Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 Hi Everyone, My son is 33 months with apraxia and SID. Some parents have stated that sensory issues have dissappeared since taking Vitamin E. I was wondering what were the sensory issues your children had and how much Vit E were they taking. Thanks in advance!!! Sue --------------------------------- Don't be flakey. Get for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2007 Report Share Posted March 1, 2007 Of course, you should only do what you feel comfortable doing for your child, but here is our story (and for those who already know this story, please feel free to skip this message : For my child it was vestibular and proprioceptive issues. They were severe and interfered with daily life (for everyone in the family). Vitamin E made them vanish, literally, overnight after the first dose at 200IUs d-alpha with 200 mg d-gamma. I gave that to him in the morning but in the afternoon the sensory seeking behaviors began again. We did that for a month and then I added a second dose (total of 400 d-alpha and 400mg d-gamma daily)in the afternoon and we had no daily regression. After another month we doubled the d-alpha to 800 per day but kept the d-gamma at 400mg. Then after another month we went to where we are today at 1200IUs d-alpha and 800mg d-gamma (during all of this there were times when we saw that he needs the d- gamma, so instead of increasing the d-alpha to 1500IUs - which is as far as we should safely go - I increased the gamma and did see improvements). I've also seen improvement with defensiveness, but it isn't completely resolved. Right now we are also on 2 Pro-EFAs per day. The EFAs do interfere with the Vitamin E for my son and some of the sensory issues return if we go higher. But positive things happen with the Pro-EFA, so I don't want to completely stop using them. > > Hi Everyone, > > My son is 33 months with apraxia and SID. Some parents > have stated that sensory issues have dissappeared since > taking Vitamin E. I was wondering what were the sensory > issues your children had and how much Vit E were they > taking. Thanks in advance!!! > > > Sue > > > > --------------------------------- > Don't be flakey. Get for Mobile and > always stay connected to friends. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Where do you get these products from? > > > > Hi Everyone, > > > > My son is 33 months with apraxia and SID. Some parents > > have stated that sensory issues have dissappeared since > > taking Vitamin E. I was wondering what were the sensory > > issues your children had and how much Vit E were they > > taking. Thanks in advance!!! > > > > > > Sue > > > > > > > > --------------------------------- > > Don't be flakey. Get for Mobile and > > always stay connected to friends. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Any vitamin E will do as long as it is natural and not synthetic. Look for d-alpha and d-gamma on the label. That denotes it is natural. A " dl " will denote it is synthetic. Our products - we get Vitamin World High Gamma Tocopherol (200 IU d- alpha and 200mg d-gamma each gel cap) from the Vitamin World store at our local mall, Soloray Vitamin E (d-alpha only) from a health food grocery store called Earthfare, and I order my Pro-EFA, Jr from the SHOP-IN-SERVICE link within the CHERAB Foundation website. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 , Just wondering how do you give each of these to your son? Do you mix them all in a drink or is he old enough to swallow them whole? I did the pro-efa and squized them in her juice but that was always making a mess and the smell was bad, I hate it! Just curious what you did, because my dd's SI was nearly gone and I see alot of it coming back and she is also slowing down with talking and ALOT of silliness... Will the vit E help all of that as well? Thanks Trixie > > Any vitamin E will do as long as it is natural and not synthetic. > Look for d-alpha and d-gamma on the label. That denotes it is > natural. A " dl " will denote it is synthetic. > > Our products - we get Vitamin World High Gamma Tocopherol (200 IU d- > alpha and 200mg d-gamma each gel cap) from the Vitamin World store at > our local mall, Soloray Vitamin E (d-alpha only) from a health food > grocery store called Earthfare, and I order my Pro-EFA, Jr from the > SHOP-IN-SERVICE link within the CHERAB Foundation website. