Re: about me :)

[Guest guest]

Welcome to our group!! I have found this site to be very informative and

comforting, as I am not the ONLY mother to experience these difficulties. I hav

efound it difficult to try to explain that there is MDS. On Monday, while at

basketball, one of the other moms was really confused. She thought that Nat had

Autism like her son. So, once again, another teaching moment. As for DS

features, I have found that it is easier to see Nat's features when he is with

other DS people and when he smiles.

Amy enjoy your Luke!! He will give you joys beyond your imagination. The world

is so much more simple for our kids. I know that Nat has changed everything for

us for the better. He is challenging, but not as much as my other children.

Can't wait to hear more about your Luke and his developments.

Also, I need to put in a " plug " for IMDSA. I am the membership chairperson and

I want to invite you to become a member. It is $25 annually. When you become a

member, you will recieve a welcome packet, be able to join in our monthly chats

with various experts, recieve our newsletter and recieve a discount for our

annual convention, which will be held in June in Houston,TX. If you are

interested, please visit our website at www.imdsa.com and click on the

information button, this will lead you to the membership area.

Take care and Happy New Year!!

Irene mom to Nat10 MDS, Luke 8, Emilia 5, Lillian 3, and Isaac 1 yr old

yesterday!!

IMDSA Membership Chairperson

shootingstar7801 wrote:

hi all--I'm the new member My name is Amy and my son's name is

Luke. We live in Memphis, TN. I did not have any of the pretesting,

so it was a surprise that Luke has DS. After a testing by the

hospital " just to be sure " , it was confirmed that Luke has Mosaic.

Now I'm trying to find out all I can about it and converse with

other people who have been affected by it. No health problems for

Luke yet (crossing my fingers!) other than mitral valve prolapse

(heart) but the cardiologist isn't concerned about it right now.

Anyway, sorry this is long, but my question is: have any of you with

older children seen a decrease in the physical characteristics of DS

as they have aged? My son has the facial features of DS, but

sometimes when I glance at him, his eyes seem to be changing shape.

Is it just me?

Become a member of IMDSA today at http://www.imdsa.com

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Learn more about MDS http://www.mosaicdownsyndrome.com

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Contact IMDSA Today at:

IMDSA~PO Box 1052~lin,TX~77856~USA~1-

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