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In a message dated 7/19/01 2:22:12 PM Eastern Daylight Time, terrif@...

writes:

<<

I don't mean to scare you, but it caused a terrible reaction in my daughter.

She only has seizures while sleeping, and lasting less than 2 minutes each.

After starting Gabatril, she had a seizure that would not stop and we ended

up in the E.R. with I.V. drugs administered to stop it. The next two days,

>>

THANKS TERRI

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,

I don't mean to scare you, but it caused a terrible reaction in my daughter.

She only has seizures while sleeping, and lasting less than 2 minutes each.

After starting Gabatril, she had a seizure that would not stop and we ended

up in the E.R. with I.V. drugs administered to stop it. The next two days,

my daughter only laid around and acted very strange. On the third day she

couldn't stand or walk and began saying repeatedly, It's O.K., it's O.K.

She wouldn't make eye contact or even acknowledge she could hear us. I

rushed her to the local clinic, and they sent us immediately to the E.R. at

Vanderbilt in Nashville, (a two hour drive). I told the doctor it was the

Gabatril because in 10 years she had never experienced anything like this,

until she started it. This bizarre behavior was a seizure. The doctor said

she didn't think the Gabatril was the cause, but I knew in my heart it was.

We stopped the medicine and she never had this happen again.

All medicines affect each person differently, and that may never happen to

anyone else. But I like to know everything I can find out about each new

medicine we try.

Terri

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  • 9 months later...
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> Now................tell me more about tri-salts. Matt's pain is muscle and

> tissue involved.

Oh I cannot believe I forgot!! OY~ Let me find that receipt and I'll

post back , don't worry, I made a note LOL

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Well , thanks for being the guinea pig on this one!

Now................tell me more about tri-salts. Matt's pain is muscle and

tissue involved.

[ ] Gabitril

> Well, I did my 4 nightly doses of this med, which is one more night that

I had planned, and I do not think I will do anymore. I was only on 2mgs but

it knocked me flat on my arse and didn't relieve anything , other than my

consciousness LOL And I would wake up the next morning feeling like I had

been run over, truly hurt head to toe. Come to find out its an

anti-epileptic, even though I don't have seizures, I know that meds that are

made for one thing, work for another. Anyhow, just wanted to let y'all know

how it affected me in case you were fixin to try it or ask to try it. Take

care,

>

>

>

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  • 2 years later...

> We haven't used Gabitril with our son (yet), although we are working

> with a psychiatrist to find the right medication for my son's severe

> anxiety and mood swings

Very typical of adrenal problems, and doing something about those may

well be quite helpful.

>(Depakote and Risperdal helped a notch but has

> not been the ticket). It may certainly be worth a try and might be a

> big help for your son, but I would caution you that it is important to

> have a psychiatrist help with the medications because that is their

> expertise. I have friends who have had horrible experiences when they

> allowed their pediatrician to prescribe these kinds of meds. I don't

> know what kind of doctor you are using, but putting kids on and taking

> them off medication is very serious business and you really want someone

> who can help you manage with as much experience as possible.....Just my

> two cents..

Wise commentary. As in alternative medicine, it is quite the thing to

pretend all medications are totally safe, without side effects, never

cause adverse reactions, etc. so as to get the doc's to hand them out

like candy.

Andy . . . . . . . .

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  • 2 years later...

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