Re: OT~A Rare form of MS?/Marcie again

[Guest guest]

> Does the viral profile mean anything to you? Is this a relapsing/remitting

> type?

>

> Marcie

===========

Marcie,

Mine was chronic progressive from that point on at age 26 and I'm 42 today and

LDN was my savior. I was suicidal from the severe torturous pain I was suffering

from head to toe. My muscles were squeezing the life out of me non-stop. My

muscles had turned to concrete and the MS hug had turned into that snake that

squeezes it's prey to death. I felt my muscles were on fire and they were

drawing/knotting so bad they felt like they were crushing my bones; this went on

24 hours a day for many years and nothing short of killing oneself eased that

pain. It even hurt to breathe, my lung expansion was very limited and thank God

I was never a smoker...I probably wouldn't have been able to breathe at all if I

had been.. 4.5mg LDN reduced that pain approximately 60%. Muscle problems,

especially painful muscles were highly involved in my chronic progressive MS and

paralysis and I was extremely heat sensitive, heat could cause me paralysis in a

heartbeat. If she's living with what I was before I started LDN I feel for her.

4.5mg LDN or death is the only thing that will touch that pain if she is having

the sort of pain that I had before LDN.

I am also one who has had significant hearing loss(which is also rare) due to my

chronic progressive MS. I'm 100% deaf in my right ear and I have approx. 40%

hearing left in my left ear.

I tested positive for Lupus twice and borderline positive once. My neuro always

thought there HAD to be a second auto-immune disease attacking me. Anyway, LDN

works on both so I'm in fairly good shape now. My disease progression is

halted.

I tested positive for antibodies so I guess that means viral.

[Guest guest]

, I had no idea you had gone through all these things. I knew it was progressive and very painful for you but had no idea of the extent. I am so happy for you and your life changing experience with LDN. Just wanted to drop you a line and tell you it is wonderful that you are inspiring so many people to create change in their lives and make a difference. Blessings, Kathy

[low dose naltrexone] Re: OT~A Rare form of MS?/Marcie again

> Does the viral profile mean anything to you? Is this a relapsing/remitting > type?> > Marcie===========Marcie,Mine was chronic progressive from that point on at age 26 and I'm 42 today and LDN was my savior. I was suicidal from the severe torturous pain I was suffering from head to toe. My muscles were squeezing the life out of me non-stop. My muscles had turned to concrete and the MS hug had turned into that snake that squeezes it's prey to death. I felt my muscles were on fire and they were drawing/knotting so bad they felt like they were crushing my bones; this went on 24 hours a day for many years and nothing short of killing oneself eased that pain. It even hurt to breathe, my lung expansion was very limited and thank God I was never a smoker...I probably wouldn't have been able to breathe at all if I had been.. 4.5mg LDN reduced that pain approximately 60%. Muscle problems, especially painful muscles were highly involved in my chronic progressive MS and paralysis and I was extremely heat sensitive, heat could cause me paralysis in a heartbeat. If she's living with what I was before I started LDN I feel for her. 4.5mg LDN or death is the only thing that will touch that pain if she is having the sort of pain that I had before LDN.I am also one who has had significant hearing loss(which is also rare) due to my chronic progressive MS. I'm 100% deaf in my right ear and I have approx. 40% hearing left in my left ear.I tested positive for Lupus twice and borderline positive once. My neuro always thought there HAD to be a second auto-immune disease attacking me. Anyway, LDN works on both so I'm in fairly good shape now. My disease progression is halted.I tested positive for antibodies so I guess that means viral.

[Guest guest]

> > Does the viral profile mean anything to you? Is this a

relapsing/remitting

> > type?

> >

> > Marcie

> ===========

>

> Marcie,

>

> Mine was chronic progressive from that point on at age 26 and I'm 42 today

and LDN was my savior. I was suicidal from the severe torturous pain I was

suffering from head to toe. My muscles were squeezing the life out of me

non-stop. My muscles had turned to concrete and the MS hug had turned into that

snake that squeezes it's prey to death. I felt my muscles were on fire and they

were drawing/knotting so bad they felt like they were crushing my bones; this

went on 24 hours a day for many years and nothing short of killing oneself eased

that pain. It even hurt to breathe, my lung expansion was very limited and thank

God I was never a smoker...I probably wouldn't have been able to breathe at all

if I had been.. 4.5mg LDN reduced that pain approximately 60%. Muscle problems,

especially painful muscles were highly involved in my chronic progressive MS and

paralysis and I was extremely heat sensitive, heat could cause me paralysis in a

heartbeat. If she's living with what I was before I started LDN I feel for her.

