Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 Do you think past blood donations could be contaminated with PA even if you were not diagnosed back when you donated? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 > this may sound like an odd question, but can we as pa'ers be blood > donors? Sorry, no. They told me at the Blood Center that you cannot donate if you have ANY of the inflammatory arthritises. Osteoarthritis is ok, but not the others. Diane Toasty in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 I have no truoble donating blood, do so every 58 days or so and have for years. I'm an 8+ gallon donor. The only time I could not donate was when I was on MTX and for 6 mos after. So at least in Oregon there is no problem with inflammatory diseases and blood donation. Moderator note: I also understood the prohibition against blood donation related to taking MTX, rather than simply being diagnosed with PA or other inflammatory arthritis. PHDRWD@... Patty from OH _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 When I inquired about blood donation, they explained that it's the lack of knowledge of what is in the blood that causes us not to be able to donate, not what actually is in the blood. Becky (braine@... NV) Re: [ ] Re: donating blood Do you think past blood donations could be contaminated with PA even if you were not diagnosed back when you donated?Please visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 I was a regular blood donor, but was told that since I was on plaquinil I can't give blood, and am still on it. Hope this helps. Betty in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 I had a different experience than what was described below. I've always disclosed my PA in the questionnaire they give you before donating, and they've always taken my blood. There are some medications that you can take for PA like MTX that will disqualify you though. <sherman.fam@r...> wrote: > > this may sound like an odd question, but can we as > pa'ers be blood > > donors? > > Sorry, no. They told me at the Blood Center that > you cannot donate > if you have ANY of the inflammatory arthritises. > Osteoarthritis is > ok, but not the others. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 >>Does anyone know why you cannot doante? She said that you cannot donate with Lupus or ANY connective tissue disease. I didn't know that. , We've discussed this over on the arthritis news board, and it seems some blood banks have let people donate with illnesses like autoimmune arthritides, and others do not. I get the impression that they are becoming more concerned about the fact that these are autoimmune diseases, and are concerned about people passing on auto-antibodies, but this is just my uneducated guess. Maybe there is a national guideline now, but application is not consistent? If you find out anything about that, please let us know. Also, being a believer myself that there is an infectious cause, trigger or co-factors involved, I would not feel good about giving my blood to another in any case. Also, we are at more risk for anemia of chronic disease, and blood disorders from some of the medications, so maybe it would not be a good idea for our own interests to donate anyway. We need all the RBC and platelets we have. I have never been able to donate blood myself because I was always under the weight guidelines or anemic, so got turned down even before I learned I had RA. I know there are programs where you store your own blood if you have a surgery coming up, in case you need it, but am not sure if you can do that for long-term storage. Perhaps someone else here will know about that. Regards, Liz G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 , They wouldn't let me donate blood when I had thyroid disease years ago. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 , I knew that last year when I had to give blood for myself because I was having knee surgery. It's been a known fact on this list for quite some time. They don't like our diseased blood. Oh, well. jan I guess that this is true...our diseased blood! LOL! God, giving blood is something minute, yet it took this event for it to sink into me that I Do have a disease. Go figure. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 ----- Original Message ----- > I know there are programs where you store your own blood if you have a surgery coming up, in case you need it, but am not sure if you can do that for long-term storage > Liz, I have a question.....I could understand the concept of wanting to store your *own* blood but this is what I do not understand..... I would think that if you had Lupus, AS, RA, etc., that you would want to receive * " good " , outside* blood if you needed it. Why would you want to recirculate the affected blood? Now certainly I do not think that by getting someone else's blood will cure you from any disease but it has at least has to be *better* than the blood that you already have. Does that make sense? ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 > Now certainly I do not think that by getting someone else's blood will cure > you from any disease but it has at least has to be *better* than the blood > that you already have. Personally, if I had just been through surgery, I would take my own bugs back, rather than take a chance of being exposed to someone else's. Even just non-infectious things in the blood (unfamiliar proteins, etc) could trigger the immune system, I would think. Once my immune system goes on alert from any reason, it always puts me into a bad flare. The shock of the surgery, and drugs that you might be put on after the surgery to suppress pain or inflammation, may suppress your immune system also. I don't know whether there are any anti-rejection drugs involved in an operation like a joint replacement, but maybe someone else here does. I know they routinely test for many of the big nasties now, but what about bugs they might not be aware of the implications of? How many got Hep C from transfusions before they tested for that? Or HIV, before they knew what that was? Being immunocompromised, and immunosupressed by meds, I don't even want to share a glass with a stranger now, much less their blood. After last winter of non-stop flu, I don't even want to share a *room* with a stranger if they are sneezing, LOL. Of course, if I was in an accident,or had an emergency surgery, and needed a transfusion to save my life, that would be a different story. But if I had foreknowledge, I'd rather give my immune system my own blood back to deal with. Just some of my own uneducated opinions on the subject. Liz G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 I will take refusal as a small victory for the infectious theory. Next time one of you get a negative comment from your rheumatologist.....remind them of this fear at the blood banks. DonnaOttawa, CanadaScleroderma, Jan.95, AP Oct.97(My Story) http://www3.sympatico.ca/mousepotatoes )(Ottawa Support) http://www3.sympatico.ca/mousepotatoes/rbf.html ============ - I must be stupid or something.......I went to donate blood today and they told me that I could not donate b/c I was having connective tissue problems. ??????????????????? I was allowed to donate in June, so what is up with Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2006 Report Share Posted December 15, 2006 Ok, heres a question. Just wondering, that's all. Since I have Lyme Disease I cannot donate blood. What about having CMT? Can you actually give it to someone through a blood donation? Thanks, Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 Teri, Nope. You cannot give your CMT away by donating blood. I've been donating for years and was diagnosed with CMT when I was 3. The staff or volunteers may look at you strangely if you try to donate from a wheelchair, but hey, if you feel up to it - do it. I've gotten a couple of strange looks and even a few questions. If asked, I usually say that I have CMT, it's inherited, and even if it wasn't, I'm having so much fun with it that I'm keeping to myself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 Personally, I would not give blood for any reason with the illnesses we have. In Canada, CFS patients are not permitted to give blood, and I would think it unwise for all others because of the stress it would place on your body. But that is an opinion. I don't think LDN in itself would be a reason not to give blood Jaye > > Lifesouth is at my work today and I usually give blood, but I am on 3.5mg of LDN for RRMS. They say its ok, has anyone had any experiences with donating blood while on LDN?? > Thanks !! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 I have talked to our Blood Bank before and despite no longer taking Minocin, our Blood Bank does not want me to donate...I have SD and RA and other AI issues..once I put that down, I am not allowed to donate. Debbie rheumatic blood drive rheumatoidarthritis-low dose naltrexone , rheumatic Date: Tuesday, October 26, 2010, 10:08 PM well, Ive been feeling pretty well and yesterday saw they were having a red cross blood drive, so i went in and when i listed the mino.. they raised a red flag.. I explained why i take the mino.they called the head Dr, basically they said NO blood donations! ell, thier loss...Kathy Quote Link to comment Share on other sites More sharing options...
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