Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Thank you for sharing your story with the group. There was an ongoing class action lawsuit I believe a couple yrs back vs BCBS/IL about denial for a DOCband. I think it is still ongoing? Does anyone know whatever became of it? I'm happy your son rec'd such great correction frm his band! You sound like you're up for the ins. fight, you'll need to be, but persistence often pays off & I hope it will for you! Debbie Abby's mom DOCGrad MI > I have been here for awhile, and posted a few times, and have been > asked by a couple of you to let you know who I am, so here goes... > My son ( ) wore a Starband for 4 months starting at 8 months > old. (He is now almost 15 months) We saw great correction, (though to > the plagio police : ) , you would still see we did not correct > 100%). We were very happy with the results, the before and after are > remarkable. He adjusted great to the helmet, never a bit of > trouble....I was worried about him getting used to it, and sleeping > in at the first few times, but it was needless worry.....He was also > diagnosed with Macrocephaly (for him that meant a larger than normal > head size with out complications) Our pediatricians had been > watching his head size and shape, we tried the repositioning, (with > no luck, things just kept getting worse) At four months his head size > had gone from the 80% for size to the 95% for size. At six months > his asymmetry had gotten even worse, and his head circumference had > increased slightly. They ordered a Ct scan, the results of which > were borderline, (Our son also sufferes from bilateral Grade 5 > hydronephrosis and reflux and there were some syndromes ect...that > can present with kidny problems, so we were referred to a > neurosurgeon at that time) He ordered an MRI, and then prescribed > the Starband. We never hesitated about his treatment (though the > idea of more medical tests and things for was more than a bit > overwhelming at times!!) We opted for treatment based on medical > needs, not for cosmetic purposes, and I HATE that the insurance tries > to say otherwise!!! (Sorry for venting!!) > I stumbled upon this site looking for insurance info....you'll all be > very familiar with the round and round I am having with our insurance > carrier (BC/BS of ILL). I am hoping to get a reversal of their > denial, but am afraid I won't be very successful. They have given me > very specific info to include, (I'll put that in a separate post > later)and my doctors are all wonderful in their willingness to help > me, so I'm keeping my fingers crossed..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 -Welcome to the group and thanks for sharing 's story. I am so glad he received such wonderful correction! Good luck with your insurance appeal. I tihnk it is crazy that companies are not paying. We had a head remolding device exclusion in our policy. Angie and Jenna(STARband grad 1/21/03)In Plagiocephaly , " mrsandyba " <carinbassett@e...> wrote: > I have been here for awhile, and posted a few times, and have been > asked by a couple of you to let you know who I am, so here goes... > My son ( ) wore a Starband for 4 months starting at 8 months > old. (He is now almost 15 months) We saw great correction, (though to > the plagio police : ) , you would still see we did not correct > 100%). We were very happy with the results, the before and after are > remarkable. He adjusted great to the helmet, never a bit of > trouble....I was worried about him getting used to it, and sleeping > in at the first few times, but it was needless worry.....He was also > diagnosed with Macrocephaly (for him that meant a larger than normal > head size with out complications) Our pediatricians had been > watching his head size and shape, we tried the repositioning, (with > no luck, things just kept getting worse) At four months his head size > had gone from the 80% for size to the 95% for size. At six months > his asymmetry had gotten even worse, and his head circumference had > increased slightly. They ordered a Ct scan, the results of which > were borderline, (Our son also sufferes from bilateral Grade 5 > hydronephrosis and reflux and there were some syndromes ect...that > can present with kidny problems, so we were referred to a > neurosurgeon at that time) He ordered an MRI, and then prescribed > the Starband. We never hesitated about his treatment (though the > idea of more medical tests and things for was more than a bit > overwhelming at times!!) We opted for treatment based on medical > needs, not for cosmetic purposes, and I HATE that the insurance tries > to say otherwise!!! (Sorry for venting!!) > I stumbled upon this site looking for insurance info....you'll all be > very familiar with the round and round I am having with our insurance > carrier (BC/BS of ILL). I am hoping to get a reversal of their > denial, but am afraid I won't be very successful. They have given me > very specific info to include, (I'll put that in a separate post > later)and my doctors are all wonderful in their willingness to help > me, so I'm keeping my fingers crossed..