Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 Hi All My name is and I am the list owner of ms-diet , a support group for those following the Best-Bet Diet. I am also taking 4.5mg LDN (for approx 2 yrs) in capsule/powder form, and have to say, I've seen no effect, and have continued a steady decline (I have PPMS diagnosed 7 yrs, and now use a wheelchair pretty much full time). I heard recently from one of our members, that many people seemed to be noticing the beneficial effects after switching to a liquid form of LDN. My question is - has anyone with PPMS noticed an improvement after taking the liquid form? Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 , I am sure it would be worth giving it a shot. I have noticed that it seems more potent, so you may wish to take it at a smaller dosage at first. I think you can just poor your capsule into liquid. Aletha [low dose naltrexone] LDN in liquid form Hi All My name is and I am the list owner of ms-diet , a support group for those following the Best-Bet Diet. I am also taking 4.5mg LDN (for approx 2 yrs) in capsule/powder form, and have to say, I've seen no effect, and have continued a steady decline (I have PPMS diagnosed 7 yrs, and now use a wheelchair pretty much full time). I heard recently from one of our members, that many people seemed to be noticing the beneficial effects after switching to a liquid form of LDN. My question is - has anyone with PPMS noticed an improvement after taking the liquid form? Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 Open the capsule and put in any liquid and take the liquid method. Put some more liquid in the container and drink to get the residue off glass. Some people do not have enough hydrochloric acid in the stomach to dissolve capsules and that may be your problem. You may not have got any LDN for the two years taking the capsules. Rhonda --- In low dose naltrexone , " Pile " <b.g.pile@l...> wrote: >> > I am also taking 4.5mg LDN (for approx 2 yrs) in capsule/powder form, and have to say, I've seen no effect, and have continued a steady decline (I have PPMS diagnosed 7 yrs, and now use a wheelchair pretty much full time). > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 Rhonda yes, you're right LOL....it was a little early, the brain wasn't quite awake:) good luck gettting back to where you were before the generic... just got back from my neuro appt.....its been two months on LDN, BBD, and recently avoiding ELISA food allergies, and he said that he couldn't believe how i've recovered and have gotten my strength back! of course he still doesn't believe in LDN or diet but he gave me a script for 3mg and 1.5 mg seperately so i could try and increase to 4.5 if i wanted! so at least he's opened minded enough to keep writing those scripts:) take care Lynn [low dose naltrexone] Re: LDN in liquid form Lynn, I think you are thinking about me, Rhonda, that when I tried the liquid LDN I had instant energy and everything got better which I recently screwed up by trying the generic. did have her MS stop progression but I think she is taking compounded LDN. I also tried the compounded but only one dose and I could tell not the same the next day but I never tried opening both the 3mgs and 1.5mgs capsules and making liquid. I wanted to go back to Bristol Myers Revia that was working and cheaper for me too. Now if I can just get back to where I was. I've been back on Bristol Myers Revia for 6 doses and got better but I feel some throb/burning today in my shins so I'm hoping it will soon go away and stay away. But we are having storms and the barometer may have something to do with it since it affects me so bad. When I started Dec. 17, 04 I did the crushed method until June and the pain was gone within a week so I'm wondering why it isn't going totally away fast now. I think in the 3 weeks on generic that my lesion may have become active again and that is why I felt symptoms. I'm mad about that generic and know it could just react that way with me and maybe not everyone since Bruce on the group has only taken the generic and says it works for his cancer. Bruce, is your generic made by Barr Labs too? I think anyone that hasn't got results from LDN should try the liquid method. After starting the liquid LDN I felt so normal and got motivation b/c I had energy again and could think clearly. Rhonda > yes! a woman named on the low dose naltrexone is also PPMS for many years- i think 15 and the LDN has stopped her progression right in its tracks! she was steadily declining before the liquid LDN......i am going to send you her story and contact info....very nice woman and very informative.....good luck > Lynn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 Needle nose pliers work great to open capsules. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 Rhonda, Instead of opening the capsule I just dropped it into water and it dissolved in about 3 minutes. It was not easy for me to get the capsule open. Joanne > Open the capsule and put in any liquid and take the liquid method. Put > some more liquid in the container and drink to get the residue off > glass. Some people do not have enough hydrochloric acid in the stomach > to dissolve capsules and that may be your problem. You may not have > got any LDN for the two years taking the capsules. > > Rhonda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 When I tried the compounded capsules one time, I had 3mgs and 1.5mgs and got the 3mgs pulled apart but gave up on the 1.5mgs so think that is why it didn't work as well b/c I only got 3mgs and had been taking 4.5mgs liquid Revia. I didn't think about using scissors to cut the capsule open. That would be simple and have whatever you are dropping the capsule powder in right under where you cut. My dad is taking my compounded now and he said they open fine. Could be humidity too making them stick. Try scissors. OK if the capsule dissolved that quick. If so in water, seems it would in our stomachs. I'd snip the capsule and ditch the capsule just to make sure it doesn't interfere with the LDN absorbing. That way you don't have to wonder. Someone here posted some comments about capsules not being as good for taking meds and vitamins etc. Rhonda > Rhonda, > > Instead of opening the capsule I just dropped it into water and it > dissolved in about 3 minutes. It was not easy for me to get the > capsule open. > > Joanne > > Quote Link to comment Share on other sites More sharing options...
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