New to group

[Guest guest]

Hi Tracey,

Welcome to our group. I hope you will find the same compassion and

thoughtfulness as well as the wealth of information from our members that I

have found. I have been a member for many years.

As for " getting well " , here are some of my thoughts.

Just the diagnosis of chronic pain in it's self means this is for the

duration for me. I have had pain for well over 3/4 of my life now. It will

never go away. In my way of thinking that means that getting well or the

pain going away will not happen for me.

Being " well " for me is a state of mind. My pain will change from day to day

but will always be there, but my state of mind is in my control. Some days

are better than others for both my mind and pain. The medication I use to

help combat the pain helps me to live as normal a life as I'm able to.

Without medication I wouldn't be able to function as I do now.

So for me " wellness " isn't about my body but how I look at my life.

You are lucky that the medication you use works as well as it does.

Why is it that it will run out? Is it your decision to not refill it? Many

of us go off our medication to give our bodies a rest and also to see how new

medications will affect us. I hope that you don't rule out the use of

medications in the future if you need them. There are many different means

of releiving pain and massage is one I use also. I'm looking at going to a

new accupuncturist next week and hope for good results.

Again welcome!

Kathleen in Calif.

[Guest guest]

I would like to say hi. My name is . I haven't posted

because I'm not sure where I should be. I have Fibromyalgia and

Cfids. Along with RT3 and adrenal issues.

I have 3.5 times as much RT3 as T3. I also have adrenal fatigue

(aldosterone) which my previous doctor missed because all she was

looking at was my cortisol levels. I am 4 months into treatment and

on 120mg Armour, .1mg of Florinef and several supplements. Just now

starting to feel little better.

I do have a question. My doctor says that the thyroid can be

retrained in some cases to make the correct amounts of T3 after being

on Armour for a year or more. Anyone heard that before?

I had new tests run this week to check all levels again and to see if

I might need support for cortisol levels now.

Overall, I really like my doctor. She is very open to trying anything

that might help. She has adjusted my armour upon request. We'll see

how she reacts to the new test results.

Thanks for letting me lurk. I have learned a lot.

[Guest guest]

Who is your doctor?

>> I would like to say hi. My name is . I haven't posted> because I'm not sure where I should be. I have Fibromyalgia and> Cfids. Along with RT3 and adrenal issues. > > I have 3.5 times as much RT3 as T3. I also have adrenal fatigue> (aldosterone) which my previous doctor missed because all she was> looking at was my cortisol levels. I am 4 months into treatment and> on 120mg Armour, .1mg of Florinef and several supplements. Just now> starting to feel little better. > > I do have a question. My doctor says that the thyroid can be> retrained in some cases to make the correct amounts of T3 after being> on Armour for a year or more. Anyone heard that before?> > I had new tests run this week to check all levels again and to see if> I might need support for cortisol levels now.> > Overall, I really like my doctor. She is very open to trying anything> that might help. She has adjusted my armour upon request. We'll see> how she reacts to the new test results.> > Thanks for letting me lurk. I have learned a lot.>

[Guest guest]

Welcome .

Kim

From:

Texas_Thyroid_Groups

[mailto:Texas_Thyroid_Groups ] On

Behalf Of jalexander_aguirre

Sent: Saturday, January 10, 2009

11:57 AM

To:

Texas_Thyroid_Groups

Subject:

New to group

I would like to say hi. My name is . I haven't

posted

because I'm not sure where I should be. I have Fibromyalgia and

Cfids. Along with RT3 and adrenal issues.

I have 3.5 times as much RT3 as T3. I also have adrenal fatigue

(aldosterone) which my previous doctor missed because all she was

looking at was my cortisol levels. I am 4 months into treatment and

on 120mg Armour, .1mg of Florinef and several supplements. Just now

starting to feel little better.

I do have a question. My doctor says that the thyroid can be

retrained in some cases to make the correct amounts of T3 after being

on Armour for a year or more. Anyone heard that before?

I had new tests run this week to check all levels again and to see if

I might need support for cortisol levels now.