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 I'm lucky - I just squeeze them out into a spoon and he takes it like a pro. I'm beginning to think that his sense of taste is diminished since he doesn't seem to mind it at all! I think it's just awful. When I first started giving it to him a few months ago I squeezed it all into a medicine dropper (and added his daily dose of zyrtek into the cocktail). I had to chase him with it for about 3 days before he got used to it. Now we've graduated to spoons. He's 3.5 years. I squeeze out each dose of Vitamin E and Pro-EFA into one spoon all at once. I give him 600IUs d-alpha, 400mg d-gamma, and 2 Pro-EFA Jrs all at once twice per day. I actually tried spacing it out over 3 times per day but I saw some mild sensory seeking return. The larger doses 2x per day works better for us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 I forgot to address your other question - you indicate that your daughter's sensory issues were nearly gone. What had helped? OT and now she is regressing? Or were you giving Vitamin E and stopped? Is the silliness you mention out-of-context laughing or something else? My son used to get " disorganized " and have boughts of the out-of- context silly laughing, but that is completely gone. For us, so far, the largest benefits we have gained from supplementation are from the sensory issue angle. However, he is SLOWLY making gains with speech in terms of ability to imitate speech sounds (before, he couldn't even imitate except for just 3-4 phonetic sounds, now he attempts anything I ask him to imitate.) This could a combination of the fish oil finally kicking in, the higher dosing of Vitamin E and the change of speech therapy (now that we have a correct diagnosis we also have a more effective and appropriate treatment plan which he is responding to beautifully). Just this week he is beginning to spontaneously communicate, both through sign and verbal. This is a first. He normally needed a prompt or a cue to do any type of sign or verbal communication (i.e. I had to guess what he wanted, which was normally pretty easy for me, then ask him something like, " do you want me to open? And he would sign open or verbally approximate it. This week he brought me a bottle of water and looked at me and said, " Wah ohhpn " ! Music to my ears. I was also on a phone call that was running long and he pointed to the phone and waved byebye! That one brought me to tears! > > > > Any vitamin E will do as long as it is natural and not synthetic. > > Look for d-alpha and d-gamma on the label. That denotes it is > > natural. A " dl " will denote it is synthetic. > > > > Our products - we get Vitamin World High Gamma Tocopherol (200 IU d- > > alpha and 200mg d-gamma each gel cap) from the Vitamin World store at > > our local mall, Soloray Vitamin E (d-alpha only) from a health food > > grocery store called Earthfare, and I order my Pro-EFA, Jr from the > > SHOP-IN-SERVICE link within the CHERAB Foundation website. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2007 Report Share Posted March 3, 2007 For my children, sensory issues were primarily diet related. Perhaps she has developed a new food sensitivity? Is she getting different foods than she was over the summer? Have you tested for gluten and dairy sensitivity? > > hi everyone, > I'm writing to ask a question about somethings I've noticed lately about my daughter. Gwen was diagnosed by speech therapist at two and half and is now almost four. > When she started treatment she had less than 50 words and was very sensitive about being touched, having her hair brushed, etc. After being in the program for less than a year she loved hugs and started to request them, and still does, and is talking nonstop! She tolerates her hair being brushed, but is still a picky eater. > She spent the summer in an integrated setting with several other children and now seems to be having sensory issues again. She won't take a hot/warm bath. The water needs to be almost ice cold before she will get in. She won't take a shower, where as before she loved having her hair washed this way. Her teachers report that she isn't eating, but crying at lunch time. She's stopped talking to them as well. She won't tell them about our trip to disney world/seaworld. > Her class meets in the pm and last yr and the summer program were both am. The teachers are all the same, except a student teacher that is done with her requirements. (She was only in summer program. I am at a lost. Has anyone else thought they made it over sensory issues and they have resurfaced? > > Sorry so long, not many of my friends understand why I am upset......, mom to Cain (almost 7) and Gwen (almost 4 - apraxia) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 Several posts and comments on another board in relation to this article. Calcium/sodium/potassium balance. I interpret this to mean that if calcium is too high (it is in many of kids on/off the spectrum) then sodium uptake to neurons is increased, which induces more sensory issues -- such as sensativity to sound, etc. I really want to find more and read more about this. http://www.sciencedaily.com:80/releases/2007/03/070301102758.htm Source: Oregon Health & Science University Date: March 2, 2007 Calcium Is Spark Of Life, Kiss Of Death For Nerve Cells Science Daily — Oregon Health & Science University research shows how