Guest guest Posted November 5, 2000 Report Share Posted November 5, 2000 Hello, I took Plaquenil with Biaxin with no such problems.......lucky me......as a matter of fact that is the combination that brought me to 2 years symtom-free state that I am now in.........you might want to try kava kava to help you sleep. I am sure your cardiologist will agree that it is ok for you. Good luck. Mona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2000 Report Share Posted November 5, 2000 In a message dated 11/05/2000 3:47:51 PM Eastern Standard Time, WISHXXX@... writes: << .you might want to try kava kava to help you sleep. I am sure your cardiologist will agree that it is ok for you. Good luck. Mona >> I will look into that, too. Thank you -Jules > <A HREF= " http://www.20ishparents.com/babycontest/babycontest.shtml " >Vote for Ian #14!</A> Nov 3rd-10th F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 In a message dated 11/01/2002 11:07:38 AM Eastern Standard Time, writes: > I know Allie has low IGA and low > IGG subclass 2 & 4 and low IGM but should I push for > IVIG do they really make a difference? Hi there, I can only give my experineces with IVIG, but I would say a resounding YES to the IVIG!!! My daughter has a severe IGG subclass 2 and 4 deficiency with no response to any immunizations. Despite 5 pneumonias in only 8 months as well as several sinus infections, the docs fought me on the IVIG. However, after a positive blood culture for an unusual bacteria during a pneumonia, they decided that it was time to start the infusions. She has NOT had a single pneumonia in over 2 years (since the day infusions started!) and has only had 2 uncomplicated sinus infections!!!! Now my son on the other had, has a " mild " defect of several aspects of his immune system. He had his first sinus surgery at 5 years old and hadn't been off an antibiotic since he was 3 months old for more than 6 weeks his entire life!! After developing a severe and highly antibiotic resistant ear infection the doctors felt is was worth a try to see if IVIG would help to combat all of these infections. He started his IVIG infusions in August of this year, he has NEVER been this healthy in his entire life!!!! He has more energy, no infections and even seems to be able to do better school work, since starting the IVIG. I am thrilled with both of my children's responses to IVIG. Obviously these are just our experiences, but I strongly felt that the risk of the IVIG infusion was far less than the risk of the multiple ear, sinus, and lung infections as well as the life threatening risk of an antibiotic resistant infections. These infusions will give the break he needs from all of the antibiotics therefore reducing the complications he had in August with the resistant ear infection. I should also note that has had 3 sets of tubes and was scheduled for the replacement of his 3rd tube in his right ear (his very bad ear) and for another sinus surgery to open the left side to clean out the infection. After a repeat CT scan and the completion of our pre-op stuff with anesthsia, we were shocked to be told by the ENT that his ear looked BEAUTIFUL since he saw him last (during his inpatient stay) and his CT scan had shown a very nice improvement, so much so that surgery on his sinuses as well as his ear was to be cancelled!! So please consider the IVIG if you have a supportive doctor. You will only know if it helps if you try if first. Hope this helps. Take Care and God Bless. Mommy to Annette 12 (Selective Antibody Deficiency-IGG 2 and 4, CP, Developmental Delay, g-tube, HIV+, IVIG 2 + years), 7 (CVID, brain tumor survivor, severe hearing loss, chronic sinus and ear infections, asthma, seizure disorder, GERD, IVIG since August 2002) and Trayvon 3 (Ivemark Syndrome, severe congenital heart defects, asplenia, situs inversus) All wonderful!!!!! <A HREF= " http://www.caringbridge.com/ny/my2angels/ " >Click here: CaringBridge - my2angels</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 In a message dated 11/19/03 8:41:17 PM Eastern Standard Time, writes: > Date: Wed, 19 Nov 2003 08:55:19 +0200 > From: " Gubi " <gubisara@...> > Subject: Glucosamine > > Hi you all, > > Does anyone know if it is o.k. for people with cancer to take glucosamine, > or is it necessary to look for sugar-free glucosamine? > > Thanks, > Gubi > Gubi I suspect lots of folks are sulphur deficient and glucosamine sulphate helps balance that deficiency as do MSM, SAM-e (an amino acid), Epsom salts (MgSO4), garlic, onions. MJH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 MJH, I was concerned with the blood sugar level more than with anything else. I know there is a concern regarding glucosamine for type 2 diabetes. Regards, Gubi Glucosamine > > > > Hi you all, > > > > Does anyone know if it is o.k. for people with cancer to take glucosamine, > > or is it necessary to look for sugar-free glucosamine? > > > > Thanks, > > Gubi > > > > Gubi > I suspect lots of folks are sulphur deficient and glucosamine sulphate > helps balance that deficiency as do MSM, SAM-e (an amino acid), Epsom salts > (MgSO4), garlic, onions. > > MJH > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 > MJH, > > I was concerned with the blood sugar level more than with anything else. > I know there is a concern regarding glucosamine for type 2 diabetes. Hi Gubi, this concern is apparently based on rumors which, in their turn, may have originated in the erroneous reading of the word " glucosamine " as " containing, or related to, glucose. " (It doesn't and it isn't.) There was also a study that suggested massive doses of glucosamine administered intravenously over a long period of time messed up the IGF-1 in some rats, but this doesn't seem to predict anything in particular about humans taking a sensible dose orally for a short while. In case you are still worried about taking a pill, the safest (and most bioavailable) way to increase glucosamine in your diet is to make broths out of bones. You would need to cook them for a long time (5-8 hours). It makes an excellent soup base, and can keep in the fridge for about 3 days. Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi Elena, Thanks for your reply. I heard from one source that the glucose in glucosamine is locked in with amino acids, and does not convert into sugar. It is a long polysaccaride chain that arrives intact to the joints. Know anything about that? Gubi [ ] Re: Digest Number 1549 > > > MJH, > > > > I was concerned with the blood sugar level more than with anything else. > > I know there is a concern regarding glucosamine for type 2 diabetes. > > Hi Gubi, > > this concern is apparently based on rumors which, in their turn, may > have originated in the erroneous reading of the word " glucosamine " as > " containing, or related to, glucose. " (It doesn't and it isn't.) > There was also a study that suggested massive doses of glucosamine > administered intravenously over a long period of time messed up the > IGF-1 in some rats, but this doesn't seem to predict anything in > particular about humans taking a sensible dose orally for a short while. > > In case you are still worried about taking a pill, the safest (and > most bioavailable) way to increase glucosamine in your diet is to make > broths out of bones. You would need to cook them for a long time (5-8 > hours). It makes an excellent soup base, and can keep in the fridge > for about 3 days. > > Elena > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 > Hi Elena, > > Thanks for your reply. > I heard from one source that the glucose in glucosamine is locked in with > amino acids, yes, and I apologize for my unfortunate pharzing that implied there's no glucose anywhere in it. There is, but the metabolic pathways are different and it doesn't go the route of " just glucose. " And even if it did, the amount in one commercial capsule of glucosamine is equivalent to that in one grape. > and does not convert into sugar. It is a long polysaccaride chain that > arrives intact to the joints. > Know anything about that? Not much, except what some lectinologists say about its activity in the joints. Supposedly it selectively binds the wheat lectin, which also largely targets the joints and is damaging to them, because it allegedly unblocks some silent gene designed to attack some obsolete bacterial or viral invaders no longer present in the environment -- apparently the cartilage in our joints resembles this hypothetical organism enough for the immune system to launch an attack on it after the wheat lectin has awakened this gene. I know many people who claim their arthritis disappeared or was alleviated when they stopped eating all wheat products. If this is the correct scenario, taking glucosamine is simply the second best choice to non-eating of wheat. Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 In a message dated 10/7/2004 9:06:21 AM Eastern Daylight Time, Autism and Aspergers Treatment writes: As you can imagine > since then I have been reading everything I can get my hands on about > this condition and stumbled onto this group. You might like to check out www.aspergers.org also.. I find it a very valuable reference tool. "What's right is greater than what's wrong, and what's wrong we can take on together.""The success of a child is the measure of the adults who surround him."Thanks,Gretchen House Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 In a message dated 10/7/2004 9:06:21 AM Eastern Daylight Time, Autism and Aspergers Treatment writes: I'm thinking that doesn't allow attatchments Being on the Digest format does not allow for us to see the attachments. "What's right is greater than what's wrong, and what's wrong we can take on together.""The success of a child is the measure of the adults who surround him."Thanks,Gretchen House Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 In a message dated 10/7/2004 9:06:21 AM Eastern Daylight Time, Autism and Aspergers Treatment writes: But definately, you are right, I need to get this on his IEP/BIP , Are you in Ga? I think the school system is going about things the wrong way,, Your situation sounds very much like mine was with my daughter. I have found it very helpful to bring in a person that can do a functional assessment of behavior (FBA) and offer recommendations on how to address when the issues arise (which would be to recognize the trigger and then do everything to be proactive to avoid the trigger). Your child is going to be in school for a long time,,, it helps to get it started at a young age. "What's right is greater than what's wrong, and what's wrong we can take on together.""The success of a child is the measure of the adults who surround him."Thanks,Gretchen House Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 My doctor predscribed it as:Naltrexone(Revia) 50 mg x 30 days Repeat monthly for one year I hope that is correct................ I will have this for about 2 years, as I will ask now for 2 months supply and later next year for another two month supply, I take 6 mg/day. Zora Trinidad, West Indies. Message: 7 Date: Wed, 10 Aug 2005 19:02:01 +0200From: "fm2" Subject: LDN percsriptionHi!Someone wants a LDN perscrption from me in Canada.I only knoe to perscribe Nemexin or Revia to make LDN by yourself.How must a LDN perscription look like?Dr.Fuhrmann__________________________________________________ Quote Link to comment Share on other sites More sharing options...
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