Overall, I really like my doctor. She is very open to trying anything

that might help. She has adjusted my armour upon request. We'll see

how she reacts to the new test results.

Thanks for letting me lurk. I have learned a lot.

[Guest guest]

,

I am so sorry to hear how the last two

months of your life has been spent worrying about your family and now yourself

too. I had my thyroid removed in November 2007. My family has a

history of thyroid problems for years too. A good website to visit that addresses

thyroid problems in laymans terms is Dr. Andres R Rosendahl’s. It

is: www.thyroidcancer.com

Dr. Rosendahl was so wonderful before and during my surgery. I was able

to call and ask him so many questions before and afterwards. His website

should help give you some peace.

Another great website is the New York Thyroid Center.

It has a list of questions to ask a surgeon. It is: http://cpmcnet.columbia.edu/dept/thyroid/index.html

There is an endocrinologist here in the Denton area that uses Thyrogen

before and during RAI so that you do not have to go through “hypo hell”

during the whole process. Let me know if you need it and I’ll get

you his name. I had an almost 3 year old and 17 month old when I had my

thyroid removed and knew that if it was papillary or follicular I would live,

live, live to watch them grow up. I was prepared for RAI too and know

that scans/blood work/suppressed TSH over the years should keep me around for a

very long time.

You are such a wise woman to have yourself

and the rest of your family checked. Thyroid cancer for the most part is

very treatable it’s just the snafu afterwards of finding that magic thyroid

hormone dosage that gets you back to feeling great. It has taken me just

over a year to get my thyroid levels and that part of my body back were it

should be. I’ve got some work to do in regards to my adrenals but I

am starting to see the light at the end of the tunnel.

Things I learned after my TT:

Get lab work done at the 4 week mark so

you don’t go hypo.

Call Doctor’s office at the first

sign of hypothyroid symptoms

Use not only Vitamin E on scar but

sunscreen too.

Keep on top of Calcium levels.

Look into Armour. I was on T4 only

before and just after, felt best on combo of Armour and Synthroid

Allow for two weeks to recover. (I

took a train trip on day 10, opps over did it).

I will keep you and your family in my

prayers. Let me know if you have any other questions,

Penny

From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of dogsbestfriend27

Sent: Monday, February 16, 2009

5:41 PM

To: Texas_Thyroid_Groups

Subject:

New to Group

Hi, my name is . In Dec. 08, my son called and

said that he has

thyroid cancer. He is 31 years old. He had a 9cm mass and has had

his thyroid removed, did the radiation treatment, then the scan. They

said that he was stage 1, papillary and follicular.

I am not understanding any of the terms. It's like a foreign language

to me. I am worried about him.

In the 80's the doctor found a nodule in my thyroid. It was biopsied

and found that it was benign. Said that if it ever bothered me, to

let him know. I have hardly had any doctor feel my neck on a routine

yearly exam. So thought I better go and see if it has gotten bigger.

My doctor sent me to have an ultrasound done. I go see my doctor on

Feb. 3, and she said that they found more. Two on the right side, 1.3

and 1.5 cm. One those came back as cancer. On the left side they see

multiples, but really little. It's the papillary.

I am scheduled for surgery on Feb. 27th. The Dr. was able to

get me in sooner than April as originally planned. Hmmm, maybe it was

the Texas Aggie shirt I was wearing!

I am scared. I am afraid to break down. The receptionist at his

office said this is why they are going to do it this month to ease my

mind about it. I think this is why I want to sleep alot right now.

It's not that I am really tired.

I don't know what questions to ask, and the more I read on the

internet, and the yahoogroup makes me more scared about it. I just

want it to go away.

My reg. doctor said that my thyroid count was 5.280. It was like 5.6

back in June, but no one said to have it rechecked. So anyway, I am

on the synthroid-50cgm. Been on it for almost 5 weeks now.

Now my mom has gotten her ultrasound and they have found nodules, and

she sees another doctor later this week. My daughter will be having

hers checked by ultrasound too soon.

I don't even know what stage it is. I forgot to ask him when I saw

him last week. Or do they tell you after surgery?

