Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Hi , So sorry you are not doing well. MS is so unpredictable. I have had MS for 17 years. been thru a lot over those years. I have been on betatseron, rebif and Copaxone. I can not take the interferon's because they make me sick like the flu and cause more relapses. I have been on Copaxone for 7 years with great results until I had surgery over a year ago and have been in a relapse every since. I will soon try Novantron to see if it helps me. I have not been able to drive for 5 months. MS can be very scary at times when it hits you so hard. I have been there more times than I like to think about. I know of a few people with MS who have used Novantron and it helped them a lot. One girl was paralyzed on her left side and could not talk just make garble sounds , her family thought she had a stroke. She just woke up this way one morning. She is the one who told me to try Novantron. She has recovered and you would not know that it had ever happened to her. Try to keep a positive mind about it I know it is easer said than done. Do not wait too long to do something to pull yourself out if possible of the relapse you are in. Just my opinion and I am not a Neuro but I know what its like to have a bad relapse. You are in my prayers and I hope you recover and feel better very soon. Feel free to E-mail me at shrollms@... if you want. Sincerely, Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Sally -- Have you tried the LDN? If not you would not need to go the chemo way. I wouldn't wish that on anyone. A friend did it and she had major problems. The port was not put in right and she ended up having major open heart surgery because of it. I thought that I would need to do it but then came the LDN and wow was that ever the best thing I've done for myself. Hugs CJOf all the blessings the Lord sends us....Friendship must be His favorite. Quote Link to comment Share on other sites More sharing options...
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