Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Tammy, dont worry. The worst that can happen is insomnia or stiffness tomorrow. Neither hurts. I cannot recall anyone getting any other reaction except nausea and that is very rare and still, not dangerous. I am on LDN for over 2 yrs now, like so many others , it is the best thing I ever did! Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Tammy I've been taking ldn since April,2004. Like Kiki said probably your worst side effect could be insomnia or stiffness. I'm sure others will also assure you. Good luck Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 I JUST GOTDONE READING ABOUT REVIA ON THIS SITE ON ONE OF THE BOARDS....THAT IS WHERE MY COMPOUNDING PHARMACIST GOT MT NALTROXONE FROM, BUT I SPECIFIED EXACT FILLERS I WANTED USED AND HE LISTENED TO MY WISHES. THE COMPOUNDING PHARMACIST IS ONE FOR A VERY LARGE CHILDREN'S HOSPITAL AND HAS A VERY GOOD REPUTATION...I JUST HOPE I MADE THE RIGHT DECISION TO USE HIM...GUESS I WON'T KNOW TIL I TRY. AND FOR THE STIFFNESS, THAT IS ALL THE TIME AS I AM IN A W/C AT THE AGE OF 35, SO I KNOW THE STIFFNESS ISN'T REALLY GOING TO MATTER LOL. ALSO, I DON'T SLEEP MUCH, SO AS FAR AS THAT GOES, WHAT DO I HAVE TO WORRY ABOUT EH? THANK YOU FOR YOUR RESPONSE, TAMMY > Tammy, dont worry. The worst that can happen is insomnia or stiffness > tomorrow. Neither hurts. I cannot recall anyone getting any other reaction except > nausea and that is very rare and still, not dangerous. > I am on LDN for over 2 yrs now, like so many others , it is the best thing I > ever did! Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 The first week on LDN I was pain free and balance problems totally gone along with other symptoms so you have nothing to worry about but maybe some vivid dreams or insomia which should pass or if you have any filler issues and that can be solved. I suggest you take at the same time every night. I found 9pm my good time and it I take later than 9:30 or so I don't sleep well and sweat but at 9pm do OK. Goodluck!! Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 For some people, the decision to do LDN was personally, rather than doctor initiated. If this is the case with you, you have set yourself apart from the majority of society, but many have done the same before. For me, I felt like a million bucks knowing I was in charge of my health.It didn't hurt that my hair started growing faster or at least thicker, my metabolism went up, and the drain on my pocketbook for Copaxone dried up and went away (with the migrating sore spots). After 2 months, I cannot say my symptoms have gone away or improved as my primary symptom was "innumerable lesions in both hemispheres" on the MRI and I will not get another until April, but I remain very motivated by the positive news from around the world and by being able to tell people about LDN, an inexpensive yet very promising option for people who are suffering. Good luck. I hope your experience goes well. www.kennardfamily.org/brain/MyBrain.html Re: [low dose naltrexone] I RECEIVED MY FIRST SCRIPT FOR LDN, AND I AM SCARED... Tammy, dont worry. The worst that can happen is insomnia or stiffness tomorrow. Neither hurts. I cannot recall anyone getting any other reaction except nausea and that is very rare and still, not dangerous. I am on LDN for over 2 yrs now, like so many others , it is the best thing I ever did! Kiki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 TAMMY, HAVE SOMEONE GO TO A LOCAL HEALTHFOOD STORE AND GET YOU A BOTTLE OF MELATONIN. IF YOU HAVE SLEEP PROBLEMS START OUT TAKING 6MG OR 9MG OF MELATONIN 30 MINUTES BEFORE YOU TAKE YOUR LDN DOSE. IF YOU FIND 9MG IS NOT ENOUGH THEN UP TO 12MG AND IF NOT ENOUGH UP TO 15MG 30 MINUTES BEFORE YOUR LDN DOSE. STAY ON MELATONIN FOR ABOUT 14 DAYS AND THEN TRY TO SEE HOW YOU DO WITHOUT THE MELATONIN. IF INSOMNIA IS STILL THERE THEN START BACK ON THE MELATONIN AS IT MAY BE WHAT YOUR BODY NEEDS. CAPS ARE NO PROBLEM HERE. I THINK MANY UNDERSTAND. BEFORE LDN I HAD TO USE ALL CAPS