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Hi Lois,

Yes, I have suffered immensely from neck pain in the past. I was in a car

accident and the front x-ray of my neck was totally white. The doctor said

the white was arthritis. I was later diagnosed with RA from which I suffered

for years with disabling pain.

There are gentle neck exercises you can do to help maintain flexibility.

(Slowly bend neck forward, side to side, back, each way sideways, with head

straight bring chin back slightly and release, with head straight turn head

sideways halfway to shoulder then slowly down towards chest keeping the

angle and then to it towards the other shoulder.) These are great for me.

I also improved my baseline of health eating mostly fresh organic fruits and

vegetables. A digestive cleanse was great for improving your health (and I

have been pain free since doing that), and after that I improved my health

even more by doing a liver/gallbladder/blood cleanse. Now I am improving my

health even more by establishing good flora in my digestive tract and

correcting my body's PH level.

Everybody has their own causes for their ill health. The key is to raise

your baseline of health and do those things which enable your body to heal

and function the way it is meant to.

Bless you,

Rochelle

[ ] Neck pain

Hi, I'm brand new to this group and was looking on the web for more

info on RA and found you. I was diagnosed with RA 5 years ago at age

55 and have had it under " control " with Methotrexate and Celebres,

but now I'm experiencing more pain, especially in the shoulder, elbow

and neck. I didn't realize the neck could be involved with RA. (I

also have osteoarthritis of the knee) Do any of you have neck pain

and what exercises or treatments do you do to relieve the pain.

Thanks. Lois

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  • 3 years later...

I have had something that has just came up. I had what I thought was a

stiff neck muscle pain last week after 6 days of pain I started getting

sharp shooting electric shock pains into my head. Does anyone know if CMT may

or can affect the muscles in the neck? My doctor is unsure and so am I.

Thank You,

Anne Katz

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Yes, Anne, research has indicated neck pain in CMT and some of our members have

reported theirs in the past. There may also be other reasons for your pain

(pinched nerve, disk problem, compression or entrapment of a nerve etc) Best to

get this checked out further with an orthopedist and have and MRI done. Have you

applied cold packs to the back of your neck? This may stop the pain/electrical

sparks temporarily. Also perhaps rubbing some Arnica into your neck may help. Do

you know how to stretch your neck out - like what is taught in mat Pilates? Or

maybe better to stretch the neck (do 'neck rolls' in water) Perhaps physical

therapy may be helpful also.

~ Gretchen

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Hello Anne,

A few years ago while sleeping in a motel room, the cold air from the

airconditioner was blowing on my left neck and I woke up with the

biggest muscle spasm that I had seen in many a year. It persisted for

several weeks and I finally took it to a rehab outfit. Ten visits

later with traction and stretching I got up to the point where I

could turn my head 45 deg. either side with only slight pain. Since

then I do neck stretching under a warm shower daily and have been

able to maintain that degree of flexibility. Do I blame that on the

disease? You better believe that I do and the sensitivity and spasm

due to cold air in my lower back, bronchia, and hands. The chest

reaction is just like angina and shows up 15 seconds after going into

a cold environment.

For my money it makes us susceptible to muscle spasm any where it

effects the nerves and overworked muscles.

EdM from NH

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  • 1 year later...

ps, toxic menningitis from mycotoxins and or chemicals mat show nothing

with spinal tap, but csf pressure tests are important, sponal tap may

show high or low cell functions,ect. cant think rught now but demand

full work up of csf if you have spinal tap, be careful as they may

prescribe antibiotics before even getting results of fungal testing

which could complacate. steriods would not be good if it's fungal

either. hard to give advice here so tou really just need to find good

doctor with knowledge on spinal/cns infections or inflammations. this

is only to give you a idea of possable cause,PCR TESTING would be good,

are there any mold doc's near you? again,this is just my thoughts on

what it might be so you really need to consult with a doctor. good

luck, hope everythings ok.

--- In , " healthyhayashis " <amhayashi@...>

wrote:

>

> Hi everyone... I'm wondering if anyone that has been exposed to

> Stachybotrys, Apergillus penicillium and or Cladisporim have

> experienced neck pain at the base of the skull? My 5 year old has

been

> suffering from constant neck pain for over 4 weeks now. She's gone

for

> x-rays twice now... " normal " . She is to see an orthopedic specialist

on

> Wednesday. BUT I can't help but be suspicious of our mold exposure.

> TOO many coincidences. I can only hope it's some kid growing

> pain...but I have 6 children 2 that are older than my 5 year old, and

> have never had them complain of constant pain of anything for more

that

> 3 days tops. Any advice or thoughts...or person experiences???

> Thanks!!!!

>

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yes, I have neck pain, head pain, chest pain, jaw pain... ahhh, heck,

I have pain all over! you said you've been exposed to mold

and x-rays are " normal " (doctor's favorite word it seems) than it's

a good bet that it's the mold... but I'm no expert, just going based on

my own experience. I believe that those so-called " growing pains " are

also a result of toxic mold exposure...

when my daughter was still in the mold she complained all the time of

being achy and sore; joint pains mostly but since she's been out she

doesn't complain about the achy knees, joints anymore and she's still

growing

--- In , " healthyhayashis " <amhayashi@...>

wrote:

>

> Hi everyone... I'm wondering if anyone that has been exposed to

> Stachybotrys, Apergillus penicillium and or Cladisporim have

> experienced neck pain at the base of the skull? My 5 year old has

been

> suffering from constant neck pain for over 4 weeks now. She's gone

for

> x-rays twice now... " normal " . She is to see an orthopedic specialist

on

> Wednesday. BUT I can't help but be suspicious of our mold exposure.

