Re: OI/lying down late in day

[Guest guest]

I hear all the time that if I didnt lay down so much I would be ok and gain my

strenght back , so I can relate . They just don't understand!

Debbieg

________________________________

I seem to have had Orthostatic Intolerance for

about 20 years.

I struggle to do urgent things during the day.

By late afternoon, I need to lie down until

the next morning. Partly this is due to regular

CFS fatigue, but also my OI gets worse

throughout the day.

Do others of you need to lie down later in the day ?

Some of my few remaining friends object to my lying

down so early - or hint that so much lying down is

harmful. I welcome your thoughts, CFA people.

[Guest guest]

Have you ever tried lying down regularly during the day whether you have fatigue

or not just 10-15 mins at a time perhaps doing that more frequently would mean

more energy for longer thats what I do but I am a wheelchair user and not sure

if I have OI

----- Original Message -----

From: p_beith

I seem to have had Orthostatic Intolerance for

about 20 years.

I struggle to do urgent things during the day.

By late afternoon, I need to lie down until

the next morning. Partly this is due to regular

CFS fatigue, but also my OI gets worse

throughout the day.

Do others of you need to lie down later in the day ?

Some of my few remaining friends object to my lying

down so early - or hint that so much lying down is

harmful. I welcome your thoughts, CFA people.

[Guest guest]

I lie down with my feet propped up higher my head for about an hour before lunch

and an hour before supper. I think of this as re-setting my OI to closer to

morning level so I can function longer.

Jayne

>

> I seem to have had Orthostatic Intolerance for

> about 20 years.

>

> I struggle to do urgent things during the day.

> By late afternoon, I need to lie down until

> the next morning. Partly this is due to regular

> CFS fatigue, but also my OI gets worse

> throughout the day.

[Guest guest]

I have OI, I do find laying down during the day helps. Also raising my fluid

intake and adding Gatorade made a difference too.

Zoe

>

> Have you ever tried lying down regularly during the day whether you have

fatigue or not just 10-15 mins at a time perhaps doing that more frequently

would mean more energy for longer thats what I do but I am a wheelchair user and

not sure if I have OI

>

> ----- Original Message -----

> From: p_beith

>

> I seem to have had Orthostatic Intolerance for

> about 20 years.

>

> I struggle to do urgent things during the day.

> By late afternoon, I need to lie down until

> the next morning. Partly this is due to regular

> CFS fatigue, but also my OI gets worse

> throughout the day.

>

> Do others of you need to lie down later in the day ?

[Guest guest]

Thanks for the idea of lying down in the day, people !

I haven't yet tried that, as I have always been so desperate

to get as much done, as early as I can.

But, I will try lying down (and I'll try not to

worry about what other people might think

if they see me.)

- B.

[Guest guest]

I found I needed to save any plans for 3pm on--thats when I get energy I cannot

move in the morning,,,,after 10 years I really dont care what anyone thinks

about it either....Lynn

>

> Thanks for the idea of lying down in the day, people !

> I haven't yet tried that, as I have always been so desperate

> to get as much done, as early as I can.

>

> But, I will try lying down (and I'll try not to

> worry about what other people might think

> if they see me.)

>

> - B.

>

[Guest guest]

, even years before I had FMS, I used to lie down occasionally on the couch

in an office I used in the evenings. I was very open about it with my boss and

my colleagues and never had any negative feedback about it. Of course, I did

always have my work done on time. I was just sleepy/tired from depression meds.

Barbara S

>

> Thanks for the idea of lying down in the day, people !

> I haven't yet tried that, as I have always been so desperate

> to get as much done, as early as I can.

>

> But, I will try lying down (and I'll try not to

> worry about what other people might think

> if they see me.)

>

> - B.

>

[Guest guest]

I'm just the opposite. I have the most energy an hour or two after I rise and

then again in the late evening.

I felt very smart today when I remembered to chop up veggies for tonight's stir

fry instead of trying to do everything at once. This is one of my strategies so

that I neither feel overwhelmed or unable to do what I need/want to do.

Barbara S

> >

> > Thanks for the idea of lying down in the day, people !

> > I haven't yet tried that, as I have always been so desperate

> > to get as much done, as early as I can.

> >

> > But, I will try lying down (and I'll try not to

> > worry about what other people might think

> > if they see me.)

> >

> > - B.

> >

>