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I did a search on Lorenzo's oil. I read a statement saying that it doesn't repair mylein. It is a very positive story about hope, determination... nothing a doctor would recommend....

[low dose naltrexone] Lorenzo's Oil

I just saw a movie on Sunday called Lorenzo's Oil. It was about a child who developed ALD and the parents struggle to stop or cure him. Apparently ALD is a brain de-Myelinating disease and the Oil they had a chemist make stopped the progression. Over time the boy was able to begin to regain function after severe effects caused by ALD.

There is a 800-xxx-xxxx number at the end of the film.

oh here it is. Now its on the web http://www.myelin.org/

Hope for Multiple Sclerosis, the Leukodystrophies, and other Myelin Disorders

You know my doctor never mentioned anything about Lorenzo's Oil.

-

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  • 2 years later...

Thanks for the recommendation. Blockbuster has it.

Kay

-----Original Message-----

I just got done watching a wonderful movie called Lorenzo's Oil.  It was

released in 1992 and is based on a true story, what made me love it so much

was parents standing up to science and taking matters into their own hands. 

If you can get a copy I highly recommend watching it, we recorded it from

cable I'm not sure if they are still playing it on Indieplex, there might be

a chance that it is OnDemand with Comcast...  if you don't have a chance to

watch the movie google Lorenzo's Oil, so many different articles came up,

one that I found interesting was one written by a health science site about

how there is no " proof " ...  Scientist and their proof, until we are all dead

I don't believe they will have enough " proof " unless of course they are

getting $$ for it than the " proof " comes magically.

Marci

 

 

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It sounds as if you have done incredible things for your son. You are an

inspiration to keep on fighting for what our instincts tell us is right. Thank

you!

Winnie

Lorenzo's Oil

>

>

> I just got done watching a wonderful movie called Lorenzo' s

> Oil. It was released in 1992 and is based on a true story, what

> made me love it so much was parents standing up to science and

> taking matters into their own hands. If you can get a copy I

> highly recommend watching it, we recorded it from cable I'm not

> sure if they are still playing it on Indieplex, there might be a

> chance that it is OnDemand with Comcast... if you don't have a

> chance to watch the movie google Lorenzo's Oil, so many

> different articles came up, one that I found interesting was one

> written by a health science site about how there is no

> " proof " ... Scientist and their proof, until we are all dead I

> don't believe they will have enough " proof " unless of course

> they are getting $$ for it than the " proof " comes magically.

> Marci

>

>

>

> **The best whole food vitamins http://www.shaklee. net/drhansen20

> **I blog at http://drhansen20. blogspot. com**

> **and at http://whychiroprac tic.blogspot. com/**

> **and at http://freeinfofrid ay.blogspot. com/**

>

>

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Another really good one is called " First Do No Harm. " It is about a

4 or 5 year old who suddenly starts having seizures. None of the

seizure meds work AND they have horrible side effects. The parents

have to go to extreames and against the medical community to save

their son.

This was also based on a true story.

andrea

>

> I just got done watching a wonderful movie called Lorenzo's Oil. 

It was released in 1992 and is based on a true story, what made me

love it so much was parents standing up to science and taking matters

into their own hands.  If you can get a copy I highly recommend

watching it, we recorded it from cable I'm not sure if they are still

playing it on Indieplex, there might be a chance that it is

OnDemand with Comcast...  if you don't have a chance to watch the

movie google Lorenzo's Oil, so many different articles came up, one

that I found interesting was one written by a health science site

about how there is no " proof " ...  Scientist and their proof, until we

are all dead I don't believe they will have enough " proof " unless of

course they are getting $$ for it than the " proof " comes magically.

> Marci

>  

>  

>  

> **The best whole food vitamins http://www.shaklee.net/drhansen20

> **I blog at http://drhansen20.blogspot.com**

> **and at http://whychiropractic.blogspot.com/**

> **and at http://freeinfofriday.blogspot.com/**

>

>

>

>

>

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Nah, just scared silly! Fear certainly is a goad to education! There was a

measure of loathing as well. I hated the way he was talked about right in front

of him as though he was an insentient being. I hated the negative, dismissive

and patronising tones, the fake smiles of those who were talking about him one

minute, then leaning forward to baby-talk to him.  

There is a spark in the guy - he just needed the opportunity to prove them

wrong!

