Re: OT~A Rare form of MS?/Kathy~my physical therapy protocol

August 16, 2005

> > > Does the viral profile mean anything to you? Is this a

> relapsing/remitting

> > > type?

> > >

> > > Marcie

> > ===========

> >

> > Marcie,

> >

> > Mine was chronic progressive from that point on at age 26 and I'm 42

> today and LDN was my savior. I was suicidal from the severe torturous pain I

> was suffering from head to toe. My muscles were squeezing the life out of me

> non-stop. My muscles had turned to concrete and the MS hug had turned into

> that snake that squeezes it's prey to death. I felt my muscles were on fire

> and they were drawing/knotting so bad they felt like they were crushing my

> bones; this went on 24 hours a day for many years and nothing short of

> killing oneself eased that pain. It even hurt to breathe, my lung expansion

> was very limited and thank God I was never a smoker...I probably wouldn't

> have been able to breathe at all if I had been.. 4.5mg LDN reduced that pain

> approximately 60%. Muscle problems, especially painful muscles were highly

> involved in my chronic progressive MS and paralysis and I was extremely heat

> sensitive, heat could cause me paralysis in a heartbeat. If she's living

> with what I was before I started LDN I feel for her. 4.5mg LDN or death is

> the only thing that will touch that pain if she is having the sort of pain

> that I had before LDN.

> >

> > I am also one who has had significant hearing loss(which is also rare)

> due to my chronic progressive MS. I'm 100% deaf in my right ear and I have

> approx. 40% hearing left in my left ear.

> >

> > I tested positive for Lupus twice and borderline positive once. My

> neuro always thought there HAD to be a second auto-immune disease attacking

> me. Anyway, LDN works on both so I'm in fairly good shape now. My disease

> progression is halted.

> >

> > I tested positive for antibodies so I guess that means viral.

> >

>

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