Guest guest Posted September 29, 1999 Report Share Posted September 29, 1999 lolololololol - Ursula - & Macey (4 yr old w/CVID) mom Re: Sibs >snip< Curious person: How did you ever manage to get pregnant with triplets? Me: It's easy..... I just had great sex three times in one afternoon............. Hubby: Where was *I*??!?!?!?....... Me: *NOW* you know why all three of our kids look different!!!!!!!!!!!!!!!!!!!! Joanna.........*S*S*S*......... This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 Joanna: Great story! I hope things improve with and I'm glad you have a doctor who is willing to treat him aggressively to try to keep him off daily meds. I truely hope this works out for you. We managed it for for almost 3 years before things got to the point that he had to have daily meds. --mom to , dysgammaglobulinemia, ALL--in remission; , possible selective subclass def. Re: Sibs > > > > >ALAN J SVEJKOVSKY wrote: > >> >> >> >> Who has other children besides the ones we hear about all the time? >> How do the " normal " kids deal with their siblings and how do your PID kids >> deal with their siblings. >> > > I have three adult step children 32, 31, 29 years old (of who two gave us 8 grandchildren between them......) and three 3 year olds..(Will be three in one week....) s problems (knowledge and seeking solutions) are fairly new to >us so I can't offer much in the way of differentiating between the three kids at this time and how each responds as far as the asthma/allergy/et al goes...... To me it has *ALWAY* been a daily battle over keeping everyone's identity >separated, keeping the others from whatever another needs but the other/s can't have, etc....... I struggle to keep them recognized as individuals...... For examples: Explain to people that although all three were born on the same day >that it's not fair to give them one toy to share when the gift givers children all get individual gifts on each birthday- that EACH of them have a birthday of Oct. 5th just as if they had been born in Oct, April, and July......); >Protect them from all those who stare at us as if we were an exhibit in a zoo and from those who make loud and pubic comments like, " I pity you " , etc..... Explain that just because they are triplets doesn't mean they like the same >things, respond the same way, etc..... > >My children are very close to each other.... Although they have the typical sibling stuff to deal with they will look out for one another without fail......... Also, my children happen to love taking medicine so it's hard to give >Albuteral to without Dylan and Breanna DEMANDING their medicine as well........... > >OK, as long as I'm on the " triplet thing " I'll share something with you that may offend some of you. If jokes and the word " sex " offends any of you, please delete now............. > >Background: All three of my children look very different (although on certain days look a lot alike....LOL.......) and are fraternal triplets..(are actually surviving quads but we usually don't tell many people this in order to avoid >ourselves sharing our personal tragedies......) Two are blond hair with my daughter having blue eyes and having hazel eyes and being a " Toehead blonde " .....Dylan is very dark complexed with dark, thick, curly >hair................. > >People often ask us (rudest question in the world to a multiple parent) if we used fertility drugs or if (best question) multiples run in our family...(which twins run on BOTH of our sides....) One time someone asked the following >question and below is the dialog of that conversation........ (Please note that my hubby is always trying to get the best of me and throw me " zingers' to try to stump me....I got even with this one.......LOL......) > >Curious person: How did you ever manage to get pregnant with triplets? > >Me: It's easy..... I just had great sex three times in one afternoon............. > >Hubby: Where was *I*??!?!?!?....... > >Me: *NOW* you know why all three of our kids look different!!!!!!!!!!!!!!!!!!!! > >Joanna.........*S*S*S*......... > >>This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 : Can your pediatrican write a note to the school nurse or administrator letting them know about this constant fever? has great support from school--he's only in 1st grade, though--and the teachers and staff know about his history and game plan. His brother was in pre-k at the school while was still on chemo. I would try to set up a meeting to talk with the administator, nurse--if there is one--and some, if not all, of his teachers. Good luck with this. -- dysgammaglobulinemia, luekemia-in remmission Sibs >From: conatser@... > >My 13 year old has no memory of life " before " >who is 12. There have always been doctor's appointments >and illness to contend with. The 13 year old has always >done a great job of being the " compassionate older brother " >even when he was just a toddler. The 13 year hasn't really >been jealous, he has had his share of doctors to contend >with for other reasons. > >The boys are best buddies - the " don't you mess with >my brother " types. > >Everyone at our house just wishes that would get >over this most recent 3 month long infection so _everyone_ >feels better. > >Any info on how to get teachers (and others) to comprehend >that a quiet little kid who may _look_ healthy has had a temp >of 100 to 101 since July and no there's no point in just >keeping him home, and by the way there's no doctor around >who knows much about what's wrong or how to treat it - >hey send any suggestions my way! Gosh I just LOOVE middle >school and nine different teachers who each see over 240 kids >each day! > > - mom of age 12 IgG sublass 2, CVID and > age 13 and a walking bundle of teenage hormones > >>This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
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