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Thank you for letting me join. This is only my 2nd Yahoo group

experience so please bear with my novice. I put my mail on digest

and tried to read some of the posts today to become comfortable with

the group. It's good to see all the networking here. I just wish we

were all networking for a different reason. My situation is .. I'm

47, average height and weight. I'm cervically fused at C4-5 ( 1996 )

and C5-6 ( 2000 ).No hardware. My grafts failed causing my spine to

become 55 degrees malaligned. I haven't worked since 2001 and am

presently on SS and Pennsylvania comp. We moved to Florida last

March and I cannot get anyone, let alone an orhto surgeon to take my

out of state comp. I have had some nasty symptoms that have

increased since last fall. In November I had been referred to a TMJ

specialist because my jaw had begun to bother me considerably. I had

an MRI and turned up with a badly dislocated jaw both sides with no

recapture and tears. We're working with a splint to try to heal it

conservatively. The headaches, earaches and dizziness are awful. The

dentist suggested I follow up with a rheumatologist who gave me a

fibro/chronic fatigue diagnosis. This seems to fit very well. As I

was researching my new symptoms regarding my spine I found the jaw

link to the C spine. My periodontist confirmed this as their has

never been a TMJ problem until this past fall when my upper back

pain increased, arms got heavy, spasms and more. My gait is affected

some days. I've lost a lot of dexterity both sides. I've been taking

Darvocet X 4 for pain and Xanax for anxiety/panic. The xanax I've

been on and off for years for panic. The amount goes up and down.

I'm very med sensitive and can't take any of the ssri's. Before I

type war and peace the biggest problem I have is getting a good

orthopedic surgeon in the Tampa area who will take the out of state

comp. If anyone has someone to suggest it would be very deeply

appreciated. My days are pill to pill, nap to nap and constant

moderate to severe pain. From reading the posts here it looks like

many of you have dealt with this and much worse. Please pardon my

whine. I can't type any more as my headache is too bad and my

fingers hurt too much. I'll log on tomorrow. Goodnight to you all

and thank you.

Patsy

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Hi Patsy,

Welcome, My name is Fabian, I to have had C spine fusion. I had C4-5

and C5-6 fussed six months ago. and need C6-7 done. I have a plate

which the DR. put in crooked, and to low. It is hitting on C 6-7 and

causing me a lot of pain. I had WC in Montana and moved to

Mississippi. I lucky and had no trouble finding a DR. here in Ms. to

take my out of state WC. I think your best bet would be do like I

did and call Dr.s from your phone book. Surely one of them will take

it. I just pray it is a good one. If I can ever help you. if you

just need to talk please feel free to e-mail me.

Good luck, and god bless,

Fabian gabby196@...

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Hi Fabian,

Thank you for you're response and offer of help. I have chosen

litigation attorney's offices for references as attorneys seem to

know who's who, good & bad. I've had some wonderful accredited

doctors to present to but no luck on accepting the comp. I won't

stop trying. I will be flying north to see my orthopedic surgeon

next month and have many questions for him. Last night I had what I

believe was my first migraine and all I can say is bless the poor

people who suffer with those. Today I'm bad but better than

yesterday. I've also treated myself to an extra darvo today. I'm

very frugal with them but I believe this called for it. I wish you

luck and many " good " days. We all have to keep trying and when we

are frustrated, take a day to regroup and try again.

My best to you,

Patsy

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Hi Patsy,

There is a world renowned Pain specialist in Vero Beach, Florida.

his web site is...Http;//www.rsdrx.com

I believe he could help you and probably has a group of physicians

that he works with.

Good luck and God Bless,

Daphne

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Just a little FYI here.....really check this Doctor out first...and I mean

REALLY! Talk to others that have gone to this dr., the works....

I've been online for 3 years now, and have talked to A LOT of people that have

gone to this Doctor.....and, well.....I'd say that 98% of them would definately

NEVER go back to him again. Especially since the first appointment costs you

$5000. And, even if you have an appt, lets say at 1 pm on a Tuesday....you can

sit there all day, and when the office closes, they'll tell you that you'll have

to make another appt, which won't be for another 3-4 months.

This is just what I've actually heard from People who's gone to see him already.

So....Check him out really good first please....for your own safety.

Tonia

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