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Lyn,

Not everyone with AIH is on a transplant list. I for one am not, it is not

the natural course. Depending on the permanent damage to the liver.

SueB.

----------

> From: Lynn <CEN32195@...>

> onelist

> Subject: Re: [ ] Fwd: WELCOME LYNN

> Date: Monday, 12 July 1999 23:26

>

> From: Lynn <CEN32195@...>

>

> Hello , thank you for the welcome also. I am wondering now, why it

seems

> most are on a transplant list and I am not. I would assume it depends on

how

> bad a person is, but the way Dr. explained, he said when the meds quit

doing

> their thing, I would be put on a list and would have 2 years to find a

liver.

> Okay, does that sound right or should I ask for more info, etc and

pressure said

> Dr. into a more deffinate answer? As I said, I have been just going with

the

> flow, until this flair up and it really got me to wondering about all

this

> stuff, and the info on this list makes me really want to know. Lynn in

Wa. AIH

>

> MRios81143@... wrote:

>

> > WELCOME LYNN MY NAME IS MIGUEL AND I HAVE AIH FOR THE LAST 11 YEARS OR

SO,

> > I'M CURRENTLY ON THE TRANSPLANT LIST AS WELL, AND ON MEDS LIKE

PREDISONE 5MG

> > AND IMURAN 50MGS. SO ONECE AGAIN WELCOME TO THE GROUP, WHAT EVER

> > QUESTIONS YOU MAY HAVE OTHERS MAY HAVE AS WELL,

> >

> > LOL

> > MIGUEL AIH

> > BROOKLYN, NYC

> >

> >

------------------------------------------------------------------------

> >

> > Subject: [ ] Re: [LiverSupport-

> > Date: Sun, 11 Jul 1999 20:37:49 PDT

> > From: " susan johnson " <shireen42@...>

> > Reply- onelist

> > onelist

> >

> > From: " susan johnson " <shireen42@...>

> >

> > Dear Lynn,

> >

> > I am relatively new to list and still in diagnosis stage. Have pre-op

> > laparoscopy dr visit this Thursday.

> >

> > I am writng because I also have diabetes, type ll and asthma also.

> > Also have high blood pressure and emphysema. Now this!!

> >

> > Anything you find out about those of us with combination of diseases

would

> > the grateful if you pass it on to me.

> >

> > Welcome to group

> >

> >

> > New Jersey

> >

> > >From: Lynn <CEN32195@...>

> > >Reply- onelist

> > > onelist

> > >Subject: Re: [ ] I am New!

> > >Date: Sun, 11 Jul 1999 18:36:02 -0700

> > >MIME-Version: 1.0

> > >From errors-165537-3067-shireen42 Sun Jul 11 18:37:16 1999

> > >Received: from [209.207.164.223] by hotmail.com (1.5) with SMTP id

> > >MHotMailB95291CB010ED82197EED1CFA4DF78360; Sun Jul 11 18:37:16 1999

> > >Received: (qmail 22023 invoked by alias); 12 Jul 1999 01:39:36 -0000

> > >Received: (qmail 21923 invoked from network); 12 Jul 1999 01:39:34

-0000

> > >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by

> > >pop.onelist.com with SMTP; 12 Jul 1999 01:39:34 -0000

> > >Received: from ptinet.net (ppp073.mon.ptinet.net [208.157.244.73]) by

> > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id SAA22440 for

> > >< onelist>; Sun, 11 Jul 1999 18:38:46 -0700 (PDT)

> > >Message-ID: <37894682.A94D80F@...>

> > >X-Mailer: Mozilla 4.05 [en] (Win95; I)

> > >References: <25612eb1.24ba78e9@...>

> > >Mailing-List: list onelist; contact

> > > -owneronelist

> > >Delivered-mailing list onelist

> > >Precedence: bulk

> > >List-Unsubscribe: <mailto: -unsubscribeONElist>

> > >

> > >From: Lynn <CEN32195@...>

> > >

> > >Hi, I am new and am introducing myself to the list. I think I found

this

> > >on

> > >Saturday and it is very interesting and informative. I went in search

of a

> > >group because my tests went up, and I decided I needed some help

figuring

> > >things out, and I was right. I have already learned more than I new

> > >before. I had just been going along one day at a time for about 5

years

> > >untill this test, and it really motivated me. I am now in search of

> > >questions to ask the Dr.s I have, and answers to questions about

nutrition

> > >and meds and everything!

> > >

> > >I was diagnosed about 5 years ago (can't remember for sure, maybe 4)

with

> > >Autoimmune Hep. I am on imuran, prednisone 10 mg. and actigal, and a

> > >diuretic Furosemide. I also have diabetes which was diagnosed for

sure

> > >about 6 months ago. I have meneres' disease (sp) asthma and a ton of

> > >allergies to food, and IBS.. I have to have my eyes checked because

they

> > >are getting worse. That is about all I know. I would like to know

what

> > >kind of things to ask my Drs., so that I know what is going on. I

have had

> > >one bonescan and need anther this year.

