Re: The *Hummingbirds' Foundation: XMRV, 'CFS' and M.E. by Shenk

[Guest guest]

I read the article on CFS vs. ME (link below). I had never heard most of this.

I had always thought that CFS and ME were the same illness - just different

names. Has anyone else thought this? Based on what I read, ME is completely

different. Interesting. Anne

http://www.hfme.org/xmrvcfsandme.htm#523731572

>

> Hello and welcome to the 'Hummingbirds' Foundation for Myalgic

> Encephalomyelitis' e-newsletter for February 2010

>

> We have one main new project to tell you about this month, two site

> updates and a brief informal survey.

>

>

> -------

>

> A new paper is available: XMRV, 'CFS' and M.E. by Shenk

>

>

> There has been much media publicity lately over a small research study

> that claims to have made a connection between " CFS, " or " ME/CFS " , and a

> retrovirus. While many are touting this as a huge medical breakthrough, or

even

> claiming that 'our battle is over' there is a group of doctors, scientists,

> patients and advocates who question why this research is being said to

> apply to M.E., when the patients studied merely qualified for a 'CFS'

> misdiagnosis and who view this information and the claims made about it with

> tempered enthusiasm or even significant concern and worry.

>

>

> Please read this brief paper to find out WHY. This page also includes a

> new short paper entitled: Understanding M.E. and CFS - A Brief History.

>

>

> Shenk is a severe M.E. patient (and patient advocate) from the USA.

> This is the first solo paper she has written for the HFME, but hopefully

> (health permitting) it will not be the last.

>

>

> See: _http://www.hfme.org/xmrvcfsandme.htm_

> (http://www.hfme.org/xmrvcfsandme.htm)

>