Maracuja

Lorenzo's Oil

>

>

> I just got done watching a wonderful movie called Lorenzo' s

> Oil. It was released in 1992 and is based on a true story, what

> made me love it so much was parents standing up to science and

> taking matters into their own hands. If you can get a copy I

> highly recommend watching it, we recorded it from cable I'm not

> sure if they are still playing it on Indieplex, there might be a

> chance that it is OnDemand with Comcast... if you don't have a

> chance to watch the movie google Lorenzo's Oil, so many

> different articles came up, one that I found interesting was one

> written by a health science site about how there is no

> " proof " ... Scientist and their proof, until we are all dead I

> don't believe they will have enough " proof " unless of course

> they are getting $$ for it than the " proof " comes magically.

> Marci

>

>

>

> **The best whole food vitamins http://www.shaklee. net/drhansen20

> **I blog at http://drhansen20. blogspot. com**

> **and at http://whychiroprac tic.blogspot. com/**

> **and at http://freeinfofrid ay.blogspot. com/**

>

>

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Share on other sites

Nah, just scared silly! Fear certainly is a goad to education! There was a

measure of loathing as well. I hated the way he was talked about right in front

of him as though he was an insentient being. I hated the negative, dismissive

and patronising tones, the fake smiles of those who were talking about him one

minute, then leaning forward to baby-talk to him.  

There is a spark in the guy - he just needed the opportunity to prove them

wrong!

Maracuja

Lorenzo's Oil

>

>

> I just got done watching a wonderful movie called Lorenzo' s

> Oil. It was released in 1992 and is based on a true story, what

> made me love it so much was parents standing up to science and

> taking matters into their own hands. If you can get a copy I

> highly recommend watching it, we recorded it from cable I'm not

> sure if they are still playing it on Indieplex, there might be a

> chance that it is OnDemand with Comcast... if you don't have a

> chance to watch the movie google Lorenzo's Oil, so many

> different articles came up, one that I found interesting was one

> written by a health science site about how there is no

> " proof " ... Scientist and their proof, until we are all dead I

> don't believe they will have enough " proof " unless of course

> they are getting $$ for it than the " proof " comes magically.

> Marci

>

>

>

> **The best whole food vitamins http://www.shaklee. net/drhansen20

> **I blog at http://drhansen20. blogspot. com**

> **and at http://whychiroprac tic.blogspot. com/**

> **and at http://freeinfofrid ay.blogspot. com/**

>

>

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Maracuja,

I am so happy to hear that your son has done so well !

Lorenzo-and his family were an inspiration to our family as well !

I was devastated by Lorenzo's death this year because if anyone

deserved answers or a miracle it should certainly have been granted

to Lorenzo and his family.

Lorenzo & his family gave us strength & hope & taught us never to

give up ! God Bless Lorenzo !

My son also has outlived his prognosis by 8 years-however if we had

listened to his doctors and accepted his prognosis he would not be

here today---

We never give up hope-its amazing what you can achieve when you are

determined to get answers ! especially when it involves helping your

own children.

Best Regards

Rosemary

In Vaccinations , Maracuja <howdurdago@...> wrote:

>

> We first watched it  with friends. During a comfort pause in the

middle of the [then] video, our brain-injured son asked in a little

voice, " Am I going to die? "

> He was 18, and I was able to say, " Not until you are an old man! "

> We didn't need to go to the extremes of Lorenzo's parents, but we

often had to fight for him. He had already outlived the drs'

prognoses by 8 years, and had bowel control, speech. mobility and had

learned to ride a bike. Two years later he got the enuresis under

control.

> Lorenzo died in May this year, his life a testament to what

motivated parents can achieve in the face of massive opposition. The

part that stuck in my mind was the impassioned speech about " arrogo " -

Lorenzo's father  did not object to the LITERAL meaning " I claim!'

when other parents tried to deter him with the epithet, arrogant!

>

>

>

> Lorenzo's Oil

>

>

> I just got done watching a wonderful movie called Lorenzo' s Oil. 

It was released in 1992 and is based on a true story, what made me

love it so much was parents standing up to science and taking matters

into their own hands.  If you can get a copy I highly recommend

watching it, we recorded it from cable I'm not sure if they are still

playing it on Indieplex, there might be a chance that it is

OnDemand with Comcast...  if you don't have a chance to watch the

movie google Lorenzo's Oil, so many different articles came up, one

that I found interesting was one written by a health science site

about how there is no " proof " ...  Scientist and their proof, until we

are all dead I don't believe they will have enough " proof " unless of

course they are getting $$ for it than the " proof " comes magically.

> Marci

>  

>  

>  

> **The best whole food vitamins http://www.shaklee. net/drhansen20

> **I blog at http://drhansen20. blogspot. com**

> **and at http://whychiroprac tic.blogspot. com/**

> **and at http://freeinfofrid ay.blogspot. com/**

>

>

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