You can whine at us Gail anytime!

[Guest guest]

A major part of the support of this group is exactly for what you

did! You called it whining but it is really venting the

frustrations and anger you feel about how poorly you feel and how

ready you are to have your energy and your life back again. Bully

for you for sharing this with us! We all take turned stepping up to

this podium and it feel so good to have people about you who listen

and most importantly understand what you are going though.

What I would like to hear more about and which would give us all

healing hope is the success stories. Someone brag to me about how

great you feel now with successful treatment. We have plenty

of " before " and current distress tales... I'd like to be motivated

by someone sharing their regaining of the zest for life, growing

back hair and eyebrows, going back to their ideal weight and staying

there, their libido driving up with their sex drive and parking in

their driveway again, and not having to fight with their doctors to

be and stay well. I too think it can and will happen for me someday

but it doesn't hurt to share this glee until it is my turn to

motivate someone else with my success story of having too much

energy, and not being as cold as a popsicle all the time.

Anyone motivate me PLEASE!

[Guest guest]

Well, I can't motivate you 100% because I am only one year into adequate treatment but I DO feel better. My energy level is higher, I sometimes am in the mood for sex, I seem to have these short hairs growing in at my hairline on my forehead, my eyebrows have to be plucked more, I have just dropped 30 lbs (40 more to go) over the last 4 months and my ferritin is finally above 50. Dr. R said I would be able to tell a difference in a year but it would take 3-5 years to be " normal " again and we all know what a struggle it is to sustain " normal. " What I believe is holding me back from being and feeling even better is my endometriosis. I am in significant pain, nauseau, fatigue...am having complete hysterectomy Jan. 29th..can't wait. My hope is that once I have healed from this surgery (and there may be a setback with thyroid) is that I will know what I am dealing with and be able to move forward and get better even faster. I can't wait!

And, I owe so much of my recovery to you guys

A major part of the support of this group is exactly for what youdid! You called it whining but it is really venting the

frustrations and anger you feel about how poorly you feel and howready you are to have your energy and your life back again. Bullyfor you for sharing this with us! We all take turned stepping up tothis podium and it feel so good to have people about you who listen

and most importantly understand what you are going though.What I would like to hear more about and which would give us allhealing hope is the success stories. Someone brag to me about howgreat you feel now with successful treatment. We have plenty

of " before " and current distress tales... I'd like to be motivatedby someone sharing their regaining of the zest for life, growingback hair and eyebrows, going back to their ideal weight and staying

there, their libido driving up with their sex drive and parking intheir driveway again, and not having to fight with their doctors tobe and stay well. I too think it can and will happen for me somedaybut it doesn't hurt to share this glee until it is my turn to

motivate someone else with my success story of having too muchenergy, and not being as cold as a popsicle all the time.Anyone motivate me PLEASE!------------------------------------

[Guest guest]

Wow... 3-5 years? OK, I'm not gonna freak out... but I'd also really

love to hear some success stories. I actually felt pretty good for a

few months and had lost 15 lbs. until my thyroid suddenly went wonky

this past fall.

Thanks, so much for listening & being there. I was intensely

frustrated yesterday and it helped so much to be able to post here &

know you guys get it. My husband was asking why wouldn't a dr. just

sort of triangulate--up the dose until some hyper symptoms appear then

back off a bit and I explained why I thought that wasn't done--because

the risks of being hyper (bone loss, heart stress, etc.) are more

solid and documentable legal liabilities for the doctors while our

chronic depression, fatigue, weight gain, etc., can more easily be

written off to other things (and as long as we're chronically tired,

we're less likely to make a fuss), so that's why I think Drs' so

regularly undertreat and it makes me so angry. But it helps to know

y'all understand.

Gail

>

> Well, I can't motivate you 100% because I am only one year into adequate

> treatment but I DO feel better. My energy level is higher, I

sometimes am

> in the mood for sex, I seem to have these short hairs growing in at my

> hairline on my forehead, my eyebrows have to be plucked more, I have

just

> dropped 30 lbs (40 more to go) over the last 4 months and my ferritin is

> finally above 50. Dr. R said I would be able to tell a difference

in a year

> but it would take 3-5 years to be " normal " again and we all know what a

> struggle it is to sustain " normal. " What I believe is holding me

back from

> being and feeling even better is my endometriosis. I am in significant

> pain, nauseau, fatigue...am having complete hysterectomy Jan.