4.5mg LDN or death is the only thing that will touch that pain if she is having

the sort of pain that I had before LDN.

>

> I am also one who has had significant hearing loss(which is also rare) due

to my chronic progressive MS. I'm 100% deaf in my right ear and I have approx.

40% hearing left in my left ear.

>

> I tested positive for Lupus twice and borderline positive once. My neuro

always thought there HAD to be a second auto-immune disease attacking me.

Anyway, LDN works on both so I'm in fairly good shape now. My disease

progression is halted.

>

> I tested positive for antibodies so I guess that means viral.

>

>

>

[Guest guest]

BRENDA, THE DETERMINATION PART IS SO TRUE. LDN GAVE YOU THE BOOST BUT IF YOU DIDN'T HAVE THE ATTITUDE AND PERSERVERANCE, THEN ALL THE REGULATING OF THE IMMUNE SYSTEM JUST WOULDN'T BE ENOUGH. I HAVE TAKEN SO MANY CALLS FROM PEOPLE ALL AROUND THE WORLD AND THEY ASK ME WHAT I'VE DONE. I KNOW IN THE FIRST 15 MINUTES IF SOMEONE IS A SURVIVER. IF YOU TELL SOMEONE A POSITIVE AND THEY KEEP COMING BACK WITH A NEGATIVE, IT IS NOT A GOOD THING. I FIND MOST PEOPLE WITH CHRONIC CONDITIONS WHO EXPERIENCE A MIRACULOUS RECOVERY HAVE ONE THING IN COMMON: THEY ARE INDEPENDENT THINKERS WHO WANT TO BE PROACTIVE RATHER THAN REACTIVE. I AM GLAD YOU ARE ON THE COURSE TO WELLNESS AND WILL PRAY FOR YOU THAT IT JUST KEEPS GETTING BETTER. YOU ARE LIKE A PEPPLE CREATING A RIPPLE IN THE WATER AND HAVE NO IDEA HOW MANY LIVES YOU HAVE TOUCHED. SOMETHING WHICH APPEARED TO BE SHATTERING HAS CREATED A DIVINE PURPOSE IN YOUR LIFE. KATHY

-- [low dose naltrexone] Re: OT~A Rare form of MS?/Marcie again

> > Does the viral profile mean anything to you? Is this a relapsing/remitting > > type?> > > > Marcie> ===========> > Marcie,> > Mine was chronic progressive from that point on at age 26 and I'm 42 today and LDN was my savior. I was suicidal from the severe torturous pain I was suffering from head to toe. My muscles were squeezing the life out of me non-stop. My muscles had turned to concrete and the MS hug had turned into that snake that squeezes it's prey to death. I felt my muscles were on fire and they were drawing/knotting so bad they felt like they were crushing my bones; this went on 24 hours a day for many years and nothing short of killing oneself eased that pain. It even hurt to breathe, my lung expansion was very limited and thank God I was never a smoker...I probably wouldn't have been able to breathe at all if I had been.. 4.5mg LDN reduced that pain approximately 60%. Muscle problems, especially painful muscles were highly involved in my chronic progressive MS and paralysis and I was extremely heat sensitive, heat could cause me paralysis in a heartbeat. If she's living with what I was before I started LDN I feel for her. 4.5mg LDN or death is the only thing that will touch that pain if she is having the sort of pain that I had before LDN.> > I am also one who has had significant hearing loss(which is also rare) due to my chronic progressive MS. I'm 100% deaf in my right ear and I have approx. 40% hearing left in my left ear.> > I tested positive for Lupus twice and borderline positive once. My neuro always thought there HAD to be a second auto-immune disease attacking me. Anyway, LDN works on both so I'm in fairly good shape now. My disease progression is halted.> > I tested positive for antibodies so I guess that means viral.> > >