> > >

> > >Right now I have been suffering from fatigue, but I don't know if that

is

> > >my

> > >liver or diabetes or meneres'. I hate trying to figure out which one

goes

> > >with which one, I can never seem to figure it out! Gives me something

to

> > >do.

> > >

> > >I live in a small town about 2 hours from Seattle near the Pacific

Ocean.

> > >Near the epicenter of the earthquake we had last week. Farming and

logging

> > >community the county we live in has 60,000 people in it. Any major

medical

> > >stuff we go to Olympia and Seattle.

> > >

> > >Well nice to meet everyone, I am glad to be here. Lynn

> > >

> > >KATBERCOO@... wrote:

> > >

> > > > From: KATBERCOO@...

> > > >

> > > > Thanks !

> > > >

> > > > Sounds Yummy!

> > > >

> > > > Kathy (AIH)

> > > > Seattle area

> > > >

> > > > ---------------------------

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Guest guest

I am not on a transplant list either....

Dixie AIH

milko wrote:

> From: " milko " <milko@...>

>

> Lyn,

> Not everyone with AIH is on a transplant list. I for one am not, it is not

> the natural course. Depending on the permanent damage to the liver.

> SueB.

>

> > >

> > >

> ------------------------------------------------------------------------

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  • 3 years later...
Guest guest

Hi...I am sooo behind on e-mails and probably won't get to read all of them.

There is just too many.

I wanted to welcome you Lynn to the list.

My name is Pam and I have identical twins with DS. Hannah and and

also has autism. I also have two sons Josh, 21 and Dusty 16. We live in

Tennessee.

I'm happy to see someone with an older daughter so we will ahve someone to get

advice from. :)

duffey48@... wrote: In a message dated 7/22/02 10:47:09 PM Eastern

Daylight Time,

mlcritter@... writes:

> " Depends " gets wet it also gets changed, and a new one is

> always on after bathtime, and in the morning. If you want more

> information feel free to ask, I know this is a personal question but

> I am glad to offer whatever help I can.

Hi Lynn,

I'm sorry you didn't get responses. We're usually great about that

here. Anyway, WELCOME!! And I am grateful to any and all information you

can share on this topic as I also have a daughter. Maddie (8, DS and

autism) has a little bit to go before we get to this, but I'm going to need

to be armed!!!

Thanks!!

Donna

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Guest guest

Hi Donna,

Thanks for the welcome! Ask away!

Lynn G.

-- In @y..., duffey48@a... wrote:

> In a message dated 7/22/02 10:47:09 PM Eastern Daylight Time,

> mlcritter@h... writes:

>

>

> > " Depends " gets wet it also gets changed, and a new one is

> > always on after bathtime, and in the morning. If you want more

> > information feel free to ask, I know this is a personal question

but

> > I am glad to offer whatever help I can.

>

> Hi Lynn,

> I'm sorry you didn't get responses. We're usually great about

that

> here. Anyway, WELCOME!! And I am grateful to any and all

information you

> can share on this topic as I also have a daughter. Maddie (8, DS

and

> autism) has a little bit to go before we get to this, but I'm going

to need

> to be armed!!!

> Thanks!!

> Donna

>

>

>

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Guest guest

Hi Pam,

How old are your twin girls?

I left a message under potty training, I don't know if you needed

that info.

Also any idea how I can check messages that replied? I don't know if

I need to keep track of the numbers. (I hope not)

Take care and thanks for the hello!

Lynn G.

-- In @y..., Pam Houser <p_houser37@y...> wrote:

>

> Hi...I am sooo behind on e-mails and probably won't get to read all

of them. There is just too many.

> I wanted to welcome you Lynn to the list.

> My name is Pam and I have identical twins with DS. Hannah and

and also has autism. I also have two sons Josh, 21 and

Dusty 16. We live in Tennessee.

> I'm happy to see someone with an older daughter so we will ahve

someone to get advice from. :)

>

>

>

> duffey48@a... wrote: In a message dated 7/22/02 10:47:09 PM

Eastern Daylight Time,

> mlcritter@h... writes:

>

>

> > " Depends " gets wet it also gets changed, and a new one is

> > always on after bathtime, and in the morning. If you want more

> > information feel free to ask, I know this is a personal question

but

> > I am glad to offer whatever help I can.

>

> Hi Lynn,

> I'm sorry you didn't get responses. We're usually great about that

> here. Anyway, WELCOME!! And I am grateful to any and all

information you

> can share on this topic as I also have a daughter. Maddie (8, DS

and

> autism) has a little bit to go before we get to this, but I'm going

to need

> to be armed!!!