calcium regulates the recharging of high-frequency auditory nerve cells after they've fired a burst of signals, and it may have implications for neurological disorders. The study by scientists at OHSU's Vollum Institute and the University of Arkansas for Medical Sciences, which appears in the current issue of the journal Nature Neuroscience, shows that calcium ions play a greater role in keeping in check the brain's most powerful circuits, such as those used for processing sound signals, than previously thought. A better understanding of that role could someday help prevent the death of neurons behind some diseases of the brain and spinal cord, such as stroke and multiple sclerosis, the scientists say. The research, led by postdoctoral fellow Jun Hee Kim, Ph.D., and her advisor, Henrique von Gersdorff, Ph.D., both scientists at the Vollum Institute, found that calcium tempers the activity of a high-throughput sodium pump, located in the plasma membrane covering nerve endings, that controls how quickly and accurately a nerve cell continues firing after an initial burst of spiking activity. " What's happening in the brain is you have all these action potentials (spikes) that are firing - the action potential is the way you transmit information quickly from neuron to neuron - and when you have an action potential, you have an explosive influx of sodium ions into the cell, " von Gersdorff said. " As a result, the cell is depolarized and it needs to be quickly repolarized. " To repolarize a cell so it can continue firing, and do so accurately and at high-input frequencies, the sodium pump ejects three positively charged sodium ions and imports two positively charged potassium ions. The net result is one positive charged is expelled from the cell, causing a hyperpolarization of the cell's membrane potential. Quick repolarization of the nerve cell is essential. Mature auditory nerve cells fire at frequencies that are 10 to 100 times higher than most high- frequency cells in the brain - 1 kiloHertz, or 1,000 Hertz. Most brain synapses, the space between nerve cells through which impulses are transmitted and received, begin failing beyond 10 Hertz. " In the last few years, we have been studying high-frequency firing cells in the auditory part of the brain. We found that these cells and nerve terminals are amazing because they can fire at 1,000 Hertz without failures and with high precision, " von Gersdorff said. " That discovery in our lab prompted us to ask the question: How is it that these nerve cells can handle all this high-frequency firing? " Enter calcium, which, by inhibiting the activity of the sodium pump, regulates signal firing, and may conserve energy and keep the high-frequency cells from burning out. But calcium in high levels within a nerve cell can be toxic, so the researchers discovered another purpose for the sodium pump: powering a protein located on the nerve terminal membrane called the sodium-calcium exchanger, which removes the calcium and replaces it with sodium. That action, in turn, triggers the sodium pump, and so on. The sodium-calcium exchanger " can import high concentrations of sodium from outside the cell, and it uses the gradient of low internal sodium in the cell as a form of energy to get rid of calcium. That energy comes, ultimately, from the sodium pump and its use of ATP, the cells' major fuel, " von Gersdorff explained. The pump is " always keeping sodium concentration in the neuron low and that allows the sodium-calcium exchanger protein to constantly exchange sodium for calcium. " Otherwise, if allowed to get too high within the cell, the calcium shuts down the sodium pumps, creating a " vicious loop, " von Gersdorff said. " You then get a simultaneous build-up of calcium and sodium in the cell, and it's 'Goodbye to your neuron.' It goes at some point into an irreversible cycle of death, " he said. One potential therapeutic approach to preventing cell death caused by increasing calcium levels is making the sodium pump more insensitive to calcium. A potential new drug, for example, could " help the neuron to keep extruding sodium so it can help the sodium-calcium exchanger get rid of calcium, thereby not allowing calcium to reach toxic levels, " von Gersdorff said. For the time being, von Gersdorff's lab will continue studying how calcium regulates the sodium pump. " Our hope is that these basic, fundamental issues will eventually lead to therapeutic strategies that alleviate neuronal damage from ischemia and stroke, " he said. In addition to Kim and von Gersdorff, co-authors on the study were Igor Sizov and Maxim Dobretsov, University of Arkansas for Medical Sciences, Little Rock. The study was funded by the National Institute of Deafness and Other Communication Disorders, the American Heart Association, and the National Institute of Diabetes and Digestive and Kidney Diseases. Note: This story