TOO. I WAS ONE OF THE LUCKY TWO-THIRDS WHO WILL SEE SYMPTOM IMPROVEMENT ON LDN TO GET A SLIGHT VISUAL IMPROVEMENT. BRENDA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 HI TAMMY, I AM NEW TO LDN, STARTED A FEW MONTHS AGO AND AM FEELING GOOD, I JUST INCREASED MY DOSE TO 4.5 MG AND AM TOLERATING IT WITHOUT ANY SIDE EFFECTS....WHEN I FIRST ASKED MY NEUROLOGIST FOR THE SCRIPT FOR LDN A FEW MONTHS AGO HE SAID THAT HE DIDN'T MIND GIVING IT TO PEOPLE BECAUSE " IT WAS A HARMLESS DRUG " .....OF COURSE HE ALSO SAID THAT HE WASN'T CONVINCED THAT IT DID ANYTHING BUT AS YOU 'VE READ FROM THE MANY POSTS ON THIS SITE - IT IS HELPING PEOPLE!!!!! LIKE EVERYONE ELSE HAS SAID - THE FIRST WEEK I WOULD WAKE UP WIDE AWAKE AT ABOUT 3 AM, BUT AFTER THE FIRST WEEK I HAVE SLEPT FINE.....JUST THOUGHT I WOULD GIVE YOU SOME INPUT FROM SOMEONE THAT JUST RECENTLY STARTED LDN:) GOOD LUCK AND KEEP THINKING POSITIVE THOUGHTS:) LYNN [low dose naltrexone] Re: I RECEIVED MY FIRST SCRIPT FOR LDN, AND I AM SCARED... > I JUST GOTDONE READING ABOUT REVIA ON THIS SITE ON ONE OF THE > BOARDS....THAT IS WHERE MY COMPOUNDING PHARMACIST GOT MT NALTROXONE > FROM, BUT I SPECIFIED EXACT FILLERS I WANTED USED AND HE LISTENED TO > MY WISHES. THE COMPOUNDING PHARMACIST IS ONE FOR A VERY LARGE > CHILDREN'S HOSPITAL AND HAS A VERY GOOD REPUTATION...I JUST HOPE I > MADE THE RIGHT DECISION TO USE HIM...GUESS I WON'T KNOW TIL I TRY. > AND FOR THE STIFFNESS, THAT IS ALL THE TIME AS I AM IN A W/C AT THE > AGE OF 35, SO I KNOW THE STIFFNESS ISN'T REALLY GOING TO MATTER > LOL. ALSO, I DON'T SLEEP MUCH, SO AS FAR AS THAT GOES, WHAT DO I > HAVE TO WORRY ABOUT EH? THANK YOU FOR YOUR RESPONSE, > TAMMY > > > > Tammy, dont worry. The worst that can happen is insomnia or > stiffness > > tomorrow. Neither hurts. I cannot recall anyone getting any other > reaction except > > nausea and that is very rare and still, not dangerous. > > I am on LDN for over 2 yrs now, like so many others , it is the > best thing I > > ever did! Kiki > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 hi how long did this stiffness last? (started ldn some days ago) tom ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Yep, that's how I felt. Like I was taking a cyanide capsule... takes a while to get over that fear. There's a whole bunch of us here though.. so just give a shout when you need some reassurance Day 861 for me now [low dose naltrexone] I RECEIVED MY FIRST SCRIPT FOR LDN, AND I AM SCARED... HELLO, PLEASE DON'T THINK I AM YELLING AT YOU FOR TYPING IN CAPS. I HAVE MS EYES AND LARGER PRINT JUST WORKS FOR ME, SO I HOPE YOU ALL UNDERSTAND. I AM NERVOUS ABOUT TAKING MY FIRST DOSE OF LDN TONITE. I WISH I KNEW WHY I WAS. I THINK IT IS BECAUSE IT IS SOMETHING DIFFERENT I AM GOING TO BE PUTTING IN MY BODY AND I AM NOT SURE HOW MY BODY IS GOING TO REACT. ANY ADVICE WOULD BE GREATLY, AND I MEAN GREATLY APPRECIATED.THANK YOU ,TAMMY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Hi Tom, What dosage are you taking? Most men seem to do best on 3.0 (when taking the capsule). Some have tried starting smaller dosages to see if they can keep from having some of the side effects. My husband did not have any side effects, except that he had new areas of numbness and tingling which stopped after he lowered his dosage to 3.0 from the original 4.5mg. Most people seem to get rid of stiffness after about 2 weeks. I have heard that stretching out in the mornings can be helpful. Aletha Re: [low dose naltrexone] I RECEIVED MY FIRST SCRIPT FOR LDN, AND I AM SCARED... > hi > > how long did this stiffness last? > (started ldn some days ago) > > tom > > > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Hi Aletha Thanks for the reply. I started on 3mg,liquid form. Stretching is probably the best to do,and very helpful for most ms people anyway.Too bad my physio is on holiday now... What about applying cold?(ice packs,cold shower..) cu,tom Quote Link to comment Share on other sites More sharing options...
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