Welcome Terri

[Guest guest]

Aisha, thanks for the welcome.What is

neurosarcoidosis?

Believe me, some days it is real tough trying to cope

with a very strong willed two year old when you don't

feel good. We just adopted him in July but have had

him since he was ten months old. He kind of knows when

momma isn't feeling good and tries his hardest. Also,

as he is a special needs child himself, he goes to day

care daily so that helps.I have three other children a

son 30 who lives near New York City, a daughter 29 who

lives in Dallas and a 24 year old son in Nebraska. My

daughter especially is a big support system even

though she lives quite a distance away.We have it set

up that she is the guardian for our child if for some

reason we can't raise him. I don't have any family

living within 1000 miles of me but have a very

supportive husband.

I have had a hard time finding a dr. that knows

anything about what I have. Originally, my infectious

disease dr. that I had, had no clue about it. I lived

in Nebraska at the time and had to go to St. Louis to

find a dr. that had ever treated. There are no

medications they can give as they really don't know

the cause. I was able to find one doctor when we moved

here that at least knows what it is.

That's a little history on me. Hope to learn a lot on

here.

=====

searching for Deborah

dob 1/14/57 in nna, Fl

Relinquished in Chicago, 1961

brother and 5 other siblings searching

Half-sib found 1-16-00!

__________________________________________________

[Guest guest]

Welcome Terri, Thanks for introducing yourself. Yes, your DNA test and

your nephew's will be the same, assuming you have a family history of

CMT - although the extent of symptoms may be different.

A genetic counselor can explain the nature of CMT better, how it is

inherited, and how it is passed on to future generations.

I hope you can learn alot from .

~ Gretchen ( Founder and ELC)