Re: Re: [MSersLife]respond to CJ

[Guest guest]

Sally,

I am so sorry that the LDN did not work out for you. Maybe this time around it will not cause the stiffness. My heart goes out to you more then I can tell you. Hopefully it will work at the 3.0 for you. I am at a lose of words for you. I've had decadron 11 times over the years and all but once it has worked. That was all there was out there at the time I was dx and after many years. Once I heard about the LDN there were three huge lesions. The one that scared the wits out of me was the one that was on my brain stem. I hate to think what would have happened if it were not for the LDN. I will pray for you. I wish there were something out there that would work for you.

Hugs,

CJOf all the blessings the Lord sends us....Friendship must be His favorite.

[Guest guest]

Hi Sally,

Do you think you could start by taking a very small dosage and working your

way up? Maybe start at 1.5, and add 1.5 after 1 month and then again to 4.5

if you are doing well. Also check on your filler, make sure you do not have

the generic brand of LDN, and perhaps you can try taking it in liquid to see

if that helps.

What other supplements have you been taking?

Aletha

[low dose naltrexone] Re: [MSersLife]respond to CJ

>

>> Hi CJ,

>> Yes I did try LDN and for two weeks I did great and then I started

>> stiffness

>> so bad I could not walk and a lot of pain in my legs. I stopped LDN and

>> have not tried it again. I' am taking B1 injection and liver extract

>> injection

>> along with Copaxone and the stiffness is gone along with the pain for

>> the

>> most part. I have been in a relapse for over a year and a half for the

>> first

>> time in my life and can not drive which I hate. I had a relapse two

>> weeks

>> after surgery and have been in one every since. I have talked to three

>> people

>> who have used Novanron with very good results. I' am a little worried

>> about

>> taking Novantron but what are my options? I cannot take the interferon's

>> and

>> steroids do me no good anymore.

>> I have had RRMS for 18 years. I am thinking about trying LDN again to

>> see

>> how I do on it but expect it will cause me problems again. I took LDN

>> for

>> three months and the stiffness started after two weeks. Thanks for your

>> imput,

>> I have learned a lot from reading the E-mails on this site.

>> Take care, Sally

> =========

>

> Sally,

>

> Start LDN at 1.5mg for 1 month and then do 2.5mg for 2 months and then up

> it to 3.0mg. You will have to have your doc write a script for 1 month

> 1.5mg then 2 months 2.5mg and then 3.0mg. Or do the liquid LDN and adjust

> dose yourself. I'd certainly try liquid LDN before I tried Novantrone.

> You can start out as little as .05mg in the liquid and slowly work your

> way up. Go to work on this ASAP...I think you'll be much better off.

> Have you read the possible long-term side-effects of Novantrone? If not,

> you certainly better.

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