CMT energy and working

[Guest guest]

Hi all,

I do not post often but I do read the posts that come thru. I have

been struggling with energy levels and being able to work. I am in

a position where I must work f/t to support myself. It has been a

difficult 2.5 years since my diagnosis.

I was working f/t but lost my job last december due to the disability. I could

not prove it so I was not able to receive any compensation.

I found employment in Feb of this year, but the stress of that job was wreaking

havoc on the condition. The end of Sept. I left my f/t job and began a p/t

position with a not for profit agency. I love the job BUT I am unable to

continue as I am financially sinking fast. Not enough $ to support myself.

I have been working 21 hours/week with Big Brothers Big Sisters as a caseworker

and then filling in 2 days/week at a furniture store as a comission sales

person. I just resigned from the BBBS jobs I can not work enough hours to make

$ at the furniture store.

Despite my negative experiences with " disability " and holding a job, both these

employers have been great. I only hope working 40 hours/week on my feet, will

be ok. the manager is awesome in that he is more than willing to work around my

aches/pains and energy level. How have other people managed with working and

CMT?

I am from Alberta Canada and I have done some inquiries into getting some

assistance. I am not sure what I can get, how to get it and what the

limitations on any working are. In

reality I am not ready to lay down and let this disease dictate my

lifestyle, yet it is becoming harder and harder to function.

I am soooo tired and it takes forever for me to gain energy to do a day's work!

anyone from Canada - alberta would even be better so I can chat about issues

that we can access etc in Canada? I am very

thankful for this group itis great. I admire those of you who are

so " up " I have not yet really accepted this disease and feel I

havevery little support. I am making progress however, but it has

taken a long time! thanks al for hearing my rant