> TOO many coincidences. I can only hope it's some kid growing

> pain...but I have 6 children 2 that are older than my 5 year old, and

> have never had them complain of constant pain of anything for more

that

> 3 days tops. Any advice or thoughts...or person experiences???

> Thanks!!!!

>

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MRI shows tissue damage of spinal cords. I get turned around looking at

my MRI's, mone left spinal cord shows some damage and this comes back

for me too sometimes,right side gets sore too but left side recieved

more damage.

>

> Base of the neck-mostly on te left side-is experienced by most mold

> people-my neck was so stiff and sore for years ,I spent a fortune on

> massag and chiro, never knowing untill it was too late what was

causing

> it. I believe a swollen lymph node causes the pain-it is one of

> my " front line " symptoms, if I have it I know I have an exposure

> somewhere. PS-no amount of massage will help-only eleiminating the

> exposure-PPS-my dog also had the swollen lymph node at the base of the

> left skull

> >

>

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,

Were you or your doctor able to feel or find the lymph node? I would like to

address this with my neurologist the next time I see him.

Thanks,

Sam

> Base of the neck-mostly on te left side-is experienced by

> most mold

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When I was teaching I had two students in my class that had lumps in their

lymph nodes the size of very large grapes. One was told it was Cat Scratch

Fever and the other was told it was some type of virus. I didn't have swollen

lymph nodes but I did have terrible headaches and the base of my neck would

just ache. Since leaving, the toxic dump they call a school, I don't have those

problems except if I get an exposure from mold or fragrances. I have no more

contact with the school so I don't know how the children are doing.

Sue

,

Were you or your doctor able to feel or find the lymph node? I would like to

address this with my neurologist the next time I see him.

Thanks,

Sam

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

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Sue,

Which lymph nodes? Can you describe where it is, or do you know the

technical name?

(you can look it up in the old Grays Anatomy that is on the web ..)

I have had lots of episodes of neck pain. I have also gotten swollen

lymph nodes. When I was living in the place I got sick, I also got a

swollen lymph node (or something) on the front right part of my neck,

near the top of my chest.

It was very visible at times but it would come and go. I would also

get painful rashes around that area and lower, with red spots. I have

photos of them.

Basically, they occured mostly in a triangular area..

I still get all different sorts of pain, but its less now than it was

then, and of shorter duration. But its still crippling because I can't

explan to others why I get tired or extremely achey, I just am. And I

have to rest.

On Thu, Sep 11, 2008 at 11:05 PM, <ssr3351@...> wrote:

>

> When I was teaching I had two students in my class that had lumps in their

> lymph nodes the size of very large grapes. One was told it was Cat Scratch

> Fever and the other was told it was some type of virus. I didn't have swollen

> lymph nodes but I did have terrible headaches and the base of my neck would

> just ache. Since leaving, the toxic dump they call a school, I don't have

those

> problems except if I get an exposure from mold or fragrances. I have no more

> contact with the school so I don't know how the children are doing.

> Sue

>

>

>

> ,

> Were you or your doctor able to feel or find the lymph node? I would like to

> address this with my neurologist the next time I see him.

> Thanks,

> Sam

>

> **************Psssst...Have you heard the news? There's a new fashion blog,

> plus the latest fall trends and hair styles at StyleList.com.

> (http://www.stylelist.com/trends?ncid=aolsty00050000000014)

>

>

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Yes, that was what I was told, also with the dog-the vet felt the lymph

node-there is nothing to do about it but get clean and take your meds.

Right noe I am having the same pain-along with clogged sinuses and

headache, even though I am living outside, because we are having so

much rain.

> ,

> Were you or your doctor able to feel or find the lymph node? I would

like to address this with my neurologist the next time I see him.

> Thanks,

> Sam

>

>

> > Base of the neck-mostly on te left side-is experienced by

> > most mold

>

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The children had the lumps in their necks just around the hair line. They

were large and really creepy. The parents removed the kids from the school but

did nothing more.One parent was even a nurse and went along with the Cat

Scratch Fever diagnosis!! I haven't kept in touch so I really don't know how

they

are doing. I didn't have any lumps but the neck pain from the base of my

neck (in the back) was awful. It was just an ongoing dull ache even when I

slept.I tried everything to eliminate it, cold/hot packs, pain killers, neck

pillows, massage, chiropractor but nothing worked until I found Dr. Shoemaker

and

got out of the school. That was 5 yrs. ago and I no longer have it unless I

get really sick from an unexpected exposure. Then the headaches begin along

with the flu like symptoms and aches and pains all over including extreme

fatigue.

Sue

Sue,

Which lymph nodes? Can you describe where it is, or do you know the

technical name?

(you can look it up in the old Grays Anatomy that is on the web ..)

I have had lots of episodes of neck pain. I have also gotten swollen

lymph nodes. When I was living in the place I got sick, I also got a

swollen lymph node (or something) on the front right part of my neck,

near the top of my chest.

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

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