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How to find right Dr.

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Can anyone help me find a doctor for my son around the Philadelphia

area (closer to Exton) that is knowledgeable in treating CMT? Still

waiting on results as to which type, understanding that it should be

the same as my sisters - something to do with the MPZ gene - I'm

assuming I need an orthopedic-type Dr. as his foot is going to need

something done. His arches are extremely high, he actually walks on

the side of his foot and cannot physically put his foot flat. Poor

kid also has hammer toes - kinda claw like looking. He is 17 and

someone mentioned to me that no type of surgery can be done until he

is done growing. Any info, adivce, suggestions would be appreciated.

Thanks!

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