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Macey is doing ok. She has a small cough which comes and goes and she

starts coughing when she tries to do her peak flows. Small fever this

morning but probably from the coughing. She had another fall today.

Scraped her hands up but she finally threw her arms out in front of her to

catch herself so there was no hit to the head this time. The ped made the

neuro referral Friday but they called one not on our insurance so it will

have to be redone on Monday. Good thing too because this doc couldn't get

her in till January 19. Plus the one they should have called is at the same

hospital where her brain MRI is on file so that will help. Everything is

going well. Motility is still good and her sinuses are staying clear.

Seems her chest is the thing right now but nothing her mom or grandmom

haven't also had trouble with lately. We're still giving more albuterol

treatments than I'm comfortable with right now, especially with the Flovent

also on board.

So that's the mini-update on Macey, now on to look through the rest of the

mail.

Ursula - & Macey (4 yr old w/CVID) mom

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