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I'm 29 on the 8th, and have been recently diagnosed with FMS. I have

been trying hypnotherapy, but am unsure of it's benefits so far. My

therapist says that I have to keep 'practicing' what we go through in

sessions, but the pain is so transient that when I think one is gone

another shows up..I have now, in just a couple of days have a pain in

my right leg, that it feels like an on-going charely horse, it won't

go away and I can't sleep with it. But it doesn't hurt to walk... go

figure. I believe in prayer, but sometimes I think that God has a

very sick sense of humor,(that's my line), and I have to get used to

His humor, just like anyone elses', but I am finding it trying at

times, especially when I am up for more than 24 hours, and my doctor

says I am in pain from sleep disturbances. I am having a feeling

that he is ou tto lunch(my doc) that is. I can't sleep or when I do

it is minimal and sporatic. I am on Amytriptoline for sleeping, and

Lexapro for Depression and sleep disturbances. I do not feel any

effects anymore after being on them for a month. I do however now

talk in my sleep and can't seem to feel when I have to urinate, so I

have to go into the ladies room after a couple of hours even if I

don't feel 'the need' I also have to be extremely careful on

steps. I have bad episodes if I have to go down a flight. I think

that I can fly, or float down, and realize at the last moment that I

can't. I pulled quite a few muscles and lots of bruising form 2

encounters on the same day, in 2 different houses. anyone else

having these problems, and what do you do for them?

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Dawn wrote:

> I'm 29 on the 8th, and have been recently diagnosed with FMS.

Happy Birthday Dawn. I'm 29 on the 3rd of next month! I have FMS too,

but other stuff too.

> I have been trying hypnotherapy, but am unsure of it's benefits so

> far. My therapist says that I have to keep 'practicing' what we go

> through in sessions, but the pain is so transient that when I think

> one is gone another shows up..

Has your therapist given you a tape to use every day, or even more

often? I recently downloaded a self-hypnosis tape from the Internet and

luckily it was a very very good one. And I listen to it 2-3 times every

day.

Also, when it talks about the pain going I visualise my *whole body*,

not just some parts. Of course, I probably have an easier time of that

because all of me hurts *wry laughter*

> I have now, in just a couple of days have a pain in

> my right leg, that it feels like an on-going charely horse, it won't

> go away and I can't sleep with it. But it doesn't hurt to walk... go

> figure.

That's actually a known FMS thing. Exercise - within your limits and

without aggravating the fatigue - is a GOOD thing for FMS. Do you walk

or do hydro or any other sort of exercise?

> His humor, just like anyone elses', but I am finding it trying at

> times, especially when I am up for more than 24 hours,

Yeah, that's the worst time isn't it? That's why I'm so grateful for my

pain control mp3, I play it and it helps me relax enough to go to sleep.

Often I am asleep before it ends! If not, soon after. And because it's

not a drug I can use it as often as I like, if I wake up again at 1am

and 2am and 3am and 5am then I can play it each time to help me get back

to sleep! Its wonderful!

> that he is ou tto lunch(my doc) that is. I can't sleep or when I do

> it is minimal and sporatic. I am on Amytriptoline for sleeping, and

> Lexapro for Depression and sleep disturbances. I do not feel any

> effects anymore after being on them for a month

Sometimes antidepressants take up to two months (somebody check, is it

three months?) to kick in totally, so do try to be patient. But if

after 3 months there's still nothing you might have to switch to

something else ... I had to try several before I found one that helped

at all.

> talk in my sleep and can't seem to feel when I have to urinate, so I

> have to go into the ladies room after a couple of hours even if I

> don't feel 'the need' I also have to be extremely careful on

> steps. I have bad episodes if I have to go down a flight. I think

> that I can fly, or float down, and realize at the last moment that I

> can't. I pulled quite a few muscles and lots of bruising form 2

> encounters on the same day, in 2 different houses. anyone else

> having these problems, and what do you do for them?

If this is only since you started with the antidepressant then you need

to tell your Dr about it RIGHT NOW. It shouldn't be happening like

that, it's a really bad side-effect to be having!! You poor thing :(

I have my website the Fibromyalgia/CFS Foothold at

http://tertius.net.au/foothold/

which you might like. Feel free to email me at rb@... if you

want somebody to talk to, but be aware sometimes it takes me time to

answer email because I can't often type easily.

