Re: MPZ

[Guest guest]

Yes, you are correct " MPZ " when I was typing the letter I couldn't remember if

she said MPV or MPZ. Thank you for the info.

C Moff, welcome and thank you for introducing yourself. Do you mean

this MPZ gene, instead of MPV? De-mylenating CMT generally refers to

the string of CMT Type 1's.

As for CMT long term, speaking from my own experience, I've lived with

and learned to manage CMT symptoms since I was 10. Alot of that

was 'trial and error', but it also involved early physical therapy,

swimming and biking through my entire life, early supplementation with

prescription strength potassium supplements, and now the use of a

combination supplement stragey, working out 6 days a week (aquatics,

pilates and martial arts - the later has been a big bonus for balance

and movement)

Let us know what your son's results are when they arrive. I hope you

find help and hope here at .

~ Gretchen ( Founder and ELC)

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