Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Hello, and welcome to our group. My name is Cyndie, and I live near Seattle. Yes, you are in the right place. I have had fibromyalgia for over 17 years, and up until 2000, I didn't even have a diagnosis. If you can stand it, allow me to offer a couple words of advice: 1.. By all means, do some research at the library or on the web. Learn all you can about this condition. Just be aware that our disease is not always highly embraced by some in the medical community or society in general, and these folks also have websites. If you find yourself reading something that makes you feel bad about yourself, stop. There are also lots of people who try to take advantage of us with expensive " cures, " and treatments. Use your good sense, okay? Take a look at the files for this group, there are lots of reputable sites. I recommend some of the more scientific sites, like the mayo clinic, or immune support .com, for up to the minute, less-bias research and info. 2.. I pray for your good luck in finding a doctor who is willing to treat you for fms, when I know that you are struggling to afford a doctor at all. When it comes to chronic pain and fibro, not all doctors are created equal. You are probably better off not seeing a doctor than seeing one who doesn't believe in fms, and doesn't believe that you are suffering. The key is to do some studying first, then call around to the doctors and clinics in your area. Ask them if they diagnose and treat fms. The receptionist will almost always know, and tell you in no uncertain terms! 3.. Take care of yourself. You know what hurts and helps. Be strong in the face of doubters and those who disbelieve or belittle you. Do what you can when you can, and learn to say no gracefully. 4.. Keep in touch with others like us who can give you 100% support and validation when you need it. Quote Link to comment Share on other sites More sharing options...
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