Re: Severe Constant Pain

[Guest guest]

Believe it or not, I know exactly what you're going through.

Diagnosed in early 80's with fibro/cfs, (fr. neurologist)

rear ended in a car accident that caused damage to my back, protruding

discs etc,

neck, shoulders, spine / more damage shows up ea. yr. as I get older

chronic hip dysplasia,

sleep apnea,

asthma,

hypoglycemia,

anxiety,

depression,

insomnia

Myofascial Pain

IBS Irritable Bowel Syndrome

Fatigue

Thyroid Disease

Sjogren's Syndrome

Hair Loss

Anxiety / Panic Attacks

TMJ Temporomandibular Joint Disorder

Migraine Headaches

Esophogeal Dysmotility or Reflux

Raynaud's Numbness and Tingling

Restless Leg Syndrome

Muscle spasms and Severe Muscle Weakness

Sleep Disturbance / Non Restorative Sleep

Muscle Intolerance To Cold

Body Temperature Fluctuations

Disequilibrium - Impaired Co-ordination

" Fibrofog " Cognitive function problems

Neurogenic Inflammation Like Rashes And Hives

Sensitivity Amplification

Allergies and/or Environmental Sensitivities

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Currently the TMJ is the most painfull thing I'm dealing with, it

started yrs ago, but having previous dental work done, the dr pressed

down so hard on my jaw as my head tilted in the downward position it has

caused my jaw to pop, crack, grind everyday since that appt. I take

narcotic meds but it's not touching the pain. Because of fibro my dr had

given me Oxycontin but the cost, even with private and medicare, it was

just beyond what we can afford. So ty #4- 10 per day/ 10 mg alprazolam &

1 mg diazepam both three tim es a day just isn't taking care of the

pain, much less let me eat much of any sustenance. Since the health

plan changed, it's jacked my alprazolam up to 97.00 for 30 days, so I'll

be searching for two new meds to replace that and diazepam.

As you can imagine depression is at a peak, even with Cymbalta, which

i've taken for yrs now and has worked well for me. So , I really do

understand your pain an then some.

My poor husband worries when my headaches start, the jaw pain is so

intense and I'm afraid of having a stroke, ...OH!! AND THE TENDER SPOTS

ON THE CROWN OF MY HEAD. Have you had those before? I didn't know what

caused them untill looking it up on the internet. A ton of dental work

and I've worn down 4 ceric crowns. The mouth guard cost almost $200.00

at the dentist and of course he tells me the ones at Walmoart are

worthless.

If you have any words of wisdom, something I've not thought of or can

point me to a different medication, I'd be most gracious and accepting.

I apologize for the length of this post.

Sincerely,

>

> Severe Constant Pain is causing me suicidal thoughts. I have had FM

and CFS, since 1986 and Sarcoid disease since 2000, and I have done all

that I have been told, prescribed, and recommended. I am now off all

pain meds, blood pressure meds, anti-depressants and am trying the

nutritional route, since I married a firm believer in nutrition and

excerces only for all things.

[Guest guest]

Fayellen, PLEASE resume your meds as prescribed. Good nutrition is essential,

but not if you're dead.

Sorry to be so blunt, but your post scares me. I have FMS, CFS, lupus, diabetes,

constant pain and fatigue, cardio problems, etc., etc. PLUS lifelong chronic

major depression.

Believe me, I know how it feels to want to just check out and be done with it.

Right now, with the help of max doses of 3 antidepressants, prayer, and love of

family and friends I am functioning better and even having fun. It IS possible.

Please don't give up.

>

> Severe Constant Pain is causing me suicidal thoughts. I have had FM

and CFS, since 1986 and Sarcoid disease since 2000, and I have done all

that I have been told, prescribed, and recommended. I am now off all

pain meds, blood pressure meds, anti-depressants and am trying the

nutritional route, since I married a firm believer in nutrition and

excerces only for all things.

[Guest guest]

Wow we could be twins, we have the same exact dx. My dr. put me on morphine

extended release twice a day and percocet 10/325 for breakthrough pain up to 4

times a day, this has lowered my pain levels to something more manageable, still

can't work or do housework but at least I'm not in bed crying and throwing up

all day.

Take care

Tree in FL

________________________________

Believe it or not, I know exactly what you're going through.

