Welcome

[Guest guest]

Welcome . And thanks so much for sharing your introduction

with us.

" Hereditary Neuropathies " is a very broad term - there are many,

besides CMT (also known as HMSN) that fall under this, including the

peripheral neuropathy of Frederich's Ataxia and Diabetic Neuropathy

for openers.

I understand your concern for the family and future generations. While

my CMT was diagnosed as a child, I have yet to target the actual

hereditary pattern. I'm 54, both parents deceased, along with

grandparents, cousins, etc. My only sibling was adopted at birth, so I

am 'the only one' with CMT. But I have read enough research to know

the CMT gene has evolved along with the human species from gorilla

days about 7 million years, so CMT/HMSN is in my 'family' somewhere.

You're doing what a great many of us do - watching our diet and

nutritional needs, exercising, focusing on what's positive and also

resting. I have never considered myself to be 'fighting' this

syndrome, but once I truly accepted it in my heart (I was about 27)

and started focusing on what I CAN DO, my whole attitude and outlook

on life changed for the better.

I hope you find to be a positive source of energy, helpful and

hopeful. Spend some time reviewing our Files and previous posts too.

These sites may interest you if you haven't already seen them.

http://www.ninds.nih.gov/disorders/neuropathy_hereditary/neuropathy_her

editary.htm

http://www.merck.com/mmhe/sec06/ch095/ch095i.html

http://www.emedicine.com/neuro/topic718.htm

Again, welcome.

~ Gretchen ( Founder and ELC)