has been adapted from a news release issued by Oregon Health & Science University. > > > > hi everyone, > > I'm writing to ask a question about somethings I've noticed lately > about my daughter. Gwen was diagnosed by speech therapist at two and > half and is now almost four. > > When she started treatment she had less than 50 words and was very > sensitive about being touched, having her hair brushed, etc. After > being in the program for less than a year she loved hugs and started > to request them, and still does, and is talking nonstop! She > tolerates her hair being brushed, but is still a picky eater. > > She spent the summer in an integrated setting with several other > children and now seems to be having sensory issues again. She won't > take a hot/warm bath. The water needs to be almost ice cold before > she will get in. She won't take a shower, where as before she loved > having her hair washed this way. Her teachers report that she isn't > eating, but crying at lunch time. She's stopped talking to them as > well. She won't tell them about our trip to disney world/seaworld. > > Her class meets in the pm and last yr and the summer program were > both am. The teachers are all the same, except a student teacher that > is done with her requirements. (She was only in summer program. I am > at a lost. Has anyone else thought they made it over sensory issues > and they have resurfaced? > > > > Sorry so long, not many of my friends understand why I am > upset......, mom to Cain (almost 7) and Gwen (almost 4 - apraxia) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2007 Report Share Posted March 6, 2007 My son had lots of sensory issues...I found that with age and familiarity, they've dissapated. He still has food aversions, but in terms of noises; those have diminished considerably ----------------------------------------- This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 yep - we did the brushing protocol when Josh was about 3yo and I've done it twice since then. there was an aide at school last year that did it throughout the day for almost the entire school year. don't forget that the protocol requires joint compressions. my suggestion, make sure you're properly trained by an OT to do the protocol the correct way as it can cause problems if it's done incorrectly. Sherry and Josh ________________________________ From: Kayce Spader <kaycespader@...> Sent: Thursday, October 30, 2008 3:23:51 PM Subject: Re: [ ] sensory issues Has any one tried the 'brushing' protocol? It was suggested for Cody when they thought he had SID. On Thu, Oct 30, 2008 at 3:32 PM, Humphreys <csljh2000 (DOT) com>wrote: > Oh, I forgot to mention we used to take items with us places when he was > younger in case he needed something to calm him. We did the squishy hair or > a curious george plush toy. He use these to help him cope in situations that > he was overstimulated. > > > > Ethan's Mom~ > > ____________ _________ _________ __ > From: lynnelow27 <lynnelow27 (DOT) com <lynnelow27% 40> > > @groups. com<childrensapraxiane t%40groups. com> > Sent: Thursday, October 30, 2008 9:52:51 AM > Subject: [childrensapraxiane t] sensory issues > > Hi there, > wondering what others do for their kid's sensory issues? 's slp > thinks this sensory issue is a big part of his speech delay---he gets > overly excited when he watches his favorite dvds- and lately he has > been screaming on and off at the " exciting " parts....he washes hands at > school hand over hand, and does it by himself with the private OT. at > home will sometimes do it, other times he just says " no no no " . He > brings me the shaving cream to make a funny face, but just wants me to > touch it--yet he will do it at the OT's. the OT said to do alot of > physical stuff, like wheelbarrow walking and deep massage..... .I read > the Out of Sync Child, but I think his sensory issues are mild...any > feedback would be appreciated. ..? > > Lynne and , age 3.9 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 Nick's sensory has really been prominent lately... After trying massages, I found that he's more into movement - jumping on a trampoline, or I will grab him by the ankles and swing him upside down (he's 2 - still easy to pick up). When I think I've worn him out enough, I've been putting on his videos and wrapping him in a towel (he always used to sleep rubbing terrycloth, so I guess he enjoys it). It just got too cold for the park, or I'd have him there more. I'm too cheap to pay $5 a day for the indoor gym. > > Hi there, > wondering what others do for their kid's sensory issues? 