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Thanks for sharing your story with us. I'm so happy to hear your son received such great correction from his STARband. If you have any before and after pictures, I'd love to see them. Maybe you could post them in the B & A folder in the photos section? --- In Plagiocephaly , " mrsandyba " <carinbassett@e...> wrote: > I have been here for awhile, and posted a few times, and have been > asked by a couple of you to let you know who I am, so here goes... > My son ( ) wore a Starband for 4 months starting at 8 months > old. (He is now almost 15 months) We saw great correction, (though to > the plagio police : ) , you would still see we did not correct > 100%). We were very happy with the results, the before and after are > remarkable. He adjusted great to the helmet, never a bit of > trouble....I was worried about him getting used to it, and sleeping > in at the first few times, but it was needless worry.....He was also > diagnosed with Macrocephaly (for him that meant a larger than normal > head size with out complications) Our pediatricians had been > watching his head size and shape, we tried the repositioning, (with > no luck, things just kept getting worse) At four months his head size > had gone from the 80% for size to the 95% for size. At six months > his asymmetry had gotten even worse, and his head circumference had > increased slightly. They ordered a Ct scan, the results of which > were borderline, (Our son also sufferes from bilateral Grade 5 > hydronephrosis and reflux and there were some syndromes ect...that > can present with kidny problems, so we were referred to a > neurosurgeon at that time) He ordered an MRI, and then prescribed > the Starband. We never hesitated about his treatment (though the > idea of more medical tests and things for was more than a bit > overwhelming at times!!) We opted for treatment based on medical > needs, not for cosmetic purposes, and I HATE that the insurance tries > to say otherwise!!! (Sorry for venting!!) > I stumbled upon this site looking for insurance info....you'll all be > very familiar with the round and round I am having with our insurance > carrier (BC/BS of ILL). I am hoping to get a reversal of their > denial, but am afraid I won't be very successful. They have given me > very specific info to include, (I'll put that in a separate post > later)and my doctors are all wonderful in their willingness to help > me, so I'm keeping my fingers crossed..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Good luck with your insurance! Sometimes dealing with them is the worst part of the whole process! and /DOC/10-7-03 @10mos./Warrington, PAmrsandyba <carinbassett@...> wrote: I have been here for awhile, and posted a few times, and have been asked by a couple of you to let you know who I am, so here goes...My son ( ) wore a Starband for 4 months starting at 8 months old. (He is now almost 15 months) We saw great correction, (though to the plagio police : ) , you would still see we did not correct 100%). We were very happy with the results, the before and after are remarkable. He adjusted great to the helmet, never a bit of trouble....I was worried about him getting used to it, and sleeping in at the first few times, but it was needless worry.....He was also diagnosed with Macrocephaly (for him that meant a larger than normal head size with out complications) Our pediatricians had been watching his head size and shape, we tried the repositioning, (with no luck, things just kept getting worse) At four months his head size had gone from the 80% for size to the 95% for size. At six months his asymmetry had gotten even worse, and his head circumference had increased slightly. They ordered a Ct scan, the results of which were borderline, (Our son also sufferes from bilateral Grade 5 hydronephrosis and reflux and there were some syndromes ect...that can present with kidny problems, so we were referred to a neurosurgeon at that time) He ordered an MRI, and then prescribed the Starband. We never hesitated about his treatment (though the idea of more medical tests and things for was more than a bit overwhelming at times!!) We opted for treatment based on medical needs, not for cosmetic purposes, and I HATE that the insurance tries to say otherwise!!! (Sorry for venting!!)I stumbled upon this site looking for insurance info....you'll all be very familiar with the round and round I am having with our insurance carrier (BC/BS of ILL). I am hoping to get a reversal of their denial, but am afraid I won't be very successful. They have given me very specific info to include, (I'll put that in a separate post later)and my doctors are all wonderful in their willingness to help me, so I'm keeping my fingers crossed.....For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Click here: The Joplin Globe - Online Edition this is the story of my family's struggles that we have faced over the past year in addition to living with 3 children under the age of 5 with autism...so glad we finally got the story out to the public....feel free to post a comment at the end of the story....would me a lot to my husband and me....thanks in Missouri Quote Link to comment Share on other sites More sharing options...
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