Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Thank you so much t for the reply. I wonder if the intensive years will ever end for us? To answer . the vocals for things he is really motivated for tend to stay but sometimes because his motivation is so unpredictable it is hard to stay with any one mand long enough to really intensely work on the vocals for less desired things. In terms of his social connectedness I have to say In this area we feel very blessed. Most often he is " with us " if you know what I mean, but certainly has times when he seems to somewhere else. (Lately he is a stim-machine) He has good eye contact, wants interaction and attention and likes to call his sister to come and run around and jump with him. He likes ring around the rosey and songs and lots of rough play. I'm taken back to the day we got the diagnosis and were told rather coldly that " He considers you nothing more than a piece of furniture. " Looking at him now I feel so lucky that he approaches us, calls us and his sister to him for attention and interaction, initiates hugs and kisses and loves to rough house and wrestle with us. Still he is deeply affected by the disorder and has far to go. He has upwards of 40 signs .. some stronger than others based on his motivation for foods, toys, actions, people, activities. They are clear although some of his signs are unique to him and adapted to his motor ability. We were lucky before we moved that we had a 40+ hour home program so I had some help . but as we lost funding, I was forced to step up and put in more time myself. After this, my mom passed away very suddenly in our home and I eventually began to feel the burn and subsequently he lost some skills. I'm really looking forward to him starting a school program because I know he needs to learn things that would be difficult to teach at home. I will supplement his school based program with a home program to keep his hours up . but I look forward to a less intense home environment for the sake of the whole family's sanity. Again, thank you so much for the response. Again, you are an inspiration. ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Whoever told you that your child sees you as nothing more than a piece of furniture should be tied to a large piece of furniture and thrown into a lake, as far as I'm concerned! At 08:28 PM 3/15/2005, and ann wrote: >Thank you so much t for the reply. I wonder if the intensive years >will ever end for us? To answer . the vocals for things he is really >motivated for tend to stay but sometimes because his motivation is so >unpredictable it is hard to stay with any one mand long enough to really >intensely work on the vocals for less desired things. In terms of his >social connectedness I have to say In this area we feel very blessed. Most >often he is " with us " if you know what I mean, but certainly has times when >he seems to somewhere else. (Lately he is a stim-machine) He has good eye >contact, wants interaction and attention and likes to call his sister to >come and run around and jump with him. He likes ring around the rosey and >songs and lots of rough play. I'm taken back to the day we got the >diagnosis and were told rather coldly that " He considers you nothing more >than a piece of furniture. " Looking at him now I feel so lucky that he >approaches us, calls us and his sister to him for attention and interaction, >initiates hugs and kisses and loves to rough house and wrestle with us. >Still he is deeply affected by the disorder and has far to go. He has >upwards of 40 signs .. some stronger than others based on his motivation for >foods, toys, actions, people, activities. They are clear although some of >his signs are unique to him and adapted to his motor ability. We were lucky >before we moved that we had a 40+ hour home program so I had some help . but >as we lost funding, I was forced to step up and put in more time myself. >After this, my mom passed away very suddenly in our home and I eventually >began to feel the burn and subsequently he lost some skills. I'm really >looking forward to him starting a school program because I know he needs to >learn things that would be difficult to teach at home. I will supplement >his school based program with a home program to keep his hours up . but I >look forward to a less intense home environment for the sake of the whole >family's sanity. Again, thank you so much for the response. Again, you are >an inspiration. > >ann > > > > > > > >List moderators: Jenn - ABAqueen1@... > Steph - Stephhulshof@... > >Post message: >Subscribe: -subscribe >Unsubscribe: -unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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