Diagnosed in early 80's with fibro/cfs, (fr. neurologist)

rear ended in a car accident that caused damage to my back, protruding

discs etc,

neck, shoulders, spine / more damage shows up ea. yr. as I get older

chronic hip dysplasia,

sleep apnea,

asthma,

hypoglycemia,

anxiety,

depression,

insomnia

Myofascial Pain

IBS Irritable Bowel Syndrome

Fatigue

Thyroid Disease

Sjogren's Syndrome

Hair Loss

Anxiety / Panic Attacks

TMJ Temporomandibular Joint Disorder

Migraine Headaches

Esophogeal Dysmotility or Reflux

Raynaud's Numbness and Tingling

Restless Leg Syndrome

Muscle spasms and Severe Muscle Weakness

Sleep Disturbance / Non Restorative Sleep

Muscle Intolerance To Cold

Body Temperature Fluctuations

Disequilibrium - Impaired Co-ordination

" Fibrofog " Cognitive function problems

Neurogenic Inflammation Like Rashes And Hives

Sensitivity Amplification

Allergies and/or Environmental Sensitivities

[Guest guest]

You know Terrye you do have a point for Fayellen or at the very least check with

doctor before going off anything I mean sometimes going off things quickly

without tapering them down can actually make you very sick!

----- Original Message -----

From: Terrye Newkirk

Fayellen, PLEASE resume your meds as prescribed. Good nutrition is essential,

but not if you're dead.

Sorry to be so blunt, but your post scares me. I have FMS, CFS, lupus,

diabetes, constant pain and fatigue, cardio problems, etc., etc. PLUS lifelong

chronic major depression.

Believe me, I know how it feels to want to just check out and be done with it.

Right now, with the help of max doses of 3 antidepressants, prayer, and love of

family and friends I am functioning better and even having fun. It IS possible.

Please don't give up.

[Guest guest]

Hi Fayellen,

I know that I have thought about tossing all of my meds many times. However, as

with so many other things, I think it is a matter of considering each med

carefully, looking at the benefits and risks and making an educated decision.

While our culture is way too inclined to pop a pill INSTEAD of improving their

lifestyle, to refuse all medications is also an extreme position based on

emotions more than facts. Meds are the biggest reason that average lifespans

have consistently grown longer over the last 100 years.

If the pain is driving you to suicidal thoughts, please consider telling your

husband about it and going back on whatever meds will best help you at this

point. You can continue to improve your nutrition and exercise with a goal of

reducing and/or eliminating meds over time but clearly, nutrition and exercise

are not adequate if you are driven to suicide by lack of pain relief.

With concern,

Margie

> >

> > Severe Constant Pain is causing me suicidal thoughts. I have had FM

> and CFS, since 1986 and Sarcoid disease since 2000, and I have done all

> that I have been told, prescribed, and recommended. I am now off all

> pain meds, blood pressure meds, anti-depressants and am trying the

> nutritional route, since I married a firm believer in nutrition and

> excerces only for all things.

>

[Guest guest]

Fayellen I agree with Terrye please resume your meds now as they should only be

discontinued with a doctors direction! Many of these med can be deadly if you

just discontinue!!!

LOts of hugs!!

Debbie G

________________________________

Fayellen, PLEASE resume your meds as prescribed. Good nutrition is essential,

but not if you're dead.

Sorry to be so blunt, but your post scares me. I have FMS, CFS, lupus, diabetes,

constant pain and fatigue, cardio problems, etc., etc. PLUS lifelong chronic

major depression.

Believe me, I know how it feels to want to just check out and be done with it.

Right now, with the help of max doses of 3 antidepressants, prayer, and love of

family and friends I am functioning better and even having fun. It IS possible.

Please don't give up.

[Guest guest]

Thank you, .

Well said.

>

> PLEASE!! This is not a forum for the endless and useless political debate.

This is a support group. I do not want to come on here to somehow find something

good to help me and end up reading once again on how our country is in flames

and going down because of a black President. Please stop! There are plenty of

forums for that subject.

>

[Guest guest]

I TOTALLY AGREE WITH YOU THIS IS A SUPPORT GROUP NOT A POLITICAL GROUP AND THEIR

VEIWS!

deBBIEG

________________________________

Thank you, .

Well said.

>

> PLEASE!! This is not a forum for the endless and useless political debate.

This is a support group. I do not want to come on here to somehow find something

good to help me and end up reading once again on how our country is in flames

and going down because of a black President. Please stop! There are plenty of

forums for that subject.