all of your other meds you are taking have worse side effects, so why not?". I can't wait to see his face when I prove him wrong!! Thank you so much! Jen -----Original Message-----From: low dose naltrexone [mailto:low dose naltrexone ]On Behalf Of LORETTA OLSENSent: Tuesday, January 31, 2006 4:22 PMlow dose naltrexone Subject: Re: [low dose naltrexone] SpasticitySpacticity was my major problem. After six monthsprior to LDN I walked like a toy soldier. If I wouldsit for any period of time I would have to stand tolet the blood flow for a bit before I made that firststep. I became quite the actress in hiding this forthe last 22 years. Then I took that leap of faith andordered my Revia from Mexico cause neither of mydoctors would prescribe it. Guess what-- after 151days I go out to dinner and even have a couple ofglasses of wine. I started out on 2 mg and worked upto the 4.5 which I am still taking. LDN has given mea big portion of my life back. I'm working on thoselong walks and then off to the old jogging trips. Hang in there you have made that first important step.I threw out the baclofen before I started the LDN asit never did anything to help. I haven't looked backsince. Loretta--- nightfish72 <nightfish72@...> wrote:> What has been the experience with LDN in regards to> spasticity? I am > talking about stiff and tense legs that make mobilty> tougher I guess > called tonic spasticity. I am not referring to> spasms or cramps. I > have seen some say that it does not affect this> symptom for them and > others say they get stiffer but has there been many> reports of this > condition improving quite dramatically and at what> dose would that be? > Thanks.> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Hi everyone The posts on spasticity have made me feel better too. I also feel like I am walking like a toy soldier. About a month ago I was just getting off a 1 hour flight from Melbourne to Sydney and as I stood up I lost my balance a bit. A very loud mouthed woman ( I won't call her a lady} said " what have YOU been drinking during the flight " . I just ignored her but my 15 year old daughter who was with me was very upset at the callous remark. Anyway, on a good note I am starting my FAST RELEASE LDN tonight. I've had a little hitch because the first pharmacist I used made up slow release capsules. I then had to go back to doctor to get another script. He was on holiday so I had to wait 2 weeks. If anyone using this site lives in Australia a good pharmacist to use is Greens Dispensary Compounding (08) 8363 7322 www.greendispensary.com.au Take care everyone Sue > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Great News Sue, Best of luck with your first dosage. Aletha [low dose naltrexone] Re: Spasticity > Hi everyone > > The posts on spasticity have made me feel better too. I also feel > like I am walking like a toy soldier. About a month ago I was just > getting off a 1 hour flight from Melbourne to Sydney and as I stood > up I lost my balance a bit. A very loud mouthed woman ( I won't > call her a lady} said " what have YOU been drinking during the > flight " . I just ignored her but my 15 year old daughter who was > with me was very upset at the callous remark. > > Anyway, on a good note I am starting my FAST RELEASE LDN tonight. > I've had a little hitch because the first pharmacist I used made up > slow release capsules. I then had to go back to doctor to get > another script. He was on holiday so I had to wait 2 weeks. > > If anyone using this site lives in Australia a good pharmacist to > use is > > Greens Dispensary Compounding > (08) 8363 7322 > > www.greendispensary.com.au > > > Take care everyone > > Sue >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
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