Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 I for the past few days, have been going through my medical files, that I have on myself. I found all kinds of confusing dx and cannot help but wonder. What the doctors thinks they are doing to me and for me? My symptoms and the dx don’t match. But there has got to be something that I can do for my self other than all the medications that I take. The meds. I am on do help but will I ever have a life again. I already know that I will never be a floor nurse and the only alternative would be behind the desk. which I don't think I will like? But would do it. I have noticed that I have three choices1.therapy 2.medication and 3.surgery. The first I did for a short time and it did seem to help and the insur, stopped. Medication helps but I am afraid of what it is doing to my insides and if I am late on take my meds the pain is right there to tell me it is time for my meds (this I find sad). surgery my doctors say is what I need now and I have been interviewing surgeons in my area for several months now. Some agree with my original doctor and some do not. And last it would be nice if when your doctor tells you that if you have any changes to call the office, and they treat you like you’re a complaint and don't help but what to set you but with the doctor knowing you have no insurance. WHAT THEN. Another thing that I have a problem with is what do I tell people what is wrong with me, telling each person I talk to everything makes most people depressed by time i am done telling them? Well thanks for letting me flare off. Just one more thing this is what I have for dx. mild narrowing of L3-L4 and L4-L5 degenerative changes of the apophyseal joint@L5-S1, lumbar Dextro-roto-scoliiosis, lordosis, carpel tunnel, tennis elbow, shoulder derangement with laxity and impingement, a multi level disc disease lumbar spondylosis, IBD and gerds. So what would any of you tell people when asked. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Hi I think it would be wise to come up with a short phrase such as: I have a bad back a bad belly and lousy joints isn't that the pits? Then follow it up with how are you doing?or I love your hair today or that is a cool hat. Focus on something other than yourself. Years ago when people would ask why I had gotten a divorce I would simply say " he didn't appreciate my finer qualities " . This made the person laugh and left me with my privacy. My husband and I have boiled down how I feel to things like: I am not to bad today or I have been better or if it is one of my worst days when I am way past the the 10 on the pain scale to I need anesthesia today. Oh btw desk nursing isn't so bad. I can't work at all now and believe me that is what really stinks. Kaylene Well thanks for letting me flare off. Just one >more thing this is what I have for dx. mild narrowing of L3-L4 and >L4-L5 degenerative changes of the apophyseal joint@L5-S1, lumbar >Dextro-roto-scoliiosis, lordosis, carpel tunnel, tennis elbow, >shoulder derangement with laxity and impingement, a multi level disc >disease lumbar spondylosis, IBD and gerds. So what would any of you >tell people when asked. > > > > _________________________________________________________________ Scope out the new MSN Plus Internet Software — optimizes dial-up to the max! http://join.msn.com/?pgmarket=en-us & page=byoa/plus & ST=1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Something like " I have chronic back and gut problems " . People who ask purobably usually don't want to know much. If they *do* then they'll quiz you further with, like, " Oh, which gut problems " or something, THAT is your cue to tell more. I have fourteen Dx. I just say " Oh, a whole lot of stuff that adds up to pain and exhaustion " and if they make noises that means they're interested, THEN I say " Do you want the long version or the short version " and that gives me a pretty good idea of what they want to know, how much detail. The short version is " I have a progressive chronic pain disorder that's partly kept under control by medication, I have M.E. and I have a genetic collagen disorder. " ANd the long version is as long as they keep asking questions. If anybody's eyes glaze over or they look bored while you say it, STOP and say something like, " Oops, too much info, isn't it? " with a grin. Normals aren't like us. They don't understand and don't wanna know and the whole idea of life in hell scares them. TMI, Ricky -- : Usual state: (e) None of the above. : rb@... http://tertius.net.au/~rb/ : Whether you can hear it or not, the universe *is* laughing : behind your back. -- 'National Lampoon' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Kaylene Goyette wrote: > Focus on something other than yourself. Years ago when people would ask why > I had gotten a divorce I would simply say " he didn't appreciate my finer > qualities " . This made the person laugh and left me with my privacy. Making people laugh is WONDERFUL. I have a whole list of things to answer that are *obviously* false but make people laugh, stuff like " Just finished the Boston Marathon ... i came in fifth! " and " I climbed Mt Everest yeterday, did you see it on TV? " and stuff. Tells them ZERO and makse them laugh. If the STILL ask then I figure they want to actualy know, and care about the answer and aren't just asking because of politeness, so I start telling them the Very Short Version. More questions = more answers if I feel like it. > My husband and I have boiled down how I feel to things like: I am not to bad > today or I have been better or if it is one of my worst days when I am way > past the the 10 on the pain scale to I need anesthesia today. Umm, 10 is the TOp of the pain scale If somebody asks how I feel, then I tell them something I've *done* first. Always. Or something my cat's done. Or, if my heart is in a good spot, how i feel *emotionally*, ( " I'm happy today! " " i'm in a great mood! " ). Nobody has ever persisted past this to find out how I physically feel, which is sorta depressing :/ > Oh btw desk nursing isn't so bad. I can't work at all now and believe me > that is what really stinks. Oh btw not working isn't so bad. I can't get out of bed at all now and believe me this is what really stinks. Regards, Ricky PS The point to that last sentence: WHATEVER IS THE WORST THING YOU ARE GOING THROUGH RIGHT NOW IS AWFUL TO YOU AND DESERVES RESPECT. There are things worse than what i'm going through too, but it doesn't mean what I'm going through doesn't stink. PPS I really am 100% bedridden. -- : Usual state: (e) None of the above. : rb@... http://tertius.net.au/~rb/ : Health is capricious - it can vanish at any moment. Don't rely : on health, and if it goes, don't waste your life grappling at : straws to recover it. -- Jenn Vesperman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Ricky, <<Normals aren't like us. They don't understand and don't wanna know and the whole idea of life in hell scares them.>> Gee isn't that the truth? Give them a bit of info and you lose them quickly. Jeff S.- NY/PA Quote Link to comment Share on other sites More sharing options...
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