's slp > thinks this sensory issue is a big part of his speech delay---he gets > overly excited when he watches his favorite dvds- and lately he has > been screaming on and off at the " exciting " parts....he washes hands at > school hand over hand, and does it by himself with the private OT. at > home will sometimes do it, other times he just says " no no no " . He > brings me the shaving cream to make a funny face, but just wants me to > touch it--yet he will do it at the OT's. the OT said to do alot of > physical stuff, like wheelbarrow walking and deep massage......I read > the Out of Sync Child, but I think his sensory issues are mild...any > feedback would be appreciated...? > > Lynne and , age 3.9 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 My son has had this thing where he does not want to get the bottoms of his shoes wet. Makes walking in the winter time kind of hard when you live in Minnesota. He walks on his heels or he wants you to pick him up and he is 54 pounds. The first part of the Winter when he would go outside for school he would just stand there and try to brush off the bottoms of his boots. No doubt this is a sensory issue, does anyone have any ideas how to help him get over this? Jen **************Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! (http://pr.atwola.com/promoclk/100000075x1212416248x1200771803/aol?redir=http://\ travel.aol.com/discount-travel?ncid=emlcntustrav00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 hi Lynne, I do think tactile defensiveness is really important to work on and later on can cause big issues with social interaction. My son grew more tactilely defensive as he got older to the point where he almost wouldn't use his hands - always held a stick to protect his palms, never wanted to do things with his hands, meantime his palms got more and more leathery.If you think your son might be going down this road try to give him daily a special sensory diet just for his hands - finding treasures in a rice feely bag - can he identify them just by touch, a bag with cloth of all sorts of textures, sand paper letters, getting nickels out of OT putty, or playing with potters clay, finger painting, touching different kinds of tree bark, shaving foam to draw in on a black tray so you can see the drawings clearly or in the shower etc. I also found vitamin E did help this - my son hated washing his hands until we started suplementing (interesting that i can't take it at all because it makes the soles of my feet too sensitive).HTH - catherine (son 12, severe dyspraxia, DSI, language disorder) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 I did the brushing protocol with Mark when he was younger but it didn't really work for him. I have heard some say that that you need to do this work in conjunction with joint compressions but haven't tried this duo in tandem. What DID work for us (you might expore this if the brushing proves to be a bust) was deep pressure stimulation. Deep pressure to Mark's hands and arms; feet and legs.... 2 times daily brought forth his tactility to normal levels. In his case, he was extremely 'hypo-sensitive' rather then " hyper-sensitive " so this may be why the brushing produced no results and the deep pressure work resulted in fabulous gains. Take care and good luck with this, Janice Mother of Mark, 13 [ ] sensory issues > > Hi there, > wondering what others do for their kid's sensory issues? 's slp > thinks this sensory issue is a big part of his speech delay---he gets > overly excited when he watches his favorite dvds- and lately he has > been screaming on and off at the " exciting " parts....he washes hands at > school hand over hand, and does it by himself with the private OT. at > home will sometimes do it, other times he just says " no no no " . He > brings me the shaving cream to make a funny face, but just wants me to > touch it--yet he will do it at the OT's. the OT said to do alot of > physical stuff, like wheelbarrow walking and deep massage..... .I read > the Out of Sync Child, but I think his sensory issues are mild...any > feedback would be appreciated. ..? > > Lynne and , age 3.9 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 Ok: I will make this brief, but I have a question from anyone that knows the answer or has an idea. I have a 5 year old son with PDD NOS on the autism spectrum and apraxia. He is the sunniest little boy ever, he is sweet and loving and is making slow progress with speech, not many words yet. His sister is 3 and when she came along everything seemed to be fine. My son was home for 2 weeks with the flu or whatever it was and then he went to school one day and had Christmas vacation. My daughter is talking above average for her age, she is potty training she is interested in books. Here is the thing, when too much stimulation comes her way or if my son makes a noise, like a grunting noise if he is playing a computer game, she gets very sensory defensive and puts her hand to her ear and says over and over again " is ok " She definitely does not like certain sounds, she says they are too loud, like the hair dryer. When things get over stimulating for her, for whatever reason she has a meltdown and starts