29th..can't

> wait. My hope is that once I have healed from this surgery (and

there may

> be a setback with thyroid) is that I will know what I am dealing

with and be

> able to move forward and get better even faster. I can't wait!

>

> And, I owe so much of my recovery to you guys

>

[Guest guest]

Have you had your female hormones checked out? Progesterone??? I would

research that out before I did surgery, but that is just me.

Kate

At 03:28 PM 1/8/2009, you wrote:

>Well, I can't motivate you 100% because I am only one year into adequate

>treatment but I DO feel better. My energy level is higher, I sometimes am

>in the mood for sex, I seem to have these short hairs growing in at my

>hairline on my forehead, my eyebrows have to be plucked more, I have just

>dropped 30 lbs (40 more to go) over the last 4 months and my ferritin is

>finally above 50. Dr. R said I would be able to tell a difference in a

>year but it would take 3-5 years to be " normal " again and we all know what

>a struggle it is to sustain " normal. " What I believe is holding me back

>from being and feeling even better is my endometriosis. I am in

>significant pain, nauseau, fatigue...am having complete hysterectomy Jan.

>29th..can't wait. My hope is that once I have healed from this surgery

>(and there may be a setback with thyroid) is that I will know what I am

>dealing with and be able to move forward and get better even faster. I

>can't wait!

>

>And, I owe so much of my recovery to you guys

>

>

>On Thu, Jan 8, 2009 at 1:23 PM, mojestic1

> wrote:

>A major part of the support of this group is exactly for what you

>did! You called it whining but it is really venting the

>frustrations and anger you feel about how poorly you feel and how

>ready you are to have your energy and your life back again. Bully

>for you for sharing this with us! We all take turned stepping up to

>this podium and it feel so good to have people about you who listen

>and most importantly understand what you are going though.

>

>What I would like to hear more about and which would give us all

>healing hope is the success stories. Someone brag to me about how

>great you feel now with successful treatment. We have plenty

>of " before " and current distress tales... I'd like to be motivated

>by someone sharing their regaining of the zest for life, growing

>back hair and eyebrows, going back to their ideal weight and staying

>there, their libido driving up with their sex drive and parking in

>their driveway again, and not having to fight with their doctors to

>be and stay well. I too think it can and will happen for me someday

>but it doesn't hurt to share this glee until it is my turn to

>motivate someone else with my success story of having too much

>energy, and not being as cold as a popsicle all the time.

>Anyone motivate me PLEASE!

>

>

>------------------------------------

>

>

[Guest guest]

There are some docs who adjust the dose in exactly the manner you suggest. I can think of still another who would start you at a higher dose. I can email that info to you.

The only hope for you may be my favorite surgery: a radical doctor-ectomy! Cut him off right where it will hurt him the most, yes, right where his manhood lies: in his wallet!

>> Wow... 3-5 years? OK, I'm not gonna freak out... but I'd also really> love to hear some success stories. I actually felt pretty good for a> few months and had lost 15 lbs. until my thyroid suddenly went wonky> this past fall.> > Thanks, so much for listening & being there. I was intensely> frustrated yesterday and it helped so much to be able to post here & > know you guys get it. My husband was asking why wouldn't a dr. just> sort of triangulate--up the dose until some hyper symptoms appear then> back off a bit and I explained why I thought that wasn't done--because> the risks of being hyper (bone loss, heart stress, etc.) are more> solid and documentable legal liabilities for the doctors while our> chronic depression, fatigue, weight gain, etc., can more easily be> written off to other things (and as long as we're chronically tired,> we're less likely to make a fuss), so that's why I think Drs' so> regularly undertreat and it makes me so angry. But it helps to know> y'all understand.> > Gail

[Guest guest]

Of course...Dr. R is very thorough. I have had endometriosis for over 20 years...many years of living it and researching it. It is just time as it has now grown all over my intestines, kidneys, etc.

Have you had your female hormones checked out? Progesterone??? I wouldresearch that out before I did surgery, but that is just me.