Warmest Regards,

Ricky

--

: Usual state: (e) None of the above.

: rb@... http://tertius.net.au/~rb/

: Love looks not with the eyes, but with the mind.

: -- Shakespeare

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Hi Auora,

Welcome to the group. I also have FMS and all that goes with it, along with a

laundry list of other things.

What you are describing sounds like classic Fibro stuff. I also have the

" charlie horse " syndrome going on. I take Quinine at night to help. I have

chronic sciatic pain so sometimes it's a real trick to walk. I look like a

drunk

little ol lady! I have " drop foot " from complications with back surgery and I

have a habit of tripping/falling so I use a cane on days that I'm having a

bad time with my leg/foot. I really didn't want to start with a cane but the

other option of falling a breaking something wasn't good either.

Sleep problems go along with Fibro and it may take some time to find what

works for you. I'm up and down all night even with medication.

I teach and can go for long lengths of time without using the bathroom, but

I'm up at least 4 to 6 times a night having to " go. " Just doesn't seem fair.

Of course being deprived of sleep doesn't help any of the other components of

Fibro either. It's a real balancing act to try to find the right mix. If you

are not getting the relief you need from your present medications and you've

given them enough time to work, ask to try something else. There are so many

combinations and each of us is unique so what works for me may not work for

someone else.

Happy Birthday to you! I hope you have a great day!

Kathleen in Calif.

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Hi Dawn:

I'm glad you have joined our group here, although I'm so sorry that you have the

pain that caused you to join up. I was diagnosed with fibromyalgia back in 1995

which was not long after doctors came to the realization that there was such a

disease. Before that diagnosis, I had been seeing a number of doctors trying to

find out why I had so much pain and fatigue and lots of other symptoms. The

1995 diagnosis started the long list of meds, exercise, physical therapy, water

therapy, hypnosis, psychological counseling, etc. that I was told would be the

answer. In 1996, I got very, very sick and had to go to the ER where there was

a very good woman doctor who wrote down the symptoms I had (hair loss, edema,

heart palpitations, nausea, memory loss, unexplained weight gain, etc.), gave me

lots of tests, and said I also had hypothyroidism in addition to the FM. I was

started on thyroid hormone replacement.

I still had lots of symptoms and my pain and fatigue were not helped by

anti-depressants (I was prescribed nine different ones) nor any of the other

things prescribed. I was put on Ultram in 1997 which helped for awhile but over

time it also didn't help the pain. In 2000, my doctor said I was in such bad

shape that I should go to a teaching hospital and see an endocrinologist because

he thought there was something wrong in that area but didn't have any training

in it. I searched the Internet and found a specialist in Boston who put me in a

research study for potential pituitary patients. I was diagnosed with

panhypopituitarism and it was suggested that at least part of the reason for my

pain could possibly be from that disorder. I won't know if this is correct

until the research is completed.

In 2002, I went on disability as I was no longer able to carry on my career due

to ongoing pain, fatigue, etc. Even though I take lots of meds, including all

the replacement endocrine hormones, I still battle with the symptoms mostly

because it is so difficult to keep endocrine hormones in balance. I don't live

near an endocrinologist so I have to travel far to see one and then I can only

get in to see him once a year. So any symptoms have to wait unless my primary

care doctor can figure out what to do. He has me taking hydrocodone to help

with pain, but although it helps a little, I still have pain at all times.

The episodes you describe where you feel like you could possibly fly down the

stairs sound to me to be related to the meds you are taking. I had some

unbelievable reactions to anti-depressants which actually made me sicker than

before I took them so I feel you have to be so careful when taking them. I

would tell my doctor quickly if I were having the symptoms that you describe

because it's very dangerous to have balance problems.

As to hypnosis, I was never able to be hypnotized so I wouldn't be able to say

if it's effective or not. The doctor who tried to hypnotize me said it was

usually very difficult to put into a trance those people who tended to be

analytical thinkers, which was definitely me. As an analytical person (math and

science scholar), I don't have the ability to just believe in something without

some sort of concrete theory or rational thinking involved. So people who

aren't analytical are more likely to be what therapists call " suggestible' and

thus are much easier to put into a trance state.

Hope this helps a bit. Take care!

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