> Thanks!!

> Donna

>

>

>

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Guest guest

Lynn, My twins are seven.

I know you can go to the groups web site and click on the messages to see a list

of them. Then look for any messages you wrote and click on it. The replies will

be at the bottom. But keep in mind some people may reply to a different post

than the one you wrote so it would be hard to keep up with it this way. I always

just kind of scan through them looking for my subject title or any of them with

my name on it. Unless I have time to read all of them which sometimes I do. I

have found if you miss one day of reading them then you get behind quickly. Good

LUCK!!! But there are alot of great woman on here. :)

Pam mom to Hannah and age 7

rnnbn <mlcritter@...> wrote: Hi Pam,

How old are your twin girls?

I left a message under potty training, I don't know if you needed

that info.

Also any idea how I can check messages that replied? I don't know if

I need to keep track of the numbers. (I hope not)

Take care and thanks for the hello!

Lynn G.

-- In @y..., Pam Houser

wrote:

>

> Hi...I am sooo behind on e-mails and probably won't get to read all

of them. There is just too many.

> I wanted to welcome you Lynn to the list.

> My name is Pam and I have identical twins with DS. Hannah and

and also has autism. I also have two sons Josh, 21 and

Dusty 16. We live in Tennessee.

> I'm happy to see someone with an older daughter so we will ahve

someone to get advice from. :)

>

>

>

> duffey48@a... wrote: In a message dated 7/22/02 10:47:09 PM

Eastern Daylight Time,

> mlcritter@h... writes:

>

>

> > " Depends " gets wet it also gets changed, and a new one is

> > always on after bathtime, and in the morning. If you want more

> > information feel free to ask, I know this is a personal question

but

> > I am glad to offer whatever help I can.

>

> Hi Lynn,

> I'm sorry you didn't get responses. We're usually great about that

> here. Anyway, WELCOME!! And I am grateful to any and all

information you

> can share on this topic as I also have a daughter. Maddie (8, DS

and

> autism) has a little bit to go before we get to this, but I'm going

to need

> to be armed!!!

> Thanks!!

> Donna

>

>

>

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  • 3 years later...

>

> Welcome to the group Lynn.I am also new and am looking forward

> to getting to know you....and everyone else.

>

>

>

good if you get a chancew rite me and tell me about yourself or you can IM me

atlynn8953@...

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Welcome to the group Lynn

I know you will gets lots of help and support from this group.

Love Joyce

lynn8953 <lynn8953@...> wrote:

>

> Welcome to the group Lynn.I am also new and am looking forward

> to getting to know you....and everyone else.

>

>

>

good if you get a chancew rite me and tell me about yourself or you can IM me

atlynn8953@...

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  • 11 months later...

Welcome Lynn,

Thanks for introducing yourself. I am one of the people that have used

Biofreeze, although lately haven't had to use it at all. I've had that

burning type foot pain (on the bottom of my feet) since I was about 7.

I'm also interested in Vitamins, currently taking E in 1000 IU a day.

I love art galleries, maybe because I was an art history student at

one point and started my carreer in gallery work and museums :)

I hope you'll find helpful and supportive.

~ Gretchen ( Founder and ELC)

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  • 8 months later...

Dear Ellen;

You do pay for the lawyer eventually, it's just not up front money. He gets

paid out of your settlement a set percentage in the end from your retroactive

pay. I just wanted to clarify that.

From: Zovtic

The good news is you don't pay for

the lawyer if you're filing through SS and the money is " retro " to

when you first began the documentation.

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Dear Ellen;

You do pay for the lawyer eventually, it's just not up front money. He gets

paid out of your settlement a set percentage in the end from your retroactive

pay. I just wanted to clarify that.

From: Zovtic

The good news is you don't pay for

the lawyer if you're filing through SS and the money is " retro " to

when you first began the documentation.

Recent Activity

a.. 5New Members

Visit Your Group

Yahoo! Groups

Get cancer support

Connect w/ others

find help & share

Healthy Eating

A Yahoo! resource

for families on

how to eat healthy

Yahoo! TV

Staying in tonight?

Check Daily Picks &

see what to watch.

.

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Dear Ellen;

You do pay for the lawyer eventually, it's just not up front money. He gets

paid out of your settlement a set percentage in the end from your retroactive

pay. I just wanted to clarify that.

From: Zovtic

The good news is you don't pay for

the lawyer if you're filing through SS and the money is " retro " to

when you first began the documentation.

Recent Activity

a.. 5New Members

Visit Your Group

Yahoo! Groups

Get cancer support

Connect w/ others

find help & share

Healthy Eating

A Yahoo! resource

for families on

how to eat healthy

Yahoo! TV

Staying in tonight?

Check Daily Picks &

see what to watch.

.

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