Kate

At 03:28 PM 1/8/2009, you wrote:>Well, I can't motivate you 100% because I am only one year into adequate>treatment but I DO feel better. My energy level is higher, I sometimes am

>in the mood for sex, I seem to have these short hairs growing in at my>hairline on my forehead, my eyebrows have to be plucked more, I have just>dropped 30 lbs (40 more to go) over the last 4 months and my ferritin is

>finally above 50. Dr. R said I would be able to tell a difference in a>year but it would take 3-5 years to be " normal " again and we all know what>a struggle it is to sustain " normal. " What I believe is holding me back

>from being and feeling even better is my endometriosis. I am in>significant pain, nauseau, fatigue...am having complete hysterectomy Jan.>29th..can't wait. My hope is that once I have healed from this surgery

>(and there may be a setback with thyroid) is that I will know what I am>dealing with and be able to move forward and get better even faster. I>can't wait!>>And, I owe so much of my recovery to you guys

>>>On Thu, Jan 8, 2009 at 1:23 PM, mojestic1

> wrote:>A major part of the support of this group is exactly for what you

>did! You called it whining but it is really venting the>frustrations and anger you feel about how poorly you feel and how>ready you are to have your energy and your life back again. Bully>for you for sharing this with us! We all take turned stepping up to

>this podium and it feel so good to have people about you who listen>and most importantly understand what you are going though.>>What I would like to hear more about and which would give us all

>healing hope is the success stories. Someone brag to me about how>great you feel now with successful treatment. We have plenty>of " before " and current distress tales... I'd like to be motivated

>by someone sharing their regaining of the zest for life, growing>back hair and eyebrows, going back to their ideal weight and staying>there, their libido driving up with their sex drive and parking in

>their driveway again, and not having to fight with their doctors to>be and stay well. I too think it can and will happen for me someday>but it doesn't hurt to share this glee until it is my turn to

>motivate someone else with my success story of having too much>energy, and not being as cold as a popsicle all the time.>Anyone motivate me PLEASE!>>>------------------------------------

>>

[Guest guest]

ok! Praying that all goes well!

Kate G

At 04:35 PM 1/8/2009, you wrote:

>Of course...Dr. R is very thorough. I have had endometriosis for over 20

>years...many years of living it and researching it. It is just time as it

>has now grown all over my intestines, kidneys, etc.

>

>

>On Thu, Jan 8, 2009 at 3:43 PM, Kate Guynn

> wrote:

>Have you had your female hormones checked out? Progesterone??? I would

>research that out before I did surgery, but that is just me.

>

>Kate

>

>

>At 03:28 PM 1/8/2009, you wrote:

> >Well, I can't motivate you 100% because I am only one year into adequate

> >treatment but I DO feel better. My energy level is higher, I sometimes am

> >in the mood for sex, I seem to have these short hairs growing in at my

> >hairline on my forehead, my eyebrows have to be plucked more, I have just

> >dropped 30 lbs (40 more to go) over the last 4 months and my ferritin is

> >finally above 50. Dr. R said I would be able to tell a difference in a

> >year but it would take 3-5 years to be " normal " again and we all know what

> >a struggle it is to sustain " normal. " What I believe is holding me back

> >from being and feeling even better is my endometriosis. I am in

> >significant pain, nauseau, fatigue...am having complete hysterectomy Jan.

> >29th..can't wait. My hope is that once I have healed from this surgery

> >(and there may be a setback with thyroid) is that I will know what I am

> >dealing with and be able to move forward and get better even faster. I

> >can't wait!

> >

> >And, I owe so much of my recovery to you guys

> >

> >

> >On Thu, Jan 8, 2009 at 1:23 PM, mojestic1

> >mojestic@s

> bcglobal.net> wrote:

> >A major part of the support of this group is exactly for what you

> >did! You called it whining but it is really venting the

> >frustrations and anger you feel about how poorly you feel and how

> >ready you are to have your energy and your life back again. Bully

> >for you for sharing this with us! We all take turned stepping up to

> >this podium and it feel so good to have people about you who listen

> >and most importantly understand what you are going though.

> >

> >What I would like to hear more about and which would give us all

> >healing hope is the success stories. Someone brag to me about how

> >great you feel now with successful treatment. We have plenty

> >of " before " and current distress tales... I'd like to be motivated

> >by someone sharing their regaining of the zest for life, growing

> >back hair and eyebrows, going back to their ideal weight and staying

> >there, their libido driving up with their sex drive and parking in

> >their driveway again, and not having to fight with their doctors to

> >be and stay well. I too think it can and will happen for me someday

> >but it doesn't hurt to share this glee until it is my turn to

> >motivate someone else with my success story of having too much

> >energy, and not being as cold as a popsicle all the time.

> >Anyone motivate me PLEASE!

