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Re: Minnesota CMT

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Hi Donna,

When I read your e-mail, I couldn't believe what I read. This is

such a coincidence it's almost unbelievable. I have a sister named

Donna and she lives in Milaca, and she has CMT also. She doesn't have

a computer so I had to call and tell her about this. I can see 2

people with the same name in the same town, but the odds of both

having CMT is unreal. I just wanted to share this with you and if you

want to e-mail me directly, feel free to do so.

Kathy in MN

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Hi Kathy, I'm from MN too! I live in Brainerd, about 1 hour north of Milaca! I

have CMT type 2, not sure which subtype. So, do you tend to hibernate from the

cold too?

in Brainerd

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Hi

I'm am very familiar with the Brainerd area. My folks had a cabin on Gull

River for many, many years. We kept it in the family when my folks passed on.

When my brother retired he moved into the cabin and remodeled it. I remember

the little store in Baxter that we used to frequent. It isnt so little any

more. Everything has really changed, but is still beautiful country there.

And yes, I try not to go out any more than I have to in this cold Minnesota

weather and when the snow starts to fly, I'm always afraid of falling.

Happy to meet a fellow Minnesotan.

Kathy

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  • 3 months later...

Hi Geri,

I too live in Minnesota. Did you ever get any answers to your hair problem? My

hair and eyebrows are thinning and I never expected it to maybe be caused by

CMT, but now that I know I'm not alone, maybe this has happened to others also.

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I get so excited when I find someone from Minnesota.....I wish one day those of

us from Minnesota with CMT could meet each other and become closer.

You were wondering about my hair an end of my eyebrows.... no I never was told

my Thyroid was ok....go figure!!...Would be interesting to see if it was CMT

related.

Geri

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Uhoops!

I get so excited when I find someone from Minnesota.....I wish one day those

of us from Minnesota with CMT could meet each other and become closer.

You were wondering about my hair? and the loss of eyebrows.... no I never was

told... and my Thyroid was ok....go figure!!...Would be interesting to see if it

was CMT related.

Geri

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