Re: OI/Lying down-Toni Marshall

[Guest guest]

I am greateful for your posted email.

You've renewed my sense of " able " instead of DIS-abled

Do you have other illness? I understand what goes with cfs but have not heard

the term orthostatic intolerance.

Yes I have a certain time of the day my body starts shutting down and I have to

rest. Originally I thought this was due to

the hypoglycemia I have, but now I'm not sure.

There are so many many things wrong with me, there are days when it just doesn't

matter.

Again, Thank You Toni for your post.

----- Original Message -----

From: Toni Marshall

Yes, . I use my recliner as a tool for treatment of Orthostatic

Intolerance since it literally means my body cannot " tolerate " the

upright position, neither standing nor sitting. Being either / and

still and upright causes bizarre heart rate and blood pressure

anomalies. A recliner allows me to lie back all day without feeling

like I'm in bed all day. Lying in bed is different than reclining.

Yes, your friends are correct about resting so much causing

deconditioning leading to more physical problems including

dehydration. But what is an OI person to do?

We do The best we can.