Re: Digest Number 1546

April 10, 2001

> From: AutoEngr2@...

> Subject: Re: Digest Number 1545

>

> Thanks for the reply Jerry. Unfortunately, I didn't get the attachments.

If

> you get a moment, please send them direct to me. I would like to continue

> this discussion. As a group (and I include the PBCers and the PSCers

here),

> we need to be more aggressive in pushing research in our direction. I

think

> the PBCers are leading the way and can only hope their directed research

will

> help us all. Certainly, Dr. Brodskys' work and the NIH study offers hope

for

> us all.

>

> My doc at Mayo says that AIH does not get the directed research because

their

> is medication to suppress the disease (pred, imuran, etc). PBC and PSC are

> have less effective treatments but the number of patients is very small

> relative to other diseases (Parkinsons, cancer, etc). He says a

breakthrough

> in our disease treatment will most likely come as a spinoff of treatment

of

> another disease - thus, Dr. Brodsky's work.

>

> Still, there are a small number of AIH and PBC/PSC patients that have a

very

> active disease that meds do not help. These folks need at least one liver

> transplaant. At the PBC conference last year, I met a very brave young

lady

> who was awaiting her second liver transplant because her PBC was so

> aggressive. For her, this breakthrough research would be worth a try.

>

> Just another push to get AIHers to attend the PBC conference in Las Vegas.

If

> you want to see some great, informed folks with a directive, positive

> attitude, ATTEND the conference! We'll have a segment on AIH and the

overall

> conference is exceptional. If you don't have the information on the

> conference, e-mail me and I'll send it back to you.

>

> God bless,

>

> Rick, AIH

>

And may I just say " I second that Rick!!!! More of you need to get

involved with the convention ....it is going to be spending lots of time to

other liver diseases now.NOT just to PBC...so please.come, and get involved.

This can help ALL of us!! Joanne C. (PBC) LIVERSUPPORT_L Moderator

JJCATHCART@...

July 6, 2003

-----Original Message-----

4. Cookware and stove-top cooking help needed

From: " Tom " tomwilson64@...

Hi!

There ARE many concerns out there about non-stick coatings. I live alone and

am not too experience in cooking meat BUT after 2 1/2yrs on ER4YT, I will

swear by a cast iron " fry pan " I use which is about 9 inches square and

after constant use develops a " patina " that is almost akin to non stick

cookware. I use it for steaks and other meats on stove top, also in the oven

top roast chicken, turkey legs (an EXCELLENT high protein/fat quick meal)

and even for eggs, like grandma used to do!

This is inexpensive, easy to clean, unbreakable (!) and I suspect the bits

of iron that may get into our food could be beneficial.

Happy fourth to all!

P.S. POLENTA is corn meal......Try some risotto (Italian short grained rice)

which is yummy when cooked with asparagus, locatelli (sheep) cheese, etc.

There are zillions of recipes which can be adapted to " O " diets.

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April 18, 2004

On the subject of specialized after school and summer programs, The Lake

Houston YMCA has teamed with Humble ISD and the Village Learning Center to

provide after school care for children with disabilities in the

Humble/Kingwood/Atascocita area. This program was promoted by parents,

especially those already working with the Y to provide a once-a-month

Special Kids Night Out. From what I understand, this Y is one of the first

in Texas (perhaps the country) to do this. Elementary aged children are

included in the regular after school care program (although the price is a

little higher, I think), some middle school students may also attend that

program, while older students go the the Village Learning Center. The

District provides transportation from the student's campus to the

appropriate after-school program. Some kids with mild disabilities also

just attend the regular after-school care on their home campus. The only

problems I've seen so far are the difficulty in incorporating children who

have aggressive behaviors. For the most part, these children have

difficulty finding placement anywhere because of the lack of knowledge and

experience in Positive Behavior Support programming. Also, the ARC of

Greater Houston provides several week-long " Sports Camps " around the city in

the summer as well as Camp Champions-- a sleepover week at Camp for All for

children 8 and up. There are a number of other " camp " type programs, but

not summer-long programs other than extended year services " EYS " provided by

the school districts (and those can be pretty chaotic for our kids). There

also are some private summer programs offered by the private schools that

work with kids with autism (Westview, InKids, etc.). It would be

interesting to here about programs in other parts of Houston, as well as San

, Dallas/Ft. Worth, Austin and other areas from people on the list.

LHS

April 18, 2004