Re: OT~A Rare form of MS?/Marcie

[Guest guest]

> OK...a friend of mine says she has finally been dx'd w/a rare form of MS only

> affecting her face & muscles...not her nerves. Supposedly she's been dx'd in

> the past w/Bells Palsy, Hashimotos, poss Lupus, but now she found a doc who's

> told her this. Not a result of a MRI or Spinal but by a viral profile. I've

> looked and I've read about everything about MS, but I've never found this.

> The doc even told her she could 'beat it.' I don't know yet if they are

> pushing the CRABs or chemo.

>

> I'm just wondering if anyone else has heard of this?

>

> Marcie

=========

No I haven't. The only real extremely rare happening in MS that I've heard of

was what I had. It only had a 3 percentage rate of ever occuring in MS when I

presented with it and that was the Cerebral Attack. It comes on like that of a

stroke. It's so rare that in most MS material it is never mentioned. I've only

seen it written once and my neuro showed it to me in writing. This attack is

one-sided, meaning it either attacks your right side of body or the left side.

Mine was on the left. I awoke paralysed on my entire left side of body. I had

soaked in a warm tub of water the night before because I was in so much pain. I

did myself in by soaking in the warm water. If there's gonna to be an odd duck

in the pond, it's gonna be me.

[Guest guest]

-Marcie;

My form of MS seems to be that most of the damage was done in my

early days ,never had a real remissions ,and seemed to be stalled out

with damage done in the spine that never healed but really is stable .

-- In low dose naltrexone , " Bren " <TwisterAlley2@w...>

wrote:

>

> > OK...a friend of mine says she has finally been dx'd w/a rare

form of MS only

> > affecting her face & muscles...not her nerves. Supposedly she's

been dx'd in

> > the past w/Bells Palsy, Hashimotos, poss Lupus, but now she found

a doc who's

> > told her this. Not a result of a MRI or Spinal but by a viral

profile. I've

> > looked and I've read about everything about MS, but I've never

found this.

> > The doc even told her she could 'beat it.' I don't know yet if

they are

> > pushing the CRABs or chemo.

> >

> > I'm just wondering if anyone else has heard of this?

> >

> > Marcie

> =========

>

> No I haven't. The only real extremely rare happening in MS that

I've heard of was what I had. It only had a 3 percentage rate of ever

occuring in MS when I presented with it and that was the Cerebral

Attack. It comes on like that of a stroke. It's so rare that in most

MS material it is never mentioned. I've only seen it written once and

my neuro showed it to me in writing. This attack is one-sided,

meaning it either attacks your right side of body or the left side.

Mine was on the left. I awoke paralysed on my entire left side of

body. I had soaked in a warm tub of water the night before because I

was in so much pain. I did myself in by soaking in the warm water.

If there's gonna to be an odd duck in the pond, it's gonna be me.

>

>