crying. I have a call to make her an appointment with our Developmental pediatrician. I have started the brushing and we have a popcorn pit and I ordered a new indoor swing that goes in the door frame. She also is very attached to family and gets shy around adults she does not know, she is very friendly with other kids and loves to play. She is loving and sweet and a real doll, but when she has those melt downs it is like dealing with another child, she gets so upset and usually has to go to her room, then she wants her binky, which I am only letting her have at nap time and night time and usually taking out of her mouth. I know she doesn't have autism, she doesn't have any repetitive behaviors her speech is right on, she can feed herself. What is going on? Why now all of the sudden is this presenting itself. She is always asking " What is that noise " I know part of the tantrums are her age, but if someone even says a word she doesn't like that can start her crying. Any ideas from anyone would be helpful. I am at my wits end. I just didn't expect this. It seems worse since is out of school, she loves him and always wants to kiss him goodnight, she is not scared of him, she just does not like the noises he makes sometimes. Thanks Jen **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 My son reacted like this when he had yeast problems. Are you giving her a probiotic? > > Ok: I will make this brief, but I have a question from anyone that knows the > answer or has an idea. I have a 5 year old son with PDD NOS on the autism > spectrum and apraxia. He is the sunniest little boy ever, he is sweet and > loving and is making slow progress with speech, not many words yet. His sister is > 3 and when she came along everything seemed to be fine. My son was home for 2 > weeks with the flu or whatever it was and then he went to school one day and > had Christmas vacation. My daughter is talking above average for her age, she > is potty training she is interested in books. Here is the thing, when too > much stimulation comes her way or if my son makes a noise, like a grunting > noise if he is playing a computer game, she gets very sensory defensive and puts > her hand to her ear and says over and over again " is ok " She > definitely does not like certain sounds, she says they are too loud, like the hair > dryer. When things get over stimulating for her, for whatever reason she has a > meltdown and starts crying. I have a call to make her an appointment with our > Developmental pediatrician. I have started the brushing and we have a > popcorn pit and I ordered a new indoor swing that goes in the door frame. She also > is very attached to family and gets shy around adults she does not know, she > is very friendly with other kids and loves to play. She is loving and sweet > and a real doll, but when she has those melt downs it is like dealing with > another child, she gets so upset and usually has to go to her room, then she > wants her binky, which I am only letting her have at nap time and night time and > usually taking out of her mouth. I know she doesn't have autism, she doesn't > have any repetitive behaviors her speech is right on, she can feed herself. > What is going on? Why now all of the sudden is this presenting itself. She is > always asking " What is that noise " I know part of the tantrums are her age, > but if someone even says a word she doesn't like that can start her crying. > Any ideas from anyone would be helpful. I am at my wits end. I just didn't > expect this. It seems worse since is out of school, she loves him and > always wants to kiss him goodnight, she is not scared of him, she just does not > like the noises he makes sometimes. Thanks Jen > **************New year...new news. Be the first to know what is making > headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 A very dear friend I worked with in the film industry - , was shot in the neck in NYC by " a child " who tried to rob him. He thankfully lived -but went through so much. Even when he was past all the life threatening aspects his healing was a nightmare as he told me it felt like " hot pins being stuck into his arms " due to sensory integration dysfunction. Once again I want to remind everyone that sensory integration dysfunction is not autism -and it's not a yeast infection either. Not to say that you can't have autism with sensory issues -or a yeast infection with sensory issues -but one does not mean the other. For sure 's issue with sensory issues had to due to injury -which is not uncommon for anyone who has for example head injury. So -if your daughter is showing signs of sensory integration dysfunction it may mean she may has sensory integration dysfunction. For the auditory aspect you can try therapeutic listening. http://www.sensory-processing-disorder.com/therapeutic-listening.html As the following Redbook article states -sensory