I train dogs for a living, so hopefully this will not slow me down. I

know I have to take it easy after surgery for maybe a week? I am

trying to schedule everyone in before next weeks surgery. I have a

busy week of.

ville, TX

[Guest guest]

Penny, thank you so much for your reply. I bookmarked the links and

tomorrow I will look at them. I am so tempted now, but it would mean

staying up all night reading it!

With every ache or pain, weird anything, I am so afraid that the

cancer is all over my body. I don't know how long it takes for

something to grow to be 1.5cm. I have lots of reading to do in such

short time!

I have Dr. Bradley MD and Dr. Braumhall is going to be

with him when they do the surgery. Then they said that I will see Dr.

Hawk. Does anyone know of them? My reg. doctor referred me to them.

ville, TX

[Guest guest]

1.5 cm is not a huge nodule. And hypothyroidism often causes aches and pains. With a TSH around 5, you have probably been hypothyroid for some time.

I will send an inquiry about the docs to whom you have been referred.

>> Penny, thank you so much for your reply. I bookmarked the links and> tomorrow I will look at them. I am so tempted now, but it would mean> staying up all night reading it! > > With every ache or pain, weird anything, I am so afraid that the> cancer is all over my body. I don't know how long it takes for> something to grow to be 1.5cm. I have lots of reading to do in such> short time!> > I have Dr. Bradley MD and Dr. Braumhall is going to be> with him when they do the surgery. Then they said that I will see Dr.> Hawk. Does anyone know of them? My reg. doctor referred me to them. > > > ville, TX>

[Guest guest]

I am going to be such a basket case by the time I have surgery. Mom

is on her way to Plano to see a doctor. My daughter is a RN, so she

will be asking questions.

> >

> > Penny, thank you so much for your reply. I bookmarked the links and

> > tomorrow I will look at them. I am so tempted now, but it would mean

> > staying up all night reading it!

> >

> > With every ache or pain, weird anything, I am so afraid that the

> > cancer is all over my body. I don't know how long it takes for

> > something to grow to be 1.5cm. I have lots of reading to do in such

> > short time!

> >

> > I have Dr. Bradley MD and Dr. Braumhall is going to be

> > with him when they do the surgery. Then they said that I will see Dr.

> > Hawk. Does anyone know of them? My reg. doctor referred me to them.

> >

> >

> > ville, TX

> >

>

[Guest guest]

Dear - Just sending hugs your way. Hope you are feeling better today.

-karla

> > >

> > > Penny, thank you so much for your reply. I bookmarked the links and

> > > tomorrow I will look at them. I am so tempted now, but it would mean

> > > staying up all night reading it!

> > >

> > > With every ache or pain, weird anything, I am so afraid that the

> > > cancer is all over my body. I don't know how long it takes for

> > > something to grow to be 1.5cm. I have lots of reading to do in such

> > > short time!

> > >

> > > I have Dr. Bradley MD and Dr. Braumhall is going to be

> > > with him when they do the surgery. Then they said that I will see Dr.

> > > Hawk. Does anyone know of them? My reg. doctor referred me to them.

> > >

> > >

> > > ville, TX

> > >

> >

>

[Guest guest]

Thanks Karla....All of this is so much to learn, son not asking

questions as much as I want is frustrating. Mom is at the doctor's

office now about her thyroid. I don't know how good my doctors are.

One has only done it for less than 2 years.

> > > >

> > > > Penny, thank you so much for your reply. I bookmarked the

links and

> > > > tomorrow I will look at them. I am so tempted now, but it

would mean

> > > > staying up all night reading it!

> > > >

> > > > With every ache or pain, weird anything, I am so afraid that the

> > > > cancer is all over my body. I don't know how long it takes for

> > > > something to grow to be 1.5cm. I have lots of reading to do in

such

> > > > short time!

> > > >

> > > > I have Dr. Bradley MD and Dr. Braumhall is going

to be

> > > > with him when they do the surgery. Then they said that I will

see Dr.

> > > > Hawk. Does anyone know of them? My reg. doctor referred me to

them.

> > > >

> > > >

> > > > ville, TX

> > > >

> > >

> >

>