> >

> >

> >------------------------------------

> >

> >

[Guest guest]

I'm in year three on Armour. I feel pretty good. This is such a big

improvement that I am satisfied with the treatment I am getting and

feeling pretty good. I'm still too heavy, but a recent 15 lb loss has

been maintained for three months now. My weight is my fault. I know

how to get it off but I do not do what is necessary (a combo of

different diet and exercise). I have decided, at 63, that I'd rather

be a little " fluffy " and enjoy my food, if ya know what I mean!

The biggest difference for me is energy. I used to have to manufacture

energy from sheer will. I could always do it for the things I really

enjoyed, but would drag around the rest of the time like a 90 year old

woman. Now I rise with a better attitude every day, even though I

still don't sleep real well, and have plenty of the energy I need for

my demanding part time job (which is peaking pretty soon).

I never had any of the hair or sex drive problems - probably because

I'm also taking bio-identical hormones.

The best thing about the Armour is that I have gotten off the

anti-depressants that were wrongly prescribed for me, and have also

managed to keep my cholesterol at a reasonable level without the 80 mg

of Lipitor I was on before!

Marti

> Wow... 3-5 years? OK, I'm not gonna freak out... but I'd also really

> love to hear some success stories. I actually felt pretty good for a

> few months and had lost 15 lbs. until my thyroid suddenly went wonky

> this past fall.

>

> Thanks, so much for listening & being there. I was intensely

> frustrated yesterday and it helped so much to be able to post here &

> know you guys get it. My husband was asking why wouldn't a dr. just

> sort of triangulate--up the dose until some hyper symptoms appear then

> back off a bit and I explained why I thought that wasn't done--because

> the risks of being hyper (bone loss, heart stress, etc.) are more

> solid and documentable legal liabilities for the doctors while our

> chronic depression, fatigue, weight gain, etc., can more easily be

> written off to other things (and as long as we're chronically tired,

> we're less likely to make a fuss), so that's why I think Drs' so

> regularly undertreat and it makes me so angry. But it helps to know

> y'all understand.

>

> Gail

>

>

>

>>

>> Well, I can't motivate you 100% because I am only one year into

>> adequate

>> treatment but I DO feel better. My energy level is higher, I

> sometimes am

>> in the mood for sex, I seem to have these short hairs growing in at my

>> hairline on my forehead, my eyebrows have to be plucked more, I have

> just

>> dropped 30 lbs (40 more to go) over the last 4 months and my ferritin

>> is

>> finally above 50. Dr. R said I would be able to tell a difference

> in a year

>> but it would take 3-5 years to be " normal " again and we all know what

>> a

>> struggle it is to sustain " normal. " What I believe is holding me

> back from

>> being and feeling even better is my endometriosis. I am in

>> significant

>> pain, nauseau, fatigue...am having complete hysterectomy Jan.

> 29th..can't

>> wait. My hope is that once I have healed from this surgery (and

> there may

>> be a setback with thyroid) is that I will know what I am dealing

> with and be

>> able to move forward and get better even faster. I can't wait!

>>

>> And, I owe so much of my recovery to you guys

>>

>

>

>

> ------------------------------------

>

>

[Guest guest]

You mean Sullivan in Irving? Would a non-endo be able to monitor the

nodules, or would an endo ever agree to monitor nodules w/o doing meds

(my last one wasn't)? Thanks, that'd be great, Jan.

Gail

>

>

> There are some docs who adjust the dose in exactly the manner you

> suggest. I can think of still another who would start you at a higher

> dose. I can email that info to you.

>

> The only hope for you may be my favorite surgery: a radical

> doctor-ectomy! Cut him off right where it will hurt him the most, yes,

> right where his manhood lies: in his wallet!

[Guest guest]

A non-endo can monitor your nodules, if they are willing to do so. The only thing that endos can do that other docs cannot do is order RAI ablation and scans.

One of our members is a thyca patient. She sees her endo once a year for follow-up. She sees a good alternative doc in another state for her thyroid meds and other hormones. The endo does not like it, but he has little choice. Betsy is a redhead. . . . .

> >> > > > There are some docs who adjust the dose in exactly the manner you> > suggest. I can think of still another who would start you at a higher> > dose. I can email that info to you.> > > > The only hope for you may be my favorite surgery: a radical> > doctor-ectomy! Cut him off right where it will hurt him the most, yes,> > right where his manhood lies: in his wallet!>