issues do not mean one has bipolar disorder either. Sadly it's almost as if you visit a professional who is a camp for bipolar, autism, yeast -that's your diagnosis. Good thing there are some smart enough to go for second opinions! My son Tanner was diagnosed as having some form of autism by one psychologist here in Florida -same doctor who diagnosed Tanner as perhaps having some type of ADHD. Tanner has neither -and not only because no other professional diagnosed him with either or in any way agree with that one lone diagnosis. But because I know it's bogus. With today's autism however it's hard because in all honesty...what child couldn't be diagnosed with some form of autism?!!! As the following Redbook article states - " A mom's best parenting tip " " Forget what the books and experts say. The best mothering told out there is the one you've had all along' your intuition. Here's how to tune it to it. " Tune In to Your Mom Intuition Forget what the books and the experts say. The best mothering tool out there is the one you've had all along: your intuition. Here's how to tune in to it. Have you ever just " had a feeling " that your child needed you? Ever made a decision about your son or daughter that was based simply on a sensation that came from your gut? Of course you have. That's intuition — and a mother's brand of it can be very powerful. Yet as we've become a more information-based society, we have become less tuned in to — and less trustful of — our intuition. " We're so inundated with experts in books, magazines, and on TV that we no longer believe in ourselves, " says Michele Borba, Ed.D., the author of 12 Simple Secrets Real Moms Know. Plus, it can be tough to hear your intuition when the " noise " of modern life — cell phones, e-mail, demanding schedules — gets in the way. Many women describe mother's intuition literally as a feeling in their gut, arriving with little explanation — and all too often dismissed by others. Who hasn't had a doctor patronize your instinct about your daughter's rash, or a neighbor completely discount a theory you've advanced about your son's troubles at school? Well, here's some inspiration to help you keep trusting your gut: three women who followed their intuition and stuck to their guns to protect their children. Brout, 44, Rye Neck, NY " When my daughter, Lilly,* turned 2, I noticed that she was very sensitive. She would become hysterical about the smallest things — and I couldn't calm her down. Some people said she was just manipulative, implying there was something wrong with the way I was parenting her. But I knew that wasn't the problem. " As Lilly grew, her behavior didn't improve. Several times a week she would be set off by something, and there would be tears, tantrums, and flailing limbs. It would take all my wits and strength to calm her. Finally, when Lilly was 8 years old, we went to a well-known child psychiatrist, who diagnosed her with bipolar disorder. What the psychiatrist was saying was logical — Lilly was given to tremendous changes of mood, sometimes really happy and other times completely out of control. And yet I just didn't think that was the problem. 'Are you sure?' I asked the psychiatrist. She responded forcefully that she was certain Lilly had bipolar disorder. " Over the next few months, I felt uncomfortable with the diagnosis. The doctor kept changing the medications Lilly was taking, noting that it was common to have a few false starts. When nothing helped after a year, the psychiatrist told me that some people just don't respond to treatment and that my daughter was probably one of them. But in the meantime, I had noticed that what seemed to set Lilly off was noise: Loud sounds led to hours of crying; sudden ones jolted her in a way her brother and sister didn't seem to notice. I just knew her behavior had to do with noise. " I sat in the doctor's office with a knot in my stomach, ready to explain my noise theory. I felt as though she wouldn't believe me, but I also felt sure we were overlooking this connection. When I told the doctor that I thought Lilly had some kind of sensory disorder, she told me I was wrong. Even my husband backed up the doctor and said, 'We've got the best person giving us advice.' But I just knew she was off the mark. Still, I was sitting there yes-ing this doctor — it's hard to listen to your own instincts when everyone is telling you you're wrong. " At the time, I was pursuing a doctorate in psychology. In one of my courses, the professor mentioned Sensory Processing Disorder — a condition that occurs when signals from the senses are not organized correctly, making everyday tasks a challenge. The moment he described it, I thought, This is what Lilly has. It was the lightbulb that illuminated my intuition. I ultimately found an occupational therapist to properly diagnose Lilly with SPD. Through different types of therapy, Lilly's behavior began to improve. My daughter is now 14 and is successful both academically and socially. And I've learned to pay attention to my intuition and to not give up, even when everyone, including the experts, is telling me I'm wrong. " *Name has been changed. Beth Squier, 52, Stamford, CT " When my son, Levi, was about 18 months old, I decided to return to work and began looking for a day care for him. I called a government agency that registers home day cares, and there was one right in my neighborhood. I was thrilled because we could even walk to it. So I went to have a look-see. The kids seemed fine and happy, but something just wasn't right, and I couldn't put my finger on it. I had this nagging feeling that I wouldn't be making a good decision if I left my son there. I brought my mom back to look, and she said, 'Oh, it's fine.' But still, something about the place didn't sit right with me. I didn't know if I was just being a nervous first-time mother or what. It seemed crazy on the surface to eliminate this place based on a vague feeling that I couldn't really articulate. " After I told my friend, about my apprehensions, she volunteered to check out the place. When stopped by the day care unannounced one day, she found the caretaker walking her dog outside, leaving six toddlers alone in her house! Ultimately, I found another place for Levi, and from the minute I walked into it, I had no qualms at all about leaving him there. " Kellei , 33, Talent, OR " When my son, Pete, was almost 2, he suddenly started walking with a limp. The doctor thought he had an inner-ear infection that might be throwing off his equilibrium and suggested waiting a few days. Two days later, he was vomiting. The doctor thought Pete simply had a virus. But I disagreed; I said to my husband, 'Whatever is wrong with Pete is in his brain.' " As I said the words, I remembered that I had terrible recurring nightmares that Pete would go missing or even die. Today, I believe that these dreams were the beginning of my intuition speaking to me. Soon, a nagging little voice popped into my head, saying, 'That's not just an ear infection and a cold!' That voice wouldn't be silenced. So I brought Pete to the hospital, where he had a CT scan. My husband, Jeff, and I watched as Pete underwent testing, and I could tell right away the technicians didn't like what they saw. " We found out that Pete had a large mass in his brain. Within hours we were on our way by helicopter to a hospital in Portland, OR — 300 miles away. Pete was diagnosed with pineoblastoma, a very rare brain tumor. The doctors said that Pete would have to have extremely high doses of chemotherapy but that his developing brain was too young for radiation. They also told us it was too dangerous to remove the tumor. But I had a feeling that if Pete was going to have any chance at beating this, he would have to have this tumor removed. Instinctually, I knew I had to get him out of that hospital and find better care for him. There had to be a doctor who could remove that beast from Pete's head. " I knew I had a task at hand: Find a different doctor. I called, e-mailed, and sent records to surgeons all over the country that week. We connected with doctors at St. Jude Children's Research Hospital in Memphis, and the following Sunday we were on a plane to the only place that recognized how urgent our situation was. By the time we got to St. Jude, the tumor had more than doubled in size, but the surgeons were able to remove it. " Today, Pete is doing well, and my nightmares have stopped. If I hadn't listened to the voice that told me to find doctors who would remove his tumor, would not be alive. " Get physical. The body gives us a lot of information, says Marcia Emery, Ph.D., author of Dr. Marcia Emery's Intuition Workbook. Take note if making a decision causes your heart to race, your stomach to knot up, or your breath to shorten. These sensations could be telling you your decision is not right, says Emery. Unplug. At least once a day, remove yourself from the technology that rules your life. Just sit and listen to your mind, Emery suggests. You may become more aware of intuitive thoughts if you give yourself time to quietly reflect. " You have to get away from everyday distractions, because your intuitive mind is diverted when you're using your analytical mind, " she explains. Don't follow fear. Intuition is not fear-based, says Emery; it results in a confident sensation. If you tend to be anxious, then your " feeling " may not be intuition. " Ask yourself, How many times have I had this feeling and it's turned out to be nothing? " she says. " Intuition comes from your gut, not your mind. " Find this article at: http://www.redbookmag.com/kids-family/advice/mothers-intuition ===== Quote Link to